does anyone else have avascular necrosis from the lupus? i have it in both knees, they have used arthroscopy to clean out the debris and stuff (with my right knee they took out all the cartilage and made the bone bleed to make more, at least that's what i was told) and that was in the '99 and '02 and now the docs all say the same thing, that i have to wait as long as physically possible before they replace my knees because that is the only thing left that they can do, i was almost gonna do the arthroscopy again for my left knee but the debris in it moved and it doesn't bother me as much, but the pain from the avn is awful and unfortunately these are one of those things that even painkillers can't help, oh lucky me, but i was just wondering cuz i've never really "heard" anyone else talk about it before and i was just curious cuz if anyone who does have it, has any suggestions on what to do about the pain i am all ears.
Hugs and prayers,
diagnosed in May '95 with lupus, nephritis, hypertension,hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D