?meds/allergies/other autoimmune problems

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Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 4/1/2007 12:15 PM (GMT -7)   
Still trying to get to the bottom of my difficulties. Awful weekend of extreme weakness and nausea off the richter scale. I'm wondering if there are any OTHER autoimmune diseases that could be searched for, especially related to food and guts apart from crohns, which I already have! Celiac?
I also wonder would the meds for crohns be making me feel this crap. I have been on alot for 15yrs and looking at the internet it aint a pretty one! - Mesalazine.
Because of a 'furry mouth' and severe reaction to sugary things and also milk and white bread does that, I am wondering if I should look into food allergies. My gp says it is very difficult to test for food allergies.
I asked to be referred back to the rheumy here in Ireland and she said 'one thing at a time' that is 'lets get the neurology problems sorted first.' But I disagree, I have been this crap for over two years now and getting worse and am 54 and NEED to find the source of my extreme ill helath.
Looked in the mirror this morning and I looked bloody terrible. No colour and very ill. It was remarked yesterday that I did not look well and another person last week said I had lost weight.
Ann is going up the wall again.....!
Chilies and all!!!
xxAnn

ericsmom
Veteran Member


Date Joined Jan 2007
Total Posts : 1042
   Posted 4/1/2007 2:50 PM (GMT -7)   
Hiya Ann,
 
hmmm not sure if I can be of help, but what about stomache or esophagal ulcers?  I have stomache ulcers and they can make you pretty sick when they act up. The usual type is peptic, and duodenal, both are nasty, but the peptic one was the hardest for me. So many foods set it off, anything with caffeine, dairy, too spicy, too greasy, to carbonated, too much fibre, but the worst was white bread, milk, and cheese!! skull
Maybe it could be the crohn's meds too, you can google it, adding side effects, might give you some insight there
 
Good luck hon, sure hope you feel better very soon...just sip on some peppermint tea, it might help you alot.
 
((())))
 
Diane
A/Fib, diagnosed Aug, 1997, R/A diagnosed in Sept. 1998, Pericarditis and Lupus in Dec, 2003, Diabetes, diagnosed march, 2004
 
sotalol, digoxin, coumidin, plaquenil, prednisone, metformin, diamacron, wellbutrin,fenofibrate


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 4/1/2007 3:57 PM (GMT -7)   
Hi Ann,
 
Actually, your doctor shouldn't have told you it was really difficult to test for allergies.  It's not hard at all.  I got a very extensive allergy test done through a naturopathic doctor.  It was a simple blood test and I got the results back 2 weeks later.  A print out of everything ranging from mildly sensitive - to - very sensitive or allergic.  I have about 12 allergies I never knew I had!  As soon as I eliminated them from my diet, I lost 20 pounds and I felt fantastic!!  This was about 3 years ago now.  I also take a high potency acidophilus capsul twice daily.  It keeps any yeast overgrowth at bay and really helps with digestion and bowel function.  Acidophilus is the good stomach bacteria. 
 
I'd recommend finding a naturopathic doctor and see what they can offer you!
 
((((hugs))))
Ginny
"Thank you God for the storms that blow me right into your arms!"

Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia, food allergies
Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, micronor, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Acidophilus


Victoria72
Regular Member


Date Joined Oct 2006
Total Posts : 221
   Posted 4/1/2007 5:16 PM (GMT -7)   

Hi Anne.  I am so sorry you are feeling so badly.  My weekend consisted of extreme weakness and nausea... and I have Crohns, too.  There are so many things that I have to avoid, like raw vegetables, coffee, carbonated beverages (they are the worst!), spicy foods, too much meat, too many carbs... the list goes on.  Its a very delicate balance I have going on in there and the least thing will upset it all.  I had to go on strong antibiotics for a strep infection this week, and my Crohns has reared its ugly head.  When our digestive systems are inflamed on the inside, we are bound to be weak, nauseated, and look and feel like yuck. There are times that I cant even lay on my back because my colon is so inflamed and uncomfortable.  I cannot take any of the Crohns meds, because the last two we tried gave me pericarditis, so managing it through diet is all I have. sad

I know we say it all the time, but try to rest.  I have spent the entire day today in the bed, watching chic-flicks with my girls.  I hope that by tomorrow I can get up and got to work... I am just thankful that the kids are all on spring break and I dont have to deal with getting them all up and out the door. 

By the way, one of the movies we rented was The Holiday... with Kate Winslet.  If you havent seen it, please try to.... it was just fantastic. 

Feel better {{Gentle Hugs}}


 
Victoria
 
Mother of four, full time Systems Analyst
 
Sjogrens, Crohns, suspected Lupus, Pancreatitis Dec. 2005
 
Meds:  Medrol injections; Darvocet, starting Plaquenil in Feb.


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 4/1/2007 7:56 PM (GMT -7)   
Hi Ann,

I don't have Crohn's but what you are describing sounds like a yeast overgrowth and sugar would contribute to that. Also, there is a Crohn's forum here at Healing Well. Have you posted on there? They might have some good ideas for you.

Your neurologist needs to understand that if you can't control your Crohn's, you won't be able to go into his office for him to take care of your brain. The big dummy--maybe his brain needs a tune up???

Hope you figure something out and feel better soon!

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 4/2/2007 1:26 AM (GMT -7)   
thanks for all the advice. It really helped cos it made me feel less alone. I will try and get food allergy testing and I have googled the med and there are some side affects that apply but I do think it is the diet and yeast overgrowth. Will start to take the high potency acidopolus capsule as suggested. I have been taking that in powder form very rarely I have to admit.
I will cut out all the foods that I know set me off. I really do appreciate all the suggestions you have made.
xx to all.
Ann
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