what does it mean when you test negative for lupus but your rhuemy wants to retest in 6 months?

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Blissy10
Regular Member


Date Joined Jul 2016
Total Posts : 43
   Posted 7/9/2016 7:12 PM (GMT -6)   
what does it mean when you test negative for lupus but your rhuemy wants to retest in 6 months? my ch50 was over 60 and my crp was 5.6...Those were the only abnormal tests and neither points toward lupus from my understanding. Very confused.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7467
   Posted 7/9/2016 7:32 PM (GMT -6)   
It means your blood test doesn't indicate Lupus right now but possibly your symptoms are pointing in that direction, and the rheumy doesn't want to diagnose (or treat?) based on what he sees but wants to see if anything changes over the course of the next six months.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7467
   Posted 7/9/2016 9:12 PM (GMT -6)   
Just tell all that to the Dr.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Blissy10
Regular Member


Date Joined Jul 2016
Total Posts : 43
   Posted 7/9/2016 9:17 PM (GMT -6)   
I did...he still says it's only fibromyalgia....I copied and pasted this straight from the email I sent him... I have been reading about both and I think I fit the criteria for both of them, which just leaves me confused because they are both so similar...:/

Post Edited (Blissy10) : 7/9/2016 9:21:33 PM (GMT-6)


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1329
   Posted 7/12/2016 10:24 AM (GMT -6)   
Lupus is rarely easy to diagnose and shares symptoms with other diseases. This is the nature of an autoimmune disease and diagnosis often takes time. If you are not satisfied with your rheumy get another opinion but find one who is experienced treating lupus and other AI diseases....not all are.

Bill
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.

Blissy10
Regular Member


Date Joined Jul 2016
Total Posts : 43
   Posted 7/12/2016 10:30 AM (GMT -6)   
Thanks for your help, Bill...I do think I will get a second opinion... I am so happy for you that you have regained your health!!, It sounds like you are making the most of it! Are you in remission, or fully recovered? How did you do it?
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