Really bad arthritic type pain, any relief ideas??

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lion00
Regular Member


Date Joined Aug 2006
Total Posts : 334
   Posted 3/24/2007 5:12 PM (GMT -7)   
Hi,
Have had a really good few weeks but the last few days I've been getting severe pain in my fingers and hands. It's sharp and makes my hands sort of seize up, like curled fingers. Never had this type of pain before and wondered if it could be from the lupus? If it might be, whats the best thing to help it. I've took strong painkillers (tramadol) and this hasn't helped. Today I've tried brufen. I've started to get a couple of lesions on my fingers so I may be starting to get a flare, but don't normally get this pain. Thanks
Chillblain Pattern LE, tachycardia, unknown bowel problems, migraines.
One gorgeous daughter age 5 after many many IVF attempts


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 3/24/2007 5:45 PM (GMT -7)   

Lion,

  ((Hugs)) You should call your doctor since you aren't getting any relief from the meds your taking. It sounds like with the lesions that the lupus is flaring, but your doctor needs to know about this so he/she can give you something for relief. My hands have curled like that before and it is painful. When this happens to me I have to take some pred or increase the amount I'm taking. I hope you get some relief soon. Please keep us updated and take care. You are in my thoughts and prayers.

                                                                     Babs


 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


lion00
Regular Member


Date Joined Aug 2006
Total Posts : 334
   Posted 3/24/2007 6:05 PM (GMT -7)   
Thanks Babs,
I'm not taking the pred at the minute, i try really hard not to take it if at all possible. I do have pred here though, do you think i should start it now anyway? And if I do how long does it normally start to work. Thanks x x
Chillblain Pattern LE, tachycardia, unknown bowel problems, migraines.
One gorgeous daughter age 5 after many many IVF attempts


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 3/24/2007 7:08 PM (GMT -7)   

Lion,

  You need to ask your doctor about the pred and what dose to start yourself on. Does he have an after hours number to call? If he tells you to take it, it should start helping in a few hours. Let us know what the doc says and how you do. Take care.

                                                       ((Hugs)) Babs


 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


ericsmom
Veteran Member


Date Joined Jan 2007
Total Posts : 1042
   Posted 3/25/2007 5:36 AM (GMT -7)   
Hi Lion
 
Your hands/fingers seizing up, you mean like they lock in an odd and painful position?  If so, it is commonly called "trigger", but I get that from my RA, not sure if Lupus does that, but then Lupus can mask RA so it;s hard to tell.
 
Babs is right, call your doc.  For me, ibprofen, plus cortisone shots helps immensely, although I am not supposed to take ibprofen tongue
 
Hope this helps
Diane
 
PS, I would put my hands in a warm water soak, then massage  the tendon till the trigger would leave.
A/Fib, diagnosed Aug, 1997, R/A diagnosed in Sept. 1998, Pericarditis and Lupus in Dec, 2003, Diabetes, diagnosed march, 2004
 
sotalol, digoxin, coumidin, plaquenil, prednisone, metformin, diamacron, wellbutrin,fenofibrate


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 3/25/2007 6:57 AM (GMT -7)   
Hi Lion, I'm sorry you're in so much pain. Do you mean they cramp up and look like they are deformed? If so that is exsusiating pain. Prednisone does seem to help that. Bab's is right call your doctor. You should not have to live like this. I know pred. stinks but not as bad as the pain.

I hope you feel better soon
hugs
carol
God Bless
Carol
 
. Diagnosed Lupus Nov 06. xanax X3,triam high BP, percocet, inhalers,COPD. oxygen Plaquanil400mil, Pred. as needed. effexor.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 3/25/2007 9:17 AM (GMT -7)   
Lion, I'm really sorry you are having such bad pain after having some good days. I agree with everyone about calling your doctor to see what he thinks about trying prednisone or something else for the pain. IT's probably important for him to know what is going on with you. I know when I started prednisone I got relief that same day and whenever I increase during a flare, it doesn't take too long to feel the effects. I also take tramadol and it works okay for my normal pain level, but not for severe pain.

I really hope you get some relif soon - the pain sounds really bad. Keep us updated and take care.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Co-Moderator: Lupus and CFS Forums



lion00
Regular Member


Date Joined Aug 2006
Total Posts : 334
   Posted 3/25/2007 11:54 AM (GMT -7)   
Hi, Thanks everyone. It is like my fingers are cramped, sort of! They lock up, and my second toe has started to do it also. I have no emergency number to ring for my rheumy though. I have started to take the pred today at the dose I was prescribed last time which is 35mg daily. I'll ring the rheumy tomorrow when his clinic is open. I will try the warm soaks tonight. This is a real bummer because otherwise I'm doing great. Anyway, I'll let you know what he says tomorrow.
Ericsmom: What is the"trigger"? Is it the start of a flare, or is this the name of what happens to the fingers? and can this happen with the toes. My toe bends upwards and locks. This pain is unreal!! Maybe it's not the lupus but who knows. My lesions are getting worse so if nothing else the pred will help those.
Chillblain Pattern LE, tachycardia, unknown bowel problems, migraines.
One gorgeous daughter age 5 after many many IVF attempts


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 3/25/2007 1:07 PM (GMT -7)   
Hi Lion ((((hugs))))) I hope the Pred works quickly for you! I have a lot of joint pain in my fingers / hands too, I take an NSAIDS everyday and that seems to help some. You are in my thoughts and prayers. Let us know what the doctor says.
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac 2003, Raynaud's 2004, Costochondritis 2004, Lupus 2005 and Sjogrens 2006
Meds:Imuran, Plaquenil, Flexeril, Sulindac, Levoxyl, Folic Acid and magic mouthwash (as needed)


ericsmom
Veteran Member


Date Joined Jan 2007
Total Posts : 1042
   Posted 3/25/2007 3:13 PM (GMT -7)   
Hi Lion
 
Trigger is when the fingers or hand almost like spasm, my fingers will suddenly snap so they are flush with the palm of my hand, and oh wow, the pain is indescribable. I found out on my own that massage the finger that is affect, and sort of force it back to position.  And your hand, does it go into an unnatural position too?  If so, maybe your rheumy will give you the cortisone shot in the affected areas.  the first shots lasted almost 5 yrs!! :-)   When I get them, my hands and fingers dont trigger.
Hope I explained it ok.  It's hard to describe.  I think it is part of a flare that brings it on. When I do get it, it's when I am hurting everywhere in my body. So far, it has never affected any of my toes, thank God, I can well imagine that wud be something sad  
 
Keeping you in my thoughts and prayers, and eager to see what your doc has to say.
 
Diane
 


A/Fib, diagnosed Aug, 1997, R/A diagnosed in Sept. 1998, Pericarditis and Lupus in Dec, 2003, Diabetes, diagnosed march, 2004
 
sotalol, digoxin, coumidin, plaquenil, prednisone, metformin, diamacron, wellbutrin,fenofibrate


Lyspike
New Member


Date Joined Mar 2006
Total Posts : 2
   Posted 3/29/2007 1:36 PM (GMT -7)   
Hi Lion, Diag. Lupus 11/05 and Raynaud's...Took prednisone 20mg for severe joint pain and weakness whole body..upon tapering Prednisone had spazms in muscles and charley-horse like like cramps in hands, fingers and from hips down to leg calves then added Plaquenil 400mg a day and then added Cellcept 500mg a day which was the best help so far...I taper Prednisone in small amts, now at 8mg a day. . The Raynaud's was causing my fingers to abcess-ulcer or get leisions which ever word you use??? This winter used Viagra 25 mg. 3x a day to help w/ this poor circulatrion and trying to taper as summer nears...my finger abcesses have healed and I need to clean-cut dead tissue from around my finger nails each day and try all sort of stuff to keep extremities warm. I also do Felodipine 5mg.+HCTZ 12 1/2mg a day for BP and have been taking Selenium 600mcg a day for Thyroid for the last 3 years which keeps my TSH normal so far instead of taking the Thyroid Pills. I think this what goes on w/ my body... and also do 2 Aleve for degenerative hip pain to keep me going at age 70...plus vitamins...and getting stronger 'til whatever! Always check w/ your Doc... before doing any med. changes. Good luck...Lyspike

mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 3/29/2007 8:57 PM (GMT -7)   

Hi Lyspike,

  Welcome to the forum! It sounds like you have been through alot but, looks like things maybe turning in your favor a bit with the warmer weather coming in. I hope you will be able to continue to taper your pred and possibly come off it in the near future.

  I hope you will keep posting and get to know everyone. I'm sure you have been reading alot of posts and can see that we are a very caring, friendly group. Please keep us updated and take care.

                                                                  Babs


 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 3/30/2007 1:38 PM (GMT -7)   

Hi Lion, it's been a few days I was just wondering how you were doing with the arthritis pain? are you doing ok?

 

please let us know when you can.

hugs

carol


God Bless
Carol
 
. Possible Lupus Nov 06. xanax X3,triam high BP, percocet, inhalers,COPD. oxygen Plaquanil400mil, . effexor. spiriva, xopenex.
 
God Bless our Troops!
 
 

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