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ravenhairedvixen
Regular Member


Date Joined Jun 2006
Total Posts : 108
   Posted 3/20/2007 5:50 PM (GMT -7)   
Hi Everyone,
 
  I've written here a couple times before in search of some information. Anyway, today I went to see one of my dr.'s, and found out that I am spilling 30+ of protein in my urine. This wasn't even a 24 hour collection. I told my Nephrologists office {I also have Loin Pain Hematuria Syndrome, and have been spilling protein for over twenty years}about this, and they can't get me in until March 10th. I guess my question is what do your doctor's do when you have a lot of proteinuria? Thanks for any info.
 
Take Care,
Heidi

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 3/20/2007 6:44 PM (GMT -7)   
Hi Heidi ((((hugs))))) I don't have much experience with protein. I had a 24 hr urine test last year and mine was almost 500, had another one a month ago and it was minimal. My rheumy keeps an eye and it and does a U/A each visit. Are you on any specific meds or diet for your kidney's? Maybe they will have a cancellation and you can get in a little sooner! Keep us updated on how you are doing!
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac 2003, Raynaud's 2004, Costochondritis 2004, Lupus 2005 and Sjogrens 2006
Meds:Imuran, Plaquenil, Flexeril, Sulindac, Levoxyl, Folic Acid and magic mouthwash (as needed)


ravenhairedvixen
Regular Member


Date Joined Jun 2006
Total Posts : 108
   Posted 3/20/2007 6:55 PM (GMT -7)   
Hi Stacie!
 
  Thanks for writing back to my post! That was pretty fast service! :) I'm not on any "kidney" drugs per say, but I am on Plaquenil for the lupus, just got off high doses of prednisone recently {now down to two mg.!}. I had to get off of the prednisone, because it was causing Cushing's disease really bad. Which is really strange because I was originally diagnosed with Addison's disease..which is too little cortisol in the body. Things work out strangely sometimes I guess! I used to be on a low protein diet, but since I have Gastroparesis now, I just eat what I can. I hope your having a good night.
 
Heidi

janjan
Regular Member


Date Joined Mar 2007
Total Posts : 25
   Posted 3/20/2007 8:25 PM (GMT -7)   
heidi
with my experiance as a nurse andpatient they will also check your bun and creatnine. a 24 hour urine to get exactlly how much protein total your spilling aroung 1500 is cause fo a concern ,they will biopsy kidneys and ultrsound them ,keep up on that it is very important to follow through. : smurf
lots of love ,lords blessing , jan
janet


ravenhairedvixen
Regular Member


Date Joined Jun 2006
Total Posts : 108
   Posted 3/20/2007 8:42 PM (GMT -7)   

Thanks Jan,

 

    I see my nephrologist in a couple of weeks, and am going to call tomorrow to see if he will go ahead and order my regular 24 hour urine. Its been awhile since he has done this. I am happy with most of my doctors, but he isn't as proactive as he should be. Its been a big problem. Thanks for responding.

  Take Care,

   Heidi


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 3/21/2007 3:19 PM (GMT -7)   
I definitely think your kidney's need to be monitored very closely, as you know damage can be very silent! I agree with the 24 hr test and hope they allow you to do it before your next appt. If you don't think he is monitoring you close enough it may be time for another, maybe your rheumy can refer someone to you! Take care and let us know about the test! ((((hugs))))
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac 2003, Raynaud's 2004, Costochondritis 2004, Lupus 2005 and Sjogrens 2006
Meds:Imuran, Plaquenil, Flexeril, Sulindac, Levoxyl, Folic Acid and magic mouthwash (as needed)


ravenhairedvixen
Regular Member


Date Joined Jun 2006
Total Posts : 108
   Posted 3/21/2007 3:47 PM (GMT -7)   

Thanks Stacie.

I'm definately going to call the nephrologist's office tomorrow to obtain a script for a 24 hour urine. As far as finding a new dr., it seems like finding a good nephrologist is very hard to do in Columbus. At least for the problems I have. Aside from regular kidney dysfunction from Lupus, I have a rare problem called Loin Pain Hematuria Syndrome. Due to this problem, I'm on daily narcotics. Anyway, thanks for everything.

Take Care,

Heidi


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 3/21/2007 8:47 PM (GMT -7)   
I had proteinuria and it is a potentially serious condition if left untreated.  Most patients are treated with an ace inhibitor like lisinopril.  My feet, ankles and legs had severe edema and it eventually went away with a relatively low dose of lisinopril.
 
It is important to see a nephrologist and not let your kidneys be damaged permanently.
 
A kidney biopsy will determine if there is any kidney damage and how much.  Fortunately, I had little and my kidneys have returned to normal function.  I will probably take linsinopril for the rest of my life.
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's syndrome.
 
Meds: prednisone (9mg & tapering), 150mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


ravenhairedvixen
Regular Member


Date Joined Jun 2006
Total Posts : 108
   Posted 3/21/2007 11:41 PM (GMT -7)   

Thanks Bill,

 

  I wish I could go on an Ace Inhibitor, but I have a heart condition that requires a beta blocker. So, I have to stay on that, and will be on that for the rest of my life. I had a kidney biopsy in 2001 that showed damage, amoung other things. I wonder if its time for another one. Hmm.

 

Heidi

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