What to do with extra Plaquenil?

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Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 12/3/2013 6:52 PM (GMT -6)   
I was on plaquenil for about 8 months (not for Lupus, but for a blood disorder) but have stopped because it wasn't fixing the antiphospholipid antibody syndrome.
 
Do any of you know if there are programs to give non needed meds to someone in your area?  I have close to 90 days worth and it bothers me that if I take them to the pharmacy, they'll be trashed.
 
I'm in Georgia..if anyone knows of someone in need or a program to use meds that a patient has discontinued, please let me know.
 
Thanks.
Becky (aka Monkiray77)

Crohn's, Anxiety & Depression, Migraines, Chronic Lower Back and Leg Pain, Pulmonary Emboli (x4) & Pneumonia (too many times), Blood disorders

Surgeries: 2 Bowel resections, appendix & gallbladder removed

Meds: MTX, Warfarin, Prevacid, Prozac, Pravastatin, Gabapentin, Lortab, Zanaflex, Clonazepam

zimms
New Member


Date Joined Nov 2013
Total Posts : 13
   Posted 12/3/2013 10:44 PM (GMT -6)   
hi Becky, you can ask your doctor he or she may take them off
your hands and he will give them to some one who cant afford them.

lupie
lupie

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 12/4/2013 10:15 PM (GMT -6)   
Becky,

Gosh I'm sorry I don't know of a place to donate the plaquenil, but I hate hearing that it wasn't working for you and helping your blood disorder.

What will be the plan now to control your antiphospholipid antibody syndrome? By the way I too have this exact syndrome. Of course, I'm on plaquenil and have been for 13 years now. I'm also on Coumadin but still having troubles keeping my INR in range.

I hope tht they can find something that works for you, and you'll be in my prayers. Take care and let me know how you're doing from time to time.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

NAHNEE
New Member


Date Joined Jul 2016
Total Posts : 1
   Posted 8/8/2016 7:44 PM (GMT -6)   
I have a whole bottle left because I had to quit taking it after 3 days. I also have antiphospholipid antibody syndrome. I've been sick with many issues all my life. This med made my legs swell and I had severe pain all over. I couldn't sleep and was very drowsy during the day, my arms and legs started twitching and I felt I was losing my mind. I am so glad I stopped it. I would much rather feel the pain that's my norm instead of the side effects.

cilly
Veteran Member


Date Joined Aug 2014
Total Posts : 1345
   Posted 9/8/2016 11:16 PM (GMT -6)   
Once a drug is opened and no seal.they can't take it back .

For donation I do not know rules.

I guess I felt sick on. Same med too. Or it was prednisone.

My eyes have never felt same again.
I guess I have that syndrome too but I forgot it's name.

Planquenil and prednisone both have extreme side effects.

But they help a lot for lupus.

Many healing prayers .
Cilly

bebbles
New Member


Date Joined Sep 2016
Total Posts : 3
   Posted 10/3/2016 6:29 PM (GMT -6)   
I noticed some blurriness in the eyes after taking this stuff for only a few months. The Rheumatologist says I have unspecified connective tissue disease based on some positive ANAs and low white blood cells.

Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 424
   Posted 10/3/2016 8:18 PM (GMT -6)   
Hi Becky,

I know a Dr. at my church asks us to bring our old/expired or medications we no longer need to her to donate and she takes them with her when she goes abroad when she volunteers to "Doctors without Boarders". I'm sure you can ask your doctor or simply type "Doctors without Boarders" volunteers in Georgia and you will be able to locate someone who would be happy take the plaquenil off your hands.

Hugs,

Melissa

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7468
   Posted 10/3/2016 8:54 PM (GMT -6)   
Bebbles,

You need to have an eye exam when you start Plaquenil, done by an ophthalmologist.

Here is an eye test that is easy for all of us to do online, while waiting for your Dr appointment. Scroll down after you go to this site until a graph shows up with a dot in the center. Look at the dot with one eye at a time, and if the lines change, then you might need to see the doctor. Instructions & more information is available on the page.

Plaquenil & Your Eyes
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde
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