ANA blood test

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kikichel
New Member


Date Joined Sep 2016
Total Posts : 4
   Posted 9/13/2016 1:59 PM (GMT -6)   
I have had the ANA blood test done several times. Each time it comes back Positive with a titer of 1:1280 homogenous pattern. I also had a CRP (C-reactive protein) done this last time also and it came back elevated. Over the past year my hair has started falling out and thinning so much, I can go days with only a few hours of sleep ( not because I am not tired), I am exhausted, both of my legs have been hurting so bad the last two weeks that as soon as I get home from work, I soak in a bath, rub them with biofreeze and as of last week I have been prescribed Ultram for the pain( which I have only taken once, because I do not like taking pain meds). I have many more problems or symptoms but I am beginning to think I am just crazy. My family physician referred me to a Rheumatologist at the end of the month because of the last set of labs and I was hurting so bad. Can you tell me if the tests indicate Lupus? I have had several people tell me that I don't have Lupus because I don't look sickly. Any help would be greatly appreciated. Thank you.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7471
   Posted 9/13/2016 7:10 PM (GMT -6)   
Lupus is certainly NOT diagnosed by whether or not you "look sickly". In fact, with Lupus you can be very, very sick and not look it at all.

Your PCP should have referred you to the rheumatologist the first time your ANA came back that high instead of waiting around!

You are certainly not crazy, although sometimes our symptoms make us think that is the case. For many of us a diagnosis is a relief in that we finally know we aren't making it up and "being weak".

Lupus is diagnosed by symptoms, unfortunately there is no single test that gives us definite answers. Drs will make a diagnosis if we have at least 4 of the the following 11 symptoms:

1. Malar rash: butterfly-shaped rash across cheeks and nose
2. Discoid (skin) rash: raised red patches
3. Photosensitivity: skin rash as result of unusual reaction to sunlight
4. Mouth or nose ulcers: usually painless
5. Arthritis (nonerosive) in two or more joints, along with tenderness, swelling, or effusion. With nonerosive arthritis, the bones around joints don’t get destroyed.
6. Cardio-pulmonary involvement: inflammation of the lining around the heart (pericarditis) and/or lungs (pleuritis)
7. Neurologic disorder: seizures and/or psychosis
8. Renal (kidney) disorder: excessive protein in the urine, or cellular casts in the urine
9. Hematologic (blood) disorder: hemolytic anemia, low white blood cell count, or low platelet count
10. Immunologic disorder: antibodies to double stranded DNA, antibodies to Sm, or antibodies to cardiolipin
11. Antinuclear antibodies (ANA): a positive test in the absence of drugs known to induce it.

When is your rheumy appointment? Check out the thread Lupus 101 and read the info about how to prepare for your first appointment. Definitely make a list of all the things going on with you that didn't used to be the case -- we never know when something we are prone to dismiss is actually the magic clue that leads the Dr to a diagnosis -- take the Dr the list and go over it with him/her!

Let us know how it goes or if we can help you with anything in the mean time.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

kikichel
New Member


Date Joined Sep 2016
Total Posts : 4
   Posted 9/13/2016 8:53 PM (GMT -6)   
Thank you so much! By looking at this list I have several, numbers 1,3,4,5,11, I also so a cardiologist and had to wear a monitor for 30 days because of heart fluttering and palpitations and was sent to a neurologist because I kept having what I call brain freezes( it was a sharp stabbing pain in my temple) they would happen several times a day and would make me stutter. So I don't know if that is a symptom or not. I also had my first butterfly rash across my cheeks and nose a week ago when the pain in my legs were so severe.

kikichel
New Member


Date Joined Sep 2016
Total Posts : 4
   Posted 9/13/2016 8:55 PM (GMT -6)   
My appointment is scheduled for September 29th. I will make sure to update you after my appointment. Again , thank you so very much for the helpful information.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7471
   Posted 9/14/2016 6:42 AM (GMT -6)   
Just remembered this classic essay on Lupus - "But You Don't Look Sick". cdn.totalcomputersusa.com/butyoudontlooksick.com/uploads/2010/02/BYDLS-TheSpoonTheory.pdf

Enjoy!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

kikichel
New Member


Date Joined Sep 2016
Total Posts : 4
   Posted 9/14/2016 2:58 PM (GMT -6)   
That was a very good read and it puts a lot into perspective. Thank you.
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