ALWAYS COLD?????

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ocean1
Veteran Member


Date Joined Dec 2006
Total Posts : 683
   Posted 3/12/2007 2:30 PM (GMT -7)   
And to add a new symptom to the ongoing list.  Is anyone ever always cold in your arms mostly.  It is 75 degrees where I am but the heat is on in the house and I am wrapped up in a blanket cause I feel cold.  No fever.  No illness.  Just always cold.
 
ocean1

mom46
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Date Joined Dec 2004
Total Posts : 8198
   Posted 3/12/2007 2:51 PM (GMT -7)   

Hi Ocean,

   Do you know if you are anemic? I can't remember your symptoms or illnesses off the top of my head, sorry. You should let your doc know about being cold all the time. My hands and feet will be cold sometimes when the rest of me isn't but thats from Raynaud's. 

   It's 75 degrees here today too but, feels like its 90 to me. I have a hard time in the heat where some do better. I dread summer! I hope you either talk to your doc soon or see him about this. Keep us updated and take care. You will be in my prayers.

                                                                  Babs


 
 
Co-Mod: Lupus Forum
Diagnosis: Lupus and Restless leg syndrome 1990, RA, Asthma and  Fibro 1994, Sjogren's and Raynaud's 1995, Diverticulitis 1998, Minor stroke 2004, Atherosclerosis 2004, Seizures march 2005
 JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.
 Please help Healingwell succeed in helping others.
 


okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 3/12/2007 2:56 PM (GMT -7)   
Hi Ocean1, Yes I am cold a lot of the time. I don't know if it's caused from always being tired and the body just doesn't have enough energy to fire up the furnace. I do run fevers quite often but alot of times when I'm really cold I take my temperature and it is below normal. When I went to the rheumy I mentioned it to him and he did write down what temperature was when it was low as well as above normal. So there may be something to that. I hope you keep track of your temperature and report anything to them that just doesn't seem quite right.
 
Good Luck
hugs smurf


God Bless
Carol
 
. Diagnosed Lupus Nov 06. xanax X3,triam high BP, percocet, inhalers,COPD. oxygen Plaquanil400mil, Pred. as needed. effexor.


mom46
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Date Joined Dec 2004
Total Posts : 8198
   Posted 3/12/2007 3:27 PM (GMT -7)   

 Good point Carol about the low temps. I didn't think of that as a possible reason for being cold, but it does make sense. I think alot of us have this problem too.

                                                                      Babs


 
 
Co-Mod: Lupus Forum
Diagnosis: Lupus and Restless leg syndrome 1990, RA, Asthma and  Fibro 1994, Sjogren's and Raynaud's 1995, Diverticulitis 1998, Minor stroke 2004, Atherosclerosis 2004, Seizures march 2005
 JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.
 Please help Healingwell succeed in helping others.
 


Peaceful Harpist
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Date Joined Apr 2005
Total Posts : 679
   Posted 3/12/2007 5:00 PM (GMT -7)   
I'm cold most of the time too. It can be the middle of July and I'll have flannel p.j.'s on and flannel sheets on the bed. I am miserable in the winter....my hands and feet are like ice and my lungs burn (raynaud's) and the tip of my nose. I run a temp. of 99 to 101 almost all of the time....I have since before my lupus dx in 2001. Carol that is a good reason too. Ocean, can you knit or crochet? I have knit myself "muffs" out of fluffy yarn to keep my hands in. Keeping hands and feet well moisturized helps too. I wear two pr. of socks too, one thin, the other thicker. Chenille socks help too and hot soaks in the tub. Take care, Cecelia
Rest well, nesting is healing,  peaceful harpist 
 
Lupus(both SLE and Sub-Cutaneous Lupus),degenerative disc disease, multiple conective tissue disorder,hypothyroidism,severe anemia,luekopenia,asthma,R.A.,Raynaud's, Sjorgrens's and Rosecia, vit. D deficiency.  Medications: Plaquenil 400mg. day, Tramadol 100mgs 2-3 day, Neurontin 300mgs day, effexor 225mg day, Ativan 1mg 1-3day, Preacid 30mg day, Metroprol 25mg day, Levothyroxine 50mg day, Mobic 15mg day, Hydrocodone 500mg as needed every 4 hrs., Azelex Cream 2 x day, vitimin D supplements, iron/dextran infusions every 3 monthes and sun screen.
  
                     
 


Bitzi
Regular Member


Date Joined Mar 2007
Total Posts : 89
   Posted 3/12/2007 5:15 PM (GMT -7)   
Ocean,
I am quite possibly the coldest person on earth. My normal body temp is really low and so is my blood pressure. Two of my best friends are an electric blanket and heated car seats. I also use those toasty toes and hot hands things that warm up when you open the package. I stick them in my jeans pocket and shoes. I don't know how to cure this but I spend a lot of time in fleece.
Good Luck and stay warm!


 
Bitzi

Post Edited (Bitzi) : 3/12/2007 5:20:44 PM (GMT-6)


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1740
   Posted 3/13/2007 5:31 AM (GMT -7)   

I thought I was the only one who bundled up fleece in 80 degree weather!  Yes, I am always cold--have been for  years.  I do have raynaud's, though (so I hear you about the raynaud's in the lungs thing, Cecelia--I cannot breathe in cold air; makes me cough like crazy).  I travel with a space heater between my job and home.  I use the space heater year round; otherwise, my hands get so cold I cannot make a fist and my feel wiill just become lumps of ice.  It is so annoying, and quite frankly I look quite weird wearing my parka to staff meetings at work.  If I don't, my hands will turn purple and ache like crazy.  I think a low temp may be part of it, as sometimes when I'm coldest I do have a lower than normal temp.  But I've had problems with a low-grade fever for quite a while now (that's why I'm being treated for tb), and I still have horrible problems with being cold.

Hot baths are the greatest!

El


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


Phoenix_Flight
Regular Member


Date Joined Jan 2007
Total Posts : 30
   Posted 3/13/2007 9:18 AM (GMT -7)   
i'm cold all the time too, think it have something to do with the walfin i'm on, danm meds, cause more problems than fixing them lol xxxx

crispypeanut
New Member


Date Joined Jan 2007
Total Posts : 14
   Posted 3/13/2007 2:34 PM (GMT -7)   
yeah i have the same problem it doesnt matter how hot it is outside im always wrapped up the best thing i ever bought was my electric blanket for my bed i sleep easy now you should try one

keijan2001
New Member


Date Joined Aug 2007
Total Posts : 1
   Posted 8/21/2007 12:41 PM (GMT -7)   
I was diagnosed with Raynaud's disease when I was 19 (I am now 42).  I went to the doctor because when I got cold, my lips and fingernails/toenails turned BLUE.  It was bad enough that a friend once commented on how much she liked the colour of my lipstick, only I wasn't wearing any.  I was prescribed Niaicin which I took about 2 times; hated the effect (extreme hot flash, tingling in fingers).  I've learned to live with it, and as I've 'matured' the episodes are less. 

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/22/2007 3:32 AM (GMT -7)   
Hi Ocean,

The others gave you some good advice. One other issue might be thyroid . . . lots of us have a problem with that.

Blessings!
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
 
Co-Moderator Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
Healing Well:  Lupus Resources
Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org
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cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1942
   Posted 8/22/2007 10:08 PM (GMT -7)   
Hi Ocean--
It sounds like thyroid to me, but also could be a polyendocrine deficiency problem, a syndrome that goes along with liver disease where you body attacks your whole endocrine systems. I recently read an article on NAFLD (non-alcoholic liver disease) and its not quite what you have, but it indicated not only thyroid problems--autoimmune thyroid, which is what I have, but also hypothalamus and pituitary deficiencies as well. The hypothalamus ultimately controls temperature, the thyroid affects it too, but mine is still real low on synthroid (thyroid medicine). I would ask your doc if he can test you for this. My temp during the day lately is very low, 95 on waking, 96 during the day, and that is considered hypothermia and is bad for you. It's so hard to get a doc to do anything about it. Often, when I get sick and feel I have a fever, I find out my temp is very low. I'm going to bring this info up with my liver doc and rheumatologist and primary care and, of course, endocrinologist, and see who will be willing to run the tests. NAFLD can also lead to PBC. Livers are weird and it seems the endocrine system gets messed up easily from liver problems, I don't know why. Hope this helps, on the thyroid front, make sure they test your TPOs (thyroid peroxidase) and other antibodies to your thyroid. Your TSH may be normal and T3 and T$ normal and you may have all the symptoms and damage from thyroid disease and need treatment desperately if your antibodies are high. The TSH and all are not reliable if you have other endocrine problems. The antibodies are always reliable. Take care and let me know how it goes.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


Baybreeze
Regular Member


Date Joined Oct 2005
Total Posts : 315
   Posted 9/1/2007 9:18 AM (GMT -7)   
Hi, I used to feel normal up until 2003, which is when I suddenly started feeling cold all the time. When other people said they felt comfortable, I would literally shake & shiver. I can tolerate air conditioning at about 78 degrees in long pants and a long sleeved light shirt on, but any temp less than that and I cant stand it. Even when the temp outside hits about 75 or less I would get soooooooo cold. Some times i feel so cold and my hands feel like ice...ive actually had my hands go completely numb from feeling cold. Like when you are outside in winter too long w/ no gloves, except I was inside in air conditioning in middle of summer. Even at work, others come in with long shorts and sleevless shirts and are fine all day. I sit there with layers on , a flleec jacket and im stil shivering. Now I did notice that my body temp had seemed to drop to the 97's (sometimes in the 96's) so maybe this has something to do with it. Then all of a sudden about 5 weeks ago, I noticed I wasnt shivering or feeling cold. I then started feeling warm, and it started really bothering how warm i was feeling, when no one else was complaining it was hot. This was at the same temperature as when I was shivering. I did not feel sick with cold or flu, but I was still uncomfortably hot and actually sweated for the first time since 2003. I decided to take my temp about 4 wks ago now, and it was 99.1. I went to a doc the next week due to what I was sure were disc herniations that came on, my temp then was 99.2. So i started measuring it now & then and it's been consistantly in the mid 99's and sometimes over 100. So this has been going on at least 4 weeks that I know of. I was not used to this, I was used to being cold. But now that i have this going on, I am kind of wishing I was cold again. I hate being too hot more than being too cold. At least I can bundle up while cold.
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