You have been through so much. I'm sorry your not near a good lupus specialist. I know it is hard to drive so far to see a good doctor. It sounds like you have your plate full with your health problems and your son...((hugs)). I'm so glad your hubby is there to help you through this.
I hope you can find some much needed relief in the near future. Take care and know that you are here for you when you need us. Keep resting and nesting, hang in there and keep us updated. You are in my thoughts and prayers.