Hi, please can someone give me some advice.
I am 24 living in South Africa.
Here is the full story:
Feb: diagnosed with bipolar
March - April : tried different psych meds
May: started on lithium
June: joint pains start &fatigue (I now realize that these were minor joint pains)
July: blood tests for autoimmune (RA in family) - all I was told was 'weak positive' by the GP
July: psych doc refers me to physician 1 - physician 1 suspects lupus - prescribes arcoxia and sends me to rheum. (Arcoxia works well) blue / red finger tips at this point.
August: see rheum - says lupus but doesn't explain anything - cortisone injection and plasmoquine. Decide to get a second opinion.
Sept: see another physician who is not sure about
lupus - keeps me on plasmoquine and Celebrex. Urine tests show uti and increased leukocytes even when there is no infection.(every urine test says this over 3 months) Joint pain subsides slightly.
CRP high, tests suggest UTDC. Hair falling out
October: decide to go off lithium to rule that out for cause. No change once I am off. Only on lamicitan and trepiline now.
November: physician 2 tells me to go off plasmoquine - I think experimentally? (glad - don't want to be on Meds if no reason) joints still painful but not as tired. Missed period
I am fine - mild joint pain and no fatigue for -+3 weeks. But many mouth ulcers
December - stomach upset; very sore joints; butterfly rash - but only after shower or heat; hair loss; missed periods (2);
Very sore throat - no other cold/flu symptoms. Got anti biotics from useless GP but no change in threat after 3days (today)
Terrible headaches throughout the year.
Do I start the plasmoquine again before speaking to the doc? Doc is back on 3 Jan so I can call him then.
This may sound very weird - but I want to get bloods done while I feel so terrible to see if this is actually lupus. Therefore I don't want to start plasmoquine before bloods but I am going on holiday and don't feel like being sick the whole time.
My Psychiayrist is a lot more concerned about
this than my physician and that doesn't make me feel very good. I just want an answer.
how can I feel so sore if my bloods don't reflect it. Am I making this up?
No idea where to go from here. Any advice or ideas would be great! Thanks so much.