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SJR67
New Member


Date Joined Aug 2016
Total Posts : 1
   Posted 8/24/2016 2:54 PM (GMT -6)   
Going on my 5th year w/MCTD- before worked full time & then some for 23 yrs. It began w/a diagnosis of Pericarditis, then another & another & at 4th diagnosis my cardiologist said I believe autoimmune process going on. I live in VT which significantly lacks medical resources of any kind. I have taken high doses of Steroids and Plaqunil. I don't think suppressing our immune systems is the answer.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7468
   Posted 8/24/2016 3:10 PM (GMT -6)   
MCTD, Lupus, and several other auto-immune diseases are often described as "over-active immune systems", where much of the pain and inflammation is when the overactive immune system randomly decides to attack a normally-functioning part of the body. The immuno-suppressants are used to bring the over-activity back to a normal level.

Neither Plaquenil nor Cortico-steroids are immuno-suppressants.

The next medications used after Plaquenil and Prednisone are generally either Cellcept, Imuran, or MTX. Are these the medications you are saying you don't think are the answer?

For me, Cellcept was the "miracle drug" that made my disease "quiet".
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

cilly
Veteran Member


Date Joined Aug 2014
Total Posts : 1345
   Posted 9/3/2016 2:39 PM (GMT -6)   
For lack of insurance I can't be on cellcept.

I have fairly active lupus and Fibro plus anxiety and depression.
I a m trying to manage my symptoms as much I can.

I want to improve my diet ,sleep and exercise habits which are terrible.
I take Aleve for pain and walk 3 days a week.
My eyes have been affected a lot by lupus as I can't see that well.

I have not seen my rheumy for a year now.
Cilly
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