Thanks so much for replying...Yes he is a rheumy... My friend with lupus says it sure sounds like lupus to her. I read the info on mast cells, which was a bit over my head, and I do have many of the symptoms but only about
75 percent, so not sure what to think, I will definitely mention it to the doctor He is making a diagnosis or ordering more tests today. This is the toatal message I sent the rhuemy's nurse this morning...Does any of this sound familiar to anyone?..Thanks for your help.. <3
I have been hospitalized for severe pneumonia 2 times in my 20s, in both lungs and had frequent bronchitis as a kid into my 20s (about
3 times a year) and after that I had it rarely, maybe 4 times in the last 25 years... hardly at all, I also have moderate sleep apnea which went away when I lost weight and returned with my 40 lb weight gain...Was on allergy shots for 10 years in my 20s for 4 or so allergens.
I am listing any weird anomaly I can think of:
Very sweaty palms and feet since childhood, in the last few years I break out in sweats all over, but on face and back of the neck and torso, swollen=, hard itchy vaginal walls (a new thing in the last 3 years...it has occurred twice, I just got over a bout of it) 2 ooferectomies due to ovarian cysts. one at 16 and one at 38, secondary infertility. periods of insomnia followed by months of sleeping 15-20 hours a day on and off 12 hourse of unrefreshing sleep, followed by getting up for an hair and falling into bed to sleep 2 hours, etc Depression on and off through out my life ...(The nite sweats occur more when I have the extreme bouts of fatigue)
fibromyalgia, preeclempsia and high levels of protein in urine, low levels of blood and protein in yrine all through out my life, frequent urnation, urinary tracy infections through out my life. ebstein barr at 14 and again at 27, red blood spots on legs. debilyating fatique that's lasted for years at a time and the subsided for years, CFS diagnosis by internal med specialist at SIUE school of meds at 27, swollen glands that have lasted the for these last 2 years (salivary), red palms numbbess in finger tip , terrible pain in hands in winter weather, they sting even when I am just getting ice out of the fridge for just a second and the finders turn white from the cold...
I have frequent night sweats, sometimes wake up drenched in sweat...these occur about
4 night s a week Headaches occasionaly, flue like feeling, Painful, creaky knees, chronic fever of 99-100.4 Fever throughout my life on and off. Swelling (mild) in feet, legs, hands Butterfly-shaped rash across my cheeks and Sun- or light-sensitivity, even white florescent light brings out the rash, I have spent all summer inside. this has occurred on and off all my life but is worse now that ever
3 people with lupus have told me during the last 30 years that I have the lupus rash, but I just said I have rosy cheeks, also type 2 diabetes, and enlarged liver and pancreas when I had mono in my 20s hard swollen glands in my groin that were marble sized. The fever always shows up with swollen glands in the neck and I can have both for years at a time...Currently have swollen glands plus low grade fever for the last two years...That's all I can think of...Looking forward to hearing from you.
Post Edited (Blissy10) : 7/8/2016 1:11:48 PM (GMT-6)