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1bucfan
Regular Member

Date Joined Jul 2005
Total Posts : 183

Posted 12/29/2005 2:53 PM (GMT -7)

Do any of you have chronic sore feet? The pads of feet hurt and burn so badly at times that I feel like I can not walk at all. I have arthritis in my feet - but this burning and pain in the pads of my feet is different. If you have this - have you found anything at all to help the pain? I am desperate for help as we have a ball to to attend this weekend.

~Live Well, Love Much, Laugh Often, Be Happy...

MVP, Chronic Bladder & Kidney infections(including stones) since 1983, Pleurisy & Pneumonia - off and on several times since 1985,

Angina - off and on since 1987, Hypothyroid since 1997

SLE, Reynauds & RA since 2002

Meds: Levoxyl, Plaquenil, Celebrex, Folic Acid, Prednisone, Xanax, Remicade, Nasonex, B-6, B-12, CoQ10-200, CLA, and L-Carnitine

Go Bucs!!!

Ides
Forum Moderator

Date Joined Nov 2003
Total Posts : 5062

Posted 12/29/2005 4:51 PM (GMT -7)

Your description of the type of pain you are having in your feet is how mine felt when I began having neuropathy. I don't want to scare you but get to your doctor and ask to be evaluated for neuropathy. Burning pain is an indicator of nerve problems. Besides the burning and hurt, are you feeling any tingling in your feet? Does the pressure of the bed linens bother them and cause the pain at night? The test for peripheral neuropathy are an EMG and NCS. The most often medication prescribed for neuropathy is Neurontin. Cymbalta and Lyrica are two new drugs also being prescribed. I take Neurontin and tramadol to control my neuropathy pain. I sure hope you don't have neuropathy as it is 24/7 pain as it progresses. I have been told I will need these meds for the duration of my life to control the pain since they cannot find a cause for mine. Good luck!

CD, Ankylosing Spondylitis, connective tissue disease,

asthma, PAD, peripheral neuropathy

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CaMama
Veteran Member

Date Joined Mar 2005
Total Posts : 1794

Posted 12/29/2005 10:17 PM (GMT -7)

I have bad feet from psoriatic arthritis - I had a few years where I was actually unable to walk or stand. The pain in my feet was so bad I could barely move. However, a combination of time, therapy (deep stretching and massage), plus orthodics did help me quite a bit. I often have to wear the orthodics WITH an extra metatarsil pad insert to feel okay on my feet.

Good luck.

sheryl=jk
Veteran Member

Date Joined Oct 2004
Total Posts : 4080

Posted 12/30/2005 4:45 AM (GMT -7)

Ditto to the above posts, I just hope you got god docs, I feel so not taken seriously by many of mine. I have what you decribe in my right foot mainly, along with the arthritus. I will have gotten up the morning before and fell flat on my butt, from it. Now I am very very carefil getting out of bed or up from any time of day to avpod falling, I have grab walls often to keep from falling, I know its nerves, I am finally getting soemwhere with new Physical therapist, who said evrything I thought without me saying a word, she was rigth on nose with the neuapathy. but I needmore than her to take me seriusly. they look at me a 36 yr old women, mildy overweight and say well she look pretty heatlhy to me. Xrays show mild disc degeneration, but the MRI's wont show the pinched nerves while i am lying down int he machne, if I were standing or sitting it would show, this i thoguht, along with PT, and my reg doc, but all other pertinent docs (pain doc), go by the stupid reports, from the technician and not listen to my symptoms, falling down cuz your legs go completly numb for no apparent reason is not normal nether id burning foot pads, so I stress get a good dcotor who will listen to you, if he/she wont find anther, its taken me over a year to get even a 1/4 way there figuring out what in the heck is goign on with my body. I ahve terrible bladder issues, but have found an awesome gyno-uro, he is both!! and I do not need a referral to him yeah. He is great, he is goignt o start this thing that starte in europe, to replace the insserted inerstim, its a once a week ankle stim thing hey are goign to insert in my ankle for 30 minutes once week, nothing i wear permanently, but if nothing else maybe it will actually help my sacral nerves, which I think at least for me is the casue of at least half my issues, I truly belives its very nerve realted, i read you bio, you said bladder issue too. Mya be worth asking about, its supposedly painless, its wroth a try to me. i am strange I dotn mind those electrical current things, it actually takes my mind of the pain, and sorta feels good??
I will post to how it goes...... meanwhile I hope you get some help and relief and answers......

^{_{-Love-Sheryl-"God plz grant me the courage to change what I can & cannot change & the wisdom to know the difference- Rx Neurotin 300mgPM. Darvocet,Atarax25mg=IC,sleep. PT=back, PFD. Have scar tissue..I Have boy 11,ADHD,Bipolar.Girl 6Bipolar,OCD,HFA,Anxiety,ADHD,Tourettes. HisRx 500mg DepekeneAM,PM,Celexa10mgAM. HerRx 5mg BusparAM,PM. 250mg Depekene AM,PM.25mgImpermineAM-50PM.}}^{_{Acidophilis=bowels,yeast infections.HealingWell is the best support I have seen.}}^{_{To help HW help others you can donate at: http://s1.amazon.com/exec/varzea/paypage/PMVLQ6N72G8OW/103-0007576-9611844}}^_http^{_{://www.webmd.com/content/article/60/67113.htm}}^{_{: Informative site on disorders that frequently occur with ADHD/ADD.....}}

sheryl=jk
Veteran Member

Date Joined Oct 2004
Total Posts : 4080

Posted 12/30/2005 4:53 AM (GMT -7)

CaMama, I just reread your psot abotu the othotics, my PT know right now I cant afford the real thing so I got me a pair of 10.00 ones at CVS, not sure it helps and or even possibly makes worth, but the guy my PT wants to send me too, sh says he real good knows what hes doign and can fit properly, its a pair of orthtic shoes, so I shall save my bucks, and get when i can afford, I am told by PT not coveredon insurance, but I will double check anyway, wish there were some kind of insurance that covers co-apays or any other out of pocket stuff. we apparenly make to much for goverment help, we are to young for medicare. So whats left???

Rosie if you read thsi I just cant get my signature right it alwasy looks different when i go in to panel, and I cant get it look how i want it in my post, what am I doing wrong????

Anyways that CaMama for you advice, adn bucfan I agian hope you find your relief.....

sheryl=jk
Veteran Member

Date Joined Oct 2004
Total Posts : 4080

Posted 12/30/2005 5:01 AM (GMT -7)

Sorry I keep rereading post, saw Ides and the neurotin, yes it helps tremendously. been one it 300mgs at night for about a month now, sleeping better, legs not as jumpy, can soemtimes sleep thru urinry urges, so more to make me believe very nerve realted if this stuff is helping, now when I go back to him (pain doc), gonna see if I can take during day and see if get any reelief then too. I found that the neurotin does not knock me out unless I take my atarax with it. So if I do not take atarax during the day at all, I need to be awake, so i am thinking with the neurotin during day may bring some releif too as it seems to at night..Also will post on that when an if I try it during the day, ok i think I said evrythng now, soryy!!.........

Zots
Veteran Member

Date Joined Jun 2005
Total Posts : 1600

Posted 12/30/2005 6:02 AM (GMT -7)

my feet hurt constantly. my husband rubs them for me whenever we sit down together and when we go to bed. that helps ALOT. i cant take any meds for pain so that is all i can do but you might try it. it really does help me.

What a mighty God we serve! :)

UCTD; Hashimoto's; Fibromyalgia, Chronic Fatigue Syndrome and PSVT

Lonie
Forum Moderator

Date Joined Feb 2005
Total Posts : 5068

Posted 12/30/2005 6:56 PM (GMT -7)

Interestly enough, I have Ulcerative Colitis, but was drawn to this board because I saw the heading of Chronic Sore Feet. I am really having this problem right now, and am wondering if it is the Remicade. I also noted that you are taking Remicade too. I'm going to ask my doc about it.

Carol (from the UC board)

1bucfan
Regular Member

Date Joined Jul 2005
Total Posts : 183

Posted 12/31/2005 11:06 AM (GMT -7)

I thank you all for your posts on this. I have had this occur prior to ever taking Remicade. It gets better sometimes but when the pain comes back it seems like it comes back 10 times worse than the last time. I have tried every othotic sold in a store - I have a PRX for a set of orthotics as well - but my insurance does not cover them and I do not have the money at this time to get them. I have arthritis in my feet so that only makes the pain worse. But the pain that I am talking about in this post is not arthritic - it seems more nerve like. I intend to talk to my doctor about it when I see her next. Thank you again...all of you. I wish you all a happy and painfree 2006.

Love to you all!!!!
~Laurie

~Live Well, Love Much, Laugh Often, Be Happy...

MVP, Chronic Bladder & Kidney infections(including stones) since 1983, Pleurisy & Pneumonia - off and on several times since 1985,

Angina - off and on since 1987, Hypothyroid since 1997

SLE, Reynauds & RA since 2002

Meds: Levoxyl, Plaquenil, Celebrex, Folic Acid, Prednisone, Xanax, Remicade, Nasonex, B-6, B-12, CoQ10-200, CLA, and L-Carnitine

Go Bucs!!!

CaMama
Veteran Member

Date Joined Mar 2005
Total Posts : 1794

Posted 12/31/2005 10:30 PM (GMT -7)

The pain I had was caused by a number of things that attacked all at once and it including muscle pain. I was get the most awful you-wouldn't-even-wish-upon-your-worst-enemy cramping pain from toe to ankle for 20 minutes at a time. Afterwards, I felt like I was hit by a semi and my foot would pulsate in pain for days afterwards. The sensitivity in my feet was muscle, not joint. I couldn't even sleep with a sheet over my feet. It was too heavy. Aside from the psoriatic arthritis, they said they found mechanical problems, neuroma, raynauds syndrome, metarsil problems, etc. (I probably spelled all that wrong, forgive me. )

It was a combination of FIXING the mechanical issues as well as stretching and exercising the foot and calf muscles (deep deep stretches and massages), muscle relaxants, and about 2 years of time before I felt like I was semi-mobile (though once I finally started the muscle relaxors, the level of pain dropped tremendously.)

When I was on Remicade and it helped the joints, that also helped alleviate the problems that still exist.

Good luck. Happy New Year.

Post Edited (CaMama) : 12/31/2005 11:25:23 PM (GMT-7)

cybolupie
New Member

Date Joined Jan 2006
Total Posts : 1

Posted 1/6/2006 9:09 PM (GMT -7)

I am new to these posts, but in reading all of them tonight I have fouond that we all have a common problem! OUR FEET!!! I have
neuropothy and have gone through the numerous tests for it. I am beginning to have more and more pain and find shoes to be a real problem. I take neurotin for the pain and have for over two years. It is beginning to not help. Glad to see there are other new meds out there.
I have a pretty progressive woman doc who listens to me and knows I study this disease constantly. I feel fortunate to have her as a friend and a doctor.
I look forward to these posts and getting to know many people here.
cybolupie!

AlwaysRosie
Forum Moderator

Date Joined Jan 2005
Total Posts : 8598

Posted 1/6/2006 10:02 PM (GMT -7)

Hi Cybolupie!!! Welcome to the forum sis!! SO glad you have a good doctor!!

Bucfan, I have sore feet too, but I'm thinking it is multiple problems. The doctor says I have plantar fascitis, but it lasts WAY too long and does not result from over-use. I think it may be that plus neuropathy as my feet go numb or get prickly or stinging as well and it seems more like neuritis. But that only happens when I am in flare mode.

I found a pair of backpacking shoes (made for hiking and carrying extra weight) which have been a real God-send to me. I put them on immediately in the morning and I don't take them off until I go to bed at night. They are SO supportive.

Blessings!

In His Grip,

AlwaysRosie "We can't control the waves, but we can learn to surf!"

Psalms 139

_UCTD _{(Undifferentiated Connective Tissue Disease),}_{Hashimoto's, Plantar Fasciitis, Inflamatory Arthritis,}_{High BP,}_{GI Inflamation,}_{Diverticuloses}

_{Plaquenil, Methotrexate, Folic Acid, Synthroid, RX Motrin, Lexapro, Amitriptelyne, Salagen, Lotrel (Centrum Silver, B12, B6, Calcium+D, Glucosamine, MSM, Salmon Oil, Flaxseed Oil, Vit C)}

_{For lots of clickable links, click here: LUPUS RESOURCES}

redrose77
Veteran Member

Date Joined Sep 2005
Total Posts : 2293

Posted 1/6/2006 10:26 PM (GMT -7)

Hmm I too have foot pain. Fortunately or unfortunately depending on how you look at it I was told no nerve problem exists- my feet do get that half numb pins and needles feeling a lot as does my left leg but all tests were normal as far as nerve response goes. My bone scan on the other hand showed structural changes that may have been termed mild but in a 28yr old signal a bigger problem along with evidence of arthritis in the area where the toes meet the rest of the foot. I have yet to find anything that helps with this pain except exposure to high levels of heat for extended periods directly on the area of the pain. The worst part is that the bottoms of my feet often feel like someone has taken a 2x4 and beaten them as hard as they could until they were bruised (something I have experienced thanks to my ex several years ago in his sick and twisted way of preventing me from leaving) This is not a pleasant feeling and often brings me to tears when I try to walk. It is one of the reasons I accepted the permanent disabled placard from my rheumy. I have tried not to complain about my feet to my doctors because I already complain enough and I suspect nothing can be done to help with this pain. I know my shoes wear out weird- all around the outside but with no wear in the middle at all almost as if I walked only on tiptoes and heels. I know I walk properly as I was taught heel to toe by a doctor when I hurt my back and after concentrating so hard on walking properly for over a year it became habbit. So no clues there. Does anyone else experience this kind of pain? Also does anyone know of good shoes because I paid 80 for the ones I have now and they need to be replaced yet have lasted less than 6months.

Post Edited (redrose77) : 1/6/2006 10:30:20 PM (GMT-7)

AlwaysRosie
Forum Moderator

Date Joined Jan 2005
Total Posts : 8598

Posted 1/7/2006 10:37 AM (GMT -7)

Hi Redrose,

Hugs for you sis. You feet ARE likely hurting as a direct result of the damage inflicted by your ex. If that is the case, I can only hope that it is not a systemic thing that will spread to other areas.

The shoes that I get so much relief from are now 1 year old!! They are made by Montrail and the style is called Escapegoat (Escapegoat by Montrail). I fear they are discontinueing this shoe because I saw great sale at Siera Trading Post, but they don't have my size any more. The shoes are made for trail running or carrying a back pack. I ordered them last January and almost sent them back as I was too ill to hike. The manufacture suggested wearing them for a month to test for comfort and I started wearing them around the house and found great relief while wearing them. The toe box is roomy and the shoe hugs the instep and prevents the toes from sliding forward. My rheumy actually took one off me and checked it out and said they were great shoes.

Blessings!

In His Grip,

AlwaysRosie "We can't control the waves, but we can learn to surf!"

Psalms 139

_UCTD _{(Undifferentiated Connective Tissue Disease),}_{Hashimoto's, Plantar Fasciitis, Inflamatory Arthritis,}_{High BP,}_{GI Inflamation,}_{Diverticuloses}

_{Plaquenil, Methotrexate, Folic Acid, Synthroid, RX Motrin, Lexapro, Amitriptelyne, Salagen, Lotrel (Centrum Silver, B12, B6, Calcium+D, Glucosamine, MSM, Salmon Oil, Flaxseed Oil, Vit C)}

_{For lots of clickable links, click here: LUPUS RESOURCES}

Lynnwood
Forum Moderator

Date Joined May 2005
Total Posts : 3394

Posted 1/7/2006 11:19 AM (GMT -7)

RedRose --

So sorry your feet (and you) had to undergo such a horrid experiance. I've heard of something called "muscle memory" where pain remains long after an injury has phyically healed. I don't recall who treated such a thing -- maybe a psychiatrist? (Actually sounds to me like something a hypnotist might help with.)

Also, you've proabably already seem a foot dr, but if not they really can work miracles. I saw one when I was running and he was really aware of lots of different types of shoes and things to recommend that didn't necessarily include expensive orthodics.

Also, I know it seems really counter-productive, but if you can stand to do 20 minutes of ice alternating w/20 minutes heat you might have better results. Ice cuts down on nerve activity, which can dull or hide pain.

Again, so sorry. This sounds really horrible and I am so sorry your feet hurt you so constantly.

Lynnwood

SLE, Fall 2000 (Fatigue, Joint / Muscle Pain / Inflammation, Neuropathy, Major “Brain Fog” / Cognitive Disorder); Sjogren's, Fall 2000 (Dry Eyes & Ears); Depression; Herpes Simplex 1 (Fever Blisters); Piroxicam, Plaquenil, Imuran, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex. Clickable LUPUS RESOURCES.

Texkel
New Member

Date Joined Jan 2007
Total Posts : 5

Posted 2/3/2007 2:24 AM (GMT -7)

My question has nothing to do with lupus....but need any info as to what kind of side effects anyone has experienced taking neurontin. I've just started taking the meds.....currently taking them at night and will go to day and night if I tolerate it well. The first thing I've noticed is dizziness and feeling kinds clumsy. Is this the norm and will this diminsh somewhat the longer I take the med?? Would appreciate anyone else's experience with neurontin.

PattyLatty
Veteran Member

Date Joined Mar 2006
Total Posts : 2242

Posted 2/3/2007 7:38 AM (GMT -7)

Texkel, I take 1200 mg of neurontin at night for restless leg and I love it. It does make me feel a little out of it, so I don't take it until I'm down for the night. I haven't had dizziness with it nor any other side effects. I can't take it during the day because it makes me too tired.

My feet used to hurt ALL the time. I don't have neuropathy, or the problems you described, but they hurt so bad that sometimes I couldn't cook a meal without sitting down halfway through. On advice from my kids, I bought a pair of Birkenstocks, and they made a world of difference. My feet don't hurt anymore. I now have several pairs and don't wear anything else.

_{Lupus, RA, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.}

_{cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, multivitamin, calcium w vit D, fish oil, aspirin}

Lynnwood
Forum Moderator

Date Joined May 2005
Total Posts : 3394

Posted 2/3/2007 10:58 AM (GMT -7)

I was prescribed neurontin to help me get to sleep at night -- I've only taken it twice because both times I've had headaches afterward - once I woke up every hr w/headache, other time had a 'hangover' headache. Has anyone else experienced this side effect?

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome ,SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
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hippimom2
Veteran Member

Date Joined Jul 2005
Total Posts : 5403

Posted 2/3/2007 6:21 PM (GMT -7)

Texkel, I take neurontin too. The only problem I have is that I seem super sensitive to it, so I take a pretty low dose. I take 200mg at night and that helps me sleep as well as helps me with some of the burning pain I have from peripheral neuropathy.

Lynnwood, I haven't gotten headaches from it, but when I tried a higher dose at first it made my head feel weird and my pulse increased too.

Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985

Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; ~~Amitriptyline 10mg~~; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

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crystalm
New Member

Date Joined Jul 2007
Total Posts : 2

Posted 7/7/2007 12:41 PM (GMT -7)

My mom had these symptoms for years and it was not until she died that we realized she had undiagnosed diabetes. SHe was tested but they did not do a glucose fasting test! This is the one that is more accurate. i also have burning sore feet and will be tested again.

crystalm
New Member

Date Joined Jul 2007
Total Posts : 2

Posted 7/7/2007 12:45 PM (GMT -7)

Another thing.... the 2 MAJOR causes of foot pain is being overweight (even by 15lbs) can cause may foot related problems such as arthritis, burning, severe pain. the other is Diabetes!! Diabetese specificallly cause NEUROPATHY, or death of the nerve cells in the feet. The symptoms are painful burning and aching. Again, the major cause is being overweight!

PattyLatty
Veteran Member

Date Joined Mar 2006
Total Posts : 2242

Posted 7/7/2007 6:52 PM (GMT -7)

Crystalm,

Thanks for the information. In my case, the major cause for foot pain was wearing shoes that were either too high or didn't fit properly. My feet hurt all the time until I started wearing birkenstocks, and that was when I was real thin. Now that I'm overweight, I still wear birks and my feel don't hurt at all. I have great sympathy for people who have chronic foot pain because I know that when my feet used to hurt, nothing about me felt right.

_{Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.}

_{cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin}

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