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Candii
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 3/27/2007 7:54 PM (GMT -7)   
We are going to the beach for a few days and I am worried about the sun giving me problems. I haven't been to the beach or outside much since I was dx with SLE. I wear sunscreen UVA/UVB 45. Is that enough? I'm concerned because I wear that sunscreen for the florescent lights at work and my face still burns. I want to have a good time but I don't want to flare. I need any advice that you can give.
 
Thankyou
 
Kitty38
Polycystic Ovarian Syndrome 1992, Restless leg syndrome 1998, SVT tachycardia/Arrythmia '06, SLE '07, Raynauds '07....Plaquenil, Hydrochlorothyazide, Cardizem, NorQD, Naproxen.


phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 3/27/2007 8:11 PM (GMT -7)   
Make sure you cover-up and wear your sun screen. I hope it will not be to cold for you. The weather here in the virgina beach area is supposed to be 50-60 and cloudy the next few days.

Enjoy your trip...
No matter how dark, no matter how great the loss, there is always the promise of life in full force. - Abigail Trafford
 
Enjoy what you can today and leave the rest for another day.
 
Frank


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 3/27/2007 8:11 PM (GMT -7)   

Kitty,

  Please be very careful at the beach. This time of year the sun rays are so bad and the reflective light on the water and sand can cause lupus to flare bad.

  I wish we had some of the old posts about this. Wear a hat, the strongest sunblock you can find, sunglasses, breathable clothes and stay under an umbrella if you on the beach during the day.

  I know when you go to the beach you don't want to be all covered up under an umbrella, but we have to be very careful. I haven't been to the beach in a long time, but when I did go, I would do indoor things during the hotest part of the day and go to the water late in the evening when the sun is low.

  I hope you will be able to have alot of fun, just make sure you take the proper precautions in the sun. Take care and let us know how your trip goes. You will be in my thoughts and prayers.

                                                          ((Hugs)) Babs


 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


CityGirl
Regular Member


Date Joined Dec 2006
Total Posts : 239
   Posted 3/27/2007 8:31 PM (GMT -7)   
I have been doing quite a bit of research on sun protection since being diagnosed. I was always very faithful to sunscreen but once I started doing some investigating I realized I didnt know much about it at all. The best way to protect yourself is to use a product that has both a physical and chemical block.

The chemical block is, like the description says, is an actual chemical agent that denatures the light rays making it impossible for skin damage/increased pigmentation to occur. The physical block actually creates a physical shield around your skin so light *cant* get in. When you choose a product that has both you really have full protection. In additon to the physical/chemical block the label should also say "broad spectrum" - that means it physically and chemically blocks out both the UVA and UVB rays. If it doesnt specifically say "broad spectrum" it isnt so be sure to look for one that says "broad spectrum". For the beach you should have a minimum of spf 30.

I also ran across this product in my research and I think I am going to give it a try. You simply add some to your regular loads of laundry and it creates a sun shield on your clothing that will block out 96% of the suns harmful rays. It wont alter the color/texture of the fabric and is supposed to last 20 washes.

http://www.sunguardsunprotection.com/

I also ran across this site that sells UV Protection beach gear (umbrellas ans such) and clothing. I purchased the beach umbrella already. I had it shipped right to our vacation destination for next week as we will be spending two days on a houseboat and another day on the beach. I am not taking any chances!

http://www.coolibar.com/shade-umbrellas.html?source=adwordskt&words=sunumbrella&version=1

Here is a good article I found about physical/chemical sunblocks:
http://www.dermadoctor.com/pages/newsletter97.asp

Also, if you happen to have The Lupus Book by Dr. Wallace there is an entire section about which sunscreens he suggests to his patients. If you dont have the book and want me to type the list let me know.

mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 3/27/2007 8:51 PM (GMT -7)   

Hi City,

  It's good you are researching about sun protection. In some very old posts we had alot of info on the stuff to wash your clothes and the clothes with sun protection. I'm glad you found some good links on this.

  It sounds like you are getting well prepared for your trip. I hope you have a great time! Take care and you are in my thoughts and prayers.

                                                           ((Hugs)) Babs


 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 3/28/2007 6:26 AM (GMT -7)   

City,

  Tks for sharing those links with us and starting this topic. This is very important and helpful to us here, especially this time of the year. Sorry, I meant to say that last night, but was so tired I wasn't thinking straight.

                                                             ((Hugs)) Babs


 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


montecarlo
Regular Member


Date Joined Feb 2007
Total Posts : 235
   Posted 3/28/2007 4:59 PM (GMT -7)   
picked up ''vichy'' sunscreen/block? yesterday,was wondering about the burning & flourescent lights as well,but was wondering how it will affect the discoid-will it make it flare?make up isn't my friend as with creams and soaps,any advice? and should I get myself in the habit of every morning use to be on the safe side?

Candii
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 3/28/2007 5:12 PM (GMT -7)   
cool   Thankyou very much for the much needed advice. Tonight I am reading the articles. I have sunscreen for my face Neutragena broad spectrum 60 UVA/UVB and for the body Neutragena lotion broad spectrum 45 UVA/UVB. I have 4 bottles. They should sell it by the gallon. LOL tongue
I have a wide brim hat, sunglasses and light clothing. The only time I will be out in a suit is when I am in the water. I am only going to be out in the water for 30 minutes and not during peak hours. I don't want to flare!! nono nono nono I have been resting up for this vacation. To anyone else that would sound strange. I have an extra 10 days worth of Amoxicillin that I am taking with me just in case. Oh as far as a tan.....I bought the self tanning lotion. Don't want to scare the fish off with my ghostly white legs. Please tell me self tanning lotion is ok.
 
Kitty38
Polycystic Ovarian Syndrome 1992, Restless leg syndrome 1998, SVT tachycardia/Arrythmia '06, SLE '07, Raynauds '07....Plaquenil, Hydrochlorothyazide, Cardizem, NorQD, Naproxen.


jan m
New Member


Date Joined Mar 2007
Total Posts : 6
   Posted 3/28/2007 5:42 PM (GMT -7)   
city
try and stay in the shade between 10-3 yhe rays are to strong for us folks with lupus i have had some real bad reactions from the sun when we talk are boat to the lake i go out for earlly swim time and again after 3 oclok be careful
janet
God Bless,
Janet McDonald

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