Is redrose77 still around here?

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VLou*
Regular Member


Date Joined Feb 2015
Total Posts : 59
   Posted 10/22/2016 6:02 AM (GMT -6)   
Hi I've been on this forum for a few years.

Just been looking at very old posts and would very much like to get in touch with redrose77 as she has been diagnosed from only having positive antiphosphlolid (sp) antibodies.

I'm in a similar situation as her (only blood test postitive was anti coagulant), only they won't diagnose me.

I've been on hydroxychloroquine for over 6 months, which has helped my symptoms tremendously, although I am still highly sensitive to the sun.

My hand rash has practically gone so can't get it biopsied.

Help from anyone would be appreciated. I can I get diagnosed?

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7466
   Posted 10/22/2016 6:37 AM (GMT -6)   
No, unfortunately our friend redrose passed away several years ago from complications related to weight loss surgery.

Typically, four or more of the following eleven criteria must be present to make a diagnosis of systemic lupus.

1. Malar rash: butterfly-shaped rash across cheeks and nose
2. Discoid (skin) rash: raised red patches
3. Photosensitivity: skin rash as result of unusual reaction to sunlight
4. Mouth or nose ulcers: usually painless
5. Arthritis (nonerosive) in two or more joints, along with tenderness, swelling, or effusion. With nonerosive arthritis, the bones around joints don’t get destroyed.
6. Cardio-pulmonary involvement: inflammation of the lining around the heart (pericarditis) and/or lungs (pleuritis)
7. Neurologic disorder: seizures and/or psychosis
8. Renal (kidney) disorder: excessive protein in the urine, or cellular casts in the urine
9. Hematologic (blood) disorder: hemolytic anemia, low white blood cell count, or low platelet count
10. Immunologic disorder: antibodies to double stranded DNA, antibodies to Sm, or antibodies to cardiolipin
11. Antinuclear antibodies (ANA): a positive test in the absence of drugs known to induce it.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

VLou*
Regular Member


Date Joined Feb 2015
Total Posts : 59
   Posted 10/22/2016 6:55 AM (GMT -6)   
Oh gosh I'm sorry :(

Thanks for the information.

So does number 10 not include Lupus anticoagulant?

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7466
   Posted 10/22/2016 8:07 AM (GMT -6)   
Wikipedia says "Lupus anticoagulant" is actually a misuse of both words, and says it has nothing to due with Lupus.

"Most patients with a lupus anticoagulant do not actually have lupus erythematosus, and only a small proportion will proceed to develop this disease..."

So my thought would be that no, #10 does not include it.

Post Edited (Lynnwood) : 10/22/2016 9:34:10 AM (GMT-6)


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/22/2016 7:25 PM (GMT -6)   
Try clothing with built in sunscreen. I get my sun protective clothing from coolibar.com.

They have hats and great gloves.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

VLou*
Regular Member


Date Joined Feb 2015
Total Posts : 59
   Posted 10/23/2016 7:15 AM (GMT -6)   
Thanks for the comments.

Couchtater I've noticed from other posts that you have Raynaud's, when was your onset of this? Was it when you first had symptoms of lupus or years before?

I think mine is secondary as it started at about age 30, along with the start of my symptoms. I then developed more symptoms time went on.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/23/2016 6:36 PM (GMT -6)   
Mine seems to be in my feet mostly. They stay cold from October to April and I live in the south. They turn blue if I don't keep socks on them.

My mother has it in her hands. Her fingers turn white in the refrigerator section at the grocery store.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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