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CCalway1
New Member


Date Joined Dec 2016
Total Posts : 2
   Posted 12/23/2016 5:01 PM (GMT -7)   
Twice now my ANA has come back as 1:640, my sed rate was 10 on my first testing and now is 47. This last testing shows my ANA pattern as speckled. Right now the rheumatologist is treating me with Celebrex for the pain. I still have not shown to test positive for lupus or lymes disease, yet my symptoms have worsened and I get minimal relief from the Celebrex, I actually get more relief from 800mg of ibuprofen. Is this all normal? or could I have one of these, just not testing positive?

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1596
   Posted 12/24/2016 12:05 PM (GMT -7)   
Welcome to our forum CCalway1. Many diseases take time for antibodies to develop at a high enough level for a laboratory blood test to definitively register as positive. Your high definition rate only indicates that there is inflammation in your body. It doesn't even indicate where the inflammation is located. In my opinion one of the saddest occurrences with autoimmune disorders and diseases is that it can take so incredibly long for a doc to reach a diagnosis. Try to be patient Sweetie and continue trying. Love, Butterflake
SLE '05, Sjogren's, Fibro, Raynaud's, major depressive disorder, CVID (Common Variable Immunodeficiency), Hypertension, Osteoporosis, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1596
   Posted 12/24/2016 8:10 PM (GMT -7)   
Not surprisingly I wrote an word that made no sense. Definition rate is supposed to be shed rate. An abbreviation for sedimentation rate.
SLE '05, Sjogren's, Fibro, Raynaud's, major depressive disorder, CVID (Common Variable Immunodeficiency), Hypertension, Osteoporosis, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7219
   Posted 12/26/2016 3:09 PM (GMT -7)   
Lupus is NOT diagnosed by blood tests. Typically, four or more of the following criteria must be present to make a diagnosis of systemic lupus.

1. Malar rash: butterfly-shaped rash across cheeks and nose
2. Discoid (skin) rash: raised red patches
3. Photosensitivity: skin rash as result of unusual reaction to sunlight
4. Mouth or nose ulcers: usually painless
5. Arthritis (nonerosive) in two or more joints, along with tenderness, swelling, or effusion. With nonerosive arthritis, the bones around joints don’t get destroyed.
6. Cardio-pulmonary involvement: inflammation of the lining around the heart (pericarditis) and/or lungs (pleuritis)
7. Neurologic disorder: seizures and/or psychosis
8. Renal (kidney) disorder: excessive protein in the urine, or cellular casts in the urine
9. Hematologic (blood) disorder: hemolytic anemia, low white blood cell count, or low platelet count
10. Immunologic disorder: antibodies to double stranded DNA, antibodies to Sm, or antibodies to cardiolipin
11. Antinuclear antibodies (ANA): a positive test in the absence of drugs known to induce it.

What symptoms do you have?
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde
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