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montecarlo
Regular Member


Date Joined Feb 2007
Total Posts : 235
   Posted 3/30/2007 3:42 PM (GMT -7)   
I have ulcers on the roof of my mouth,both sides on the bottom right of gum,upper gum-both sides,and top of left on one side. Eating is painful,even soft food like rice,any advice? The rheumys side kick doesn't think it hurts,they are usually painless he says...where do I go from here? uurrg!
is there something I can do for it like salt water or something? thanks for any input. crystal confused

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 3/30/2007 4:58 PM (GMT -7)   
(((((( Crystal )))))) Yeah, I've also heard that the "lupus" mouth sores don't hurt, well let me tell you..... they DO and very BAD I might add!!!! Since you have them all over your mouth I think you should ask your rheumy about "magic mouthwash" or at least that's what it's called in my area. I do know it is 3 liquid ingredients that the pharmacist mixes when you have it filled. It works well, numbs very well! There is also an Rx "paste" you can get and Orjel has some new "disk" pads that look like they would work well, I have some but haven't had to use them yet (knock on wood). My rheumy also put me on 1-5mg of Folic acid, I usually take 3-5 a day, I still get them but not as many at a time and I can tell when I slack off taking them.

When I have a lot in my mouth I usually eat mashed potato's without salt and ice cream. I hope you find relief soon, I know what you are going through ((( hugs ))))
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac 2003, Raynaud's 2004, Costochondritis 2004, Lupus 2005 and Sjogrens 2006
Meds:Imuran, Plaquenil, Flexeril, Sulindac, Levoxyl, Folic Acid and magic mouthwash (as needed)


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 3/30/2007 5:33 PM (GMT -7)   
Like stacie said, you don't even need a rheumie my regular dr gave me the stuff stacies was talking about. I can't remember the name. But you use it to numb your mouth before you eat. You swish it around and swollw it. It has a antibiotic in it also. I'm so sorry you are in so much pain sweetie. Maybe some popcycles might help before you eat? I don't really have any suggestions. Just wanted to give you a (((hugs))).

love carol
God Bless
Carol
 
. Possible Lupus Nov 06. xanax X3,triam high BP, percocet, inhalers,COPD. oxygen Plaquanil400mil, . effexor. spiriva, xopenex.
 
God Bless our Troops!
 
 


montecarlo
Regular Member


Date Joined Feb 2007
Total Posts : 235
   Posted 3/30/2007 6:14 PM (GMT -7)   
thanks you two,My husband looked in my mouth with a tiny flashlight and said they look pretty gross. The pharmasist said there is something called ''fletcher's sore mouth medicine'',but it hurts really bad for about 10 seconds-pain is what I am trying to avoid! LOL!
so I'm not crazy afterall!yeehaa! I will look into that folic acid thing,I took it years ago,but I think any help is good help,thank you for your help once again ladies! God bless! cystal

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 3/30/2007 6:57 PM (GMT -7)   
Hi,

Like Stacie suggested magic mary's mouthwash is great when you have sores this bad. Your family practice doctor can order this. The pharmacy will make it and it's to be kept in the frig. I hope that you get some relief soon.

Take care,

Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 3/30/2007 7:19 PM (GMT -7)   

Hi Crystal,

  I haven't had any mouth sores in awhile. I also take folic acid. I hope you get some relief soon. I agree they can hurt! Take care.

                                                        ((Hugs)) Babs


 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


montecarlo
Regular Member


Date Joined Feb 2007
Total Posts : 235
   Posted 3/30/2007 8:31 PM (GMT -7)   
thanks ladies I will try the flic acid and will call the dr tomorrow(if I can find one) for the magic! have a good night! crystal

dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 3/30/2007 8:33 PM (GMT -7)   
I use Gly-Oxide and it works really well for me. I get both the ones and hurt and the ones that don't. The ones between my gums and lips usually hurt and the ones on my hard palate hurt after I eat something spicy or salty.
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


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