Shortness of breath

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dbab
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   Posted 4/2/2007 12:59 PM (GMT -6)   
I left a message with my rheumy and waiting for a call back.  Most of you know that I have been extremely fatigued since last week and also having joint pains in my hand.  This weekend I didn't do much and didn't come online much because I just wanted to rest.  I just started experiencing shortness of breath now and most of my tiredness this weekend came from my shortness of breath.  I don't have any chest pain with it although both of my arms are feeling extremely weak.  I'm really worried that its something to do with my heart or lungs but I'm not sure since there isn't any chest pain.  Do these symptoms just sound like the regular things that go along with your lupus or does sound like something more serious or maybe I'm just being overly worried?  confused   
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


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Butterflake
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Date Joined Jun 2006
Total Posts : 1400
   Posted 4/2/2007 1:27 PM (GMT -6)   
Hi Des.  There are a few of us with asthma.  I have it spring, summer, fall and just started my advair inhaler for the season.  It's certainly something that can be treated and you should tell your doc about it.  I hope you get some help soon.  It's rough being SOB (short of breath!)

Dx: SLE with CNS complications, major depressive disorder, Sjogrens, fibromyalgia, asthma, gerd, sleep apnea, hypertension, IBS
Tx: plaquenil, methotrexate, prozac, lamectil, flexeril, celebrex, lisinopril, lipitor, nexeum, seroquel, advair, actos, arthritis tylenol 
supplements: multi vitamin, B complex, C, flaxseed oil
             Better living through chemistry :D    Donna
 


ericsmom
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Date Joined Jan 2007
Total Posts : 1042
   Posted 4/2/2007 1:35 PM (GMT -6)   
Hi Des,
 
I dont know why you are having shortness of breath, I dont see
why you are having this, and I certainly hope when you left the message with your rhuemy, that you told them this!!  I get it, but it's because of pericarditis in my heart, caused from the RA or the Lupus, so if you havent heard back from your doc by now, I would be on that phone again, dont mess with the unknown, you dont need more problems on top of what you already have.
 
Please keep us updated, and I will be praying for you hon. Please dont wait too long, not trying to scare you, but I think everyone here would agree, when it comes to our hearts, dont second guess, get help.
 
God Bless,
Diane   
A/Fib, diagnosed Aug, 1997, R/A diagnosed in Sept. 1998, Pericarditis and Lupus in Dec, 2003, Diabetes, diagnosed march, 2004
 
sotalol, digoxin, coumidin, plaquenil, prednisone, metformin, diamacron, wellbutrin,fenofibrate


dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 4/2/2007 2:46 PM (GMT -6)   
Thank you butterflake and Diane,

My rheumy's nurse called back and said the doctor doesn't think that its anything related to my UCTD or my medication that he has given me and told me that I should contact my GP. I have left a message with my GP and will let you know what he says.
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


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okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 4/2/2007 7:29 PM (GMT -6)   
Hi Des ((hugs)). I know how frightening it is to be short of breath. Since I havn't officially had a rheumy tell me what my DX is I can't say that my lungs are destroyed by lupus or something. You should insist on an xray though. It could be by anything from stress to pnemonia. If you have swelling it could be edema. You may have some fluid in your lungs. Stay away from any cleaning chemicals. that will only make it worse. My lungs started going bad when there was a chlorine spill at work. that was 9 years ago. I can't even have bleach in my house. Please make sure you get a chest xray. and let us know how it goes.

love ya
carol
God Bless
Carol
 
. Possible Lupus Nov 06. xanax X3,triam high BP, percocet, inhalers,COPD. oxygen Plaquanil400mil, . effexor. spiriva, xopenex.
 
God Bless our Troops!
 
 


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 4/2/2007 8:01 PM (GMT -6)   
Des, I'm surprised your rheumy didn't seem more interested in your weakness and shortness of breath. In my humble non medical opinion, they could both be related to UCTD and it sounds like it would be a good idea to get some labs and some x-rays done. I hope your GP can see you soon and help you figure out what is causing this.

Hang in there and take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

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dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 4/2/2007 8:08 PM (GMT -6)   
Thanks everyone. Yeah, I thought it was a little "put offish" by my rheumy but I guess I will give him the benefit of the doubt. He is probably so booked (he is one of the most sought after rheumys here) but I did talk to my GP (he called me back personally :) and told me that he could see me tomorrow morning and if I have any arm pain in addition to my weakness or chest pain to go ahead and get to the ER. I'm hoping that I can get through an uneventful night and just make my appointment tomorrow. I will be sure to request a chest xray and I'm not sure which labs for this to ask for. Even if its nothing serious, something needs to be done because this labored breathing is very distressful. I'll let you know how it goes. Thanks again!!
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


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mom46
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Date Joined Dec 2004
Total Posts : 8198
   Posted 4/2/2007 10:45 PM (GMT -6)   

Des,

  I'm glad your GP called you back and told you to go to the ER if you have any arm or chest pain. I hope this is nothing serious and you do well during the night. I'm glad you are getting this checked out tomorrow. Let us know what the doc says and don't hesitate to go to the ER tonight if needed. You will be in my thoughts and prayers.

                                                           ((Hugs)) Babs


 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 4/3/2007 9:51 PM (GMT -6)   
Everything went okay last night. I went to the doctor today and sent me to get a chest xray (which found out later today it came out normal) and he wants me to go and see a cardiologist for a stress test and other cardio testing. I feel so stupid cause I started crying while I was talking to him so I ended up walking out with samples of Lexapro (without realizing thats what he gave me until my ride home lol).

Thanks for everyone's support
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


http://www.healingwell.com/donate


okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 4/3/2007 10:38 PM (GMT -6)   

(((des))), bless your heart. I'm glad your chest x ray came out ok. You have every right to be upset. I've cried when doctors have talked to me too. Hey you have been through alot and now they are asking for more. It's stressful. We all feeel like and do cry somtimes. Hey the meds might help. You know stress can cause chest pains  So maybe it's a good thing he gave you somthing for depression. It might help get rid of the breathing problems too.

Thank you for the update, No need to feel stupid at all. I think we have all done it.

Please keep us updated.

hugs

carol


God Bless
Carol
 
. Possible Lupus Nov 06. xanax X3,triam high BP, percocet, inhalers,COPD. oxygen Plaquanil400mil, . effexor. spiriva, xopenex.
 
God Bless our Troops!
 
 


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 4/3/2007 10:40 PM (GMT -6)   

Des,

  Tks for updating us. I'm glad the doctor is sending you to a cardiologist to check things out. Awww... I have cried several times in the doctors office. I think things just build up and when we get some new symptom that scares us, we break down when we least expect it. Don't feel stupid, I bet alot of others have done this too....(((Hugs))). I hope the Lexapro helps.

  I hope you get some answers soon. Keep us updated and take care. You will be in my thoughts and prayers.

                                                            Babs


 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Peaceful Harpist
Veteran Member


Date Joined Apr 2005
Total Posts : 679
   Posted 4/4/2007 4:15 PM (GMT -6)   
Hi Des, I've cried in the doctors's office too. Just a couple of weeks ago I broke down and cried. I hope too, that the Lexapro helps and that you get some answers soon. It's good that your PCP is sending for a cardio check up. (((gentle hugs and prayers))), Cecelia
Nesting is healing, Live well, blessings, peaceful harpist 
 
Lupus(SLE & Sub-Cutaneous),chronic pain,degenerative disc disease,hypothyroidism,severe anemia,luekopenia,asthma,R.A.,Raynaud's, Sjorgrens's,Rosecia,vit. D and iron deficiencys,fibromyalgia & sleep apnea.Too many meds to mention. Yoga...Meditation... Music
  
                     
 


bartlebee
New Member


Date Joined Mar 2007
Total Posts : 13
   Posted 4/5/2007 5:08 PM (GMT -6)   
Hi Des.

I'm a Des too. But that's not why I'm writing. I have the same symptoms you described. In my case the shortness of breath came first. I did the spirometry test and showed a reduction of 10% lung capacity. I did the cardio stress test and that was normal. The arm weirdness came next and included unusually bad shoulder and bicep pain, numb hands, pain aimed down from the elbow. In my case, it was definitely not serositis.

Hope that helps,
Other Des

dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 4/5/2007 6:36 PM (GMT -6)   
Thanks Des lol... what is a spirometry test? I never heard of that one, can that be abnormal if my chest xray came back normal?

Take Care
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


http://www.healingwell.com/donate


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 4/5/2007 6:44 PM (GMT -6)   
Des, it's a test that you breath into a tube. sort of like if the cops think your drunk lol. only it is meaured on a machine. It shows how much pressure you have when you blow out. Most people think that the problem is actually the inability to take deep breaths but it's actually the muscles in your lungs not being able to blow all the carbon dioxide out of your body. when that happens you aren't able to get enough oxygen into your blood system. and Yes you don't have to show problems in an xray for you to have breathing problems. When I have bad problems I can't blow out a candle.

hugs
carol
God Bless
Carol
 
. Possible Lupus Nov 06. xanax X3,triam high BP, percocet, inhalers,COPD. oxygen Plaquanil400mil, . effexor. spiriva, xopenex.
 
God Bless our Troops!
 
 


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 4/5/2007 6:49 PM (GMT -6)   
Thanks carol :) Yes I think I know of that test, just didn't know what it was called (I learn so much from you guys). It may just be worth checking into because the problem is not that I'm gasping for air but that I can't get enough oxygen. I may need to ask about that test.

(((HUGS Carol))) I hope you are feeling a bit better today
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


http://www.healingwell.com/donate


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 4/5/2007 7:06 PM (GMT -6)   

Is the Spirometry test the same as a Pulmonary Function Test? Just curious.... :-) .

Des, I hope you find out soon whats going on and get some relief.

                                                        ((hugs)) Babs                                                           


 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 4/5/2007 7:15 PM (GMT -6)   
Hi Bab's there are different kinds of pulmonary function tests that can be done but yes the  spirometer is the most common one.
Des you could ask them to use a Pulse/ox test on you first. It's that little thing they clip on the end of your finger. I don't know if they do it regularly on people but with my problems it's SOP. It only takes a minute and takes no effort on your part. I like that part lol. Plus it doesn't cost anything. It's kind of like taking your blood pressure on a visit to the doctors. and I learn TONS of stuff from you guys!
 
hugs guys
carol
God Bless
Carol
 
. Possible Lupus Nov 06. xanax X3,triam high BP, percocet, inhalers,COPD. oxygen Plaquanil400mil, . effexor. spiriva, xopenex.
 
God Bless our Troops!
 
 


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 4/5/2007 8:09 PM (GMT -6)   

Tks Carol,

  I was just curious...I had several PFT's when I had lupus pneumonitis. The office I work in does the pulse/ox test on patients too. It's pretty neat!

                                                            ((hugs)) Babs


 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

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