Problem with hairloss

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Cereal Bowl
New Member


Date Joined Jun 2016
Total Posts : 4
   Posted 7/1/2016 1:33 AM (GMT -6)   
Hi everyone, I'm new here.
I've been diagnosed with lupus for 8 years. I'm 23 years old. The first symptom that was found was hairloss. First I felt my head so itchy and I went to a doctor and the doctor said that it was fungi on my scalp. They gave me medication but I still got hair loss. On the contrary, the medication made me worse because my body kind of rejected the medicine and it made me had high temperature and headache. It happens a lot of time. I still got a lot of hairloss.. It has been almost a year until they found out my real disease.

After they found my disease my hair grew back. I felt better and I never felt sick anymore. The medication really worked for me. Then about 2 years later I didn't really know why, my hair started to fall again. In my case, my disease never attacked "important" of my body. In fact, I don't know the difference between sick or not. The only problem I had for this disease is hairloss. I guess I can be considered as lucky :)

But, although I'm so grateful this disease doesn't really harm me in a hard way, I still feel frustated because of hairloss. It happens on and off. Like 1 years I'm okay, then it started to fall again for 1 years. Then I found out that maybe when I'm stressing out it caused my hairloss, no matter what medication I take. So, it is very frustated for me because once I got hairloss I always felt afraid because my hair is going thinner. I knew I shouldn't be stressed out and have positive mind about it. But it's so hard to do than to say. I always scared when I combed my hair.

Does anyone have the same experience like me? I would like to know if there's a way to handle it.

Post Edited (Cereal Bowl) : 7/1/2016 1:36:23 AM (GMT-6)


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7475
   Posted 7/1/2016 5:33 AM (GMT -6)   
I had some hair thinning, but as I got better it seems to have grown back.

Are you still taking any medication? If so, what? A few of the meds for Lupus can cause hair thinning.

What other symptoms lead to your diagnosis?

Have you ever had your Vitamins B & D checked? I think both of them can be related to hair loss.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Cereal Bowl
New Member


Date Joined Jun 2016
Total Posts : 4
   Posted 7/1/2016 8:10 PM (GMT -6)   
Hi. Thank you for your answer. I am now taking Cellcept, seloxy, cravit, and rhisokin. I heard that Cellcept can cause hair loss, is that true? And also when I have my period I have more hairloss. Is this because of the disease too?

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7475
   Posted 7/1/2016 8:18 PM (GMT -6)   
Yes, Cellcept does cause some hair loss! I think that's the one that got me!

Never heard of a correlation with one's period, that would be some sort of hormonal thing?
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Cereal Bowl
New Member


Date Joined Jun 2016
Total Posts : 4
   Posted 7/1/2016 11:27 PM (GMT -6)   
I don't really know about the correlation too, but when my disease hasn't been identified, one of the symptom is I always get high fever when I got my period. It is more like anemia I guess. But I don't think it is the same blood system between blood for body circulation and period.
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