I'm sorry your having a rough time....((Hugs)). Please don't think you are complaining....I know before and after you are dx'd lupus can be scarey. Ask all the questions you need to and vent anytime. We are all here to help each other through this.
If you get a fever or other symptoms its not always a sign of organ involvement, but your doctor needs to stay on top of things to get you on the right mix of meds that work best for you. Fevers are very common in lupus as well as other symptoms.
Like Carol said, you can get that book from this site and a number of books on lupus as well. Read and research all you can on this. When I was dx'd, almost 17 years ago now, I had no idea what lupus was, but knew that my cousin died from it so at that time I thought just because she died I would too, but the more I read and learned, I found out it can be mostly controlled with meds. Of course there are some people that are fatally affected, but that is RARE these days. Most of them are severely effected and aren't dx'd and left untreated until its too late. I have had lupus for 30 years now and still going strong and I was left untreated and dx'd for 13 years!!
Hang in there and keep on your doctors about your symptoms as they pop up. It is very hard working a full-time job and feeling bad...((Hugs)). Can they reduce your hours a little more to help until your meds start working better?
Please keep us updated and ask all the questions you want. We are here for you! Take care and rest as much as you can. You are in my thoughts and prayers.
Post Edited (mom46) : 3/19/2007 6:37:29 AM (GMT-6)
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