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Micflores4
New Member


Date Joined Dec 2016
Total Posts : 2
   Posted 12/15/2016 11:44 PM (GMT -6)   
I will be starting a new drug next week .....acthar? Has anyone taken these home injections? Any success? Side effects? Complaints? Praises?

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1639
   Posted 12/21/2016 12:01 AM (GMT -6)   
Welcome to our forum micflores4. I've never taken ACTH, but I looked it up and found that it stimulates the release of cortisol and another steroid. These are supposed to reduce inflammation. I thought it was interesting that the medication ACTHAR is derived from highly purified pig adrenal glands. Anyway the way I understood it was that ACTHAR is basically the ACTH that your body produces, but it is supposed to dramatically increase the cortisol production in your body. I'm betting that you already know this and since I've never taken it I'm really no help. I hope someone comes along who has taken it and can help you. I hope your injections go very well
SLE '05, Sjogren's, Fibro, Raynaud's, major depressive disorder, CVID (Common Variable Immunodeficiency), Hypertension, Osteoporosis, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry

memmy29
New Member


Date Joined Feb 2014
Total Posts : 8
   Posted 1/5/2017 7:30 AM (GMT -6)   
I just started Acthar for joint pain associated with Crohn's disease. I was not responding well to 40 mg of prednisone so my Rheumatologist started me on it. All I know is that it's extremely expensive. I am taking one 80 mg shot per week. So far so good, but in addition to weaning off the prednisone I have a huge moon face and swollen neck. Not sure if Acthar is contributing to this but I've never had this much fluid retention on prednisone alone. I think it's helping with the joint pain, as I'm weaning off pred and feeling pretty good. Good luck.

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1329
   Posted 1/7/2017 10:40 PM (GMT -6)   
Acthar makes your body produce more cortisol rather than taking prednisone which is the synthetic. It has been around but not widely used for 50 years. It does seem to work for some but not others like all treatments. It was very cheap until 2 different companies bought the rights to make it and raised the price a few years ago.

https://www.actharrheumatology.com/

https://myositisco.wordpress.com/2014/03/04/something-old-something-new-a-brief-history-of-acthar/
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.
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