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okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 4/3/2007 7:00 AM (GMT -7)   
I hurt my shoulder and neck last night washing dishes. (as pathetic as that sounds) I woke up this morning with a pounded headache! I've gotten quite a few in the pass month but this might be from the neck strain. Anyway do you wake up in the mornings often with blinding headaches? It usually goes away as the day wears on but it hurts so bad at first I can barely make it to the coffee pot. I called the PCP I have an appt next thrusday. My old rheumy wanted me to see her. He thinks I may have something wrong with my bladder because it's tender but no infection. Life's great if ya don't weaken!
 
 
love ya
all
Carol
God Bless
Carol
 
. Possible Lupus Nov 06. xanax X3,triam high BP, percocet, inhalers,COPD. oxygen Plaquanil400mil, . effexor. spiriva, xopenex.
 
God Bless our Troops!
 
 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 4/3/2007 7:14 AM (GMT -7)   
Carol, I think only us lupies could understand how you could hurt your shoulder and neck by doing the dishes. As you probably know from some of my past posts, I have also had problems with terrible headaches since having lupus. I never got them much before this and when I did, they were always manageable. Now when I get them, they are pretty debilitating. For me, the main thing that helps them is the right dose of prednisone and also taking some pain meds before it gets out of hand.

I would definitely talk to your doctor about the headaches and if there is anything that could help decrease them, especially since you are waking up with them.

I'm sorry to hear about your bladder. I think most healthy people would never believe all the stuff that can go wrong with a body. Sometimes I hate talking to other people about my health because I think they will think I am exaggerating, but at least I know when I come here that we all know how easy it is for so many things to go wrong with our bodies.

Hang in there. I wish you didn't have to wait until next Thursday for your appointment.

Love and hugs
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 4/3/2007 7:28 AM (GMT -7)   
Thanks Hippi sending ya hugs. I knew you had aches but wasn't sure how you delt with them. Like you I never got them before. As a matter of fact at one time I could have said I hadn't even taken an aspirin in years.! . I swore I wasn't going to come here a post about anything else that was going haywire with my body. I even drive myself crazy sometimes. I start to question myself.  How can all this stuff be happening?  You guys are the only ones who understand me. I'm sure once they get me going on the right meds things will settle down. I just need a rheumy that is willing to treat my symptoms even if they can't pinpoint the problem.
 
thanks for help with the headaches
love ya
carol
God Bless
Carol
 
. Possible Lupus Nov 06. xanax X3,triam high BP, percocet, inhalers,COPD. oxygen Plaquanil400mil, . effexor. spiriva, xopenex.
 
God Bless our Troops!
 
 


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 4/3/2007 9:01 AM (GMT -7)   
Hi Carol,
  We do understand what your going through. I think alot of us have questioned ourselves at times, but deep down we know something is wrong and its not in our heads....((Hugs))
  You post as much as you want about your feelings, symptoms or ask all the questions you want. We are all here to help each other cope with these issues.
  I get alot of headaches as well. Mine are usually one sided or in the back of the head. Since I started Mirapex for RLS I have been going to bed with a headache and waking up with one, but that is one of the side effects of that med. I'm trying to ignore the headaches because the med is working so well for my RLS, but it can be annoying. Also the headaches seem to go away within a couple of hours of getting up, but start back about 30 minutes after taking the med at night.
  I do hope you can find a good rheumy soon and get some much needed relief. Hang in there and take care. You are in my thoughts and prayers.
                                                            Love, Babs
 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 4/3/2007 12:06 PM (GMT -7)   

((((Bab's)))), you guys are all such a blessing to me. I can't imagine trying to do this alone. I'm sorry you have this headache from your meds. Somtimes it seems like you have to wonder if the trade off is worth it. I know you have trouble sleeping so if the meds for RLS are helping I would imagine the headaches might be worth it. Geesh but one big happy pill would be great!

My friend came over to take some more stuff to the dump I tried to help her put a window air condition in the back of her truck. Needless to say it's still setting on my back porch! I just said man it ain't worth it! nono . I need that little guy as a visual aid sometimes. lol.

I think I need a nap. After all I've been up 5 hours. tongue I hope you are having a good day!

love ya back

carol


God Bless
Carol
 
. Possible Lupus Nov 06. xanax X3,triam high BP, percocet, inhalers,COPD. oxygen Plaquanil400mil, . effexor. spiriva, xopenex.
 
God Bless our Troops!
 
 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 4/3/2007 2:51 PM (GMT -7)   
Carol, I hope you got some rest. I was also going to tell you to not ever worry about posting too much - I think this is one of the few places where people really do understand that yes, all of these things can actually be going wrong with our bodies. I've also done the questioning myself thing. I've wondered if I am imagining symptoms or if the pain is really as bad as I think it is or if things are really as bad as I think they are. I think that's one reason I hesitate to go to the doc even when I'm flaring. I question how bad I really am and doubt myslef and I'm afraid I'll go in and they'll look at me like I'm crazy.

Speaking of headaches, I did actually make an appointment with my pcp regarding this cold and how it's settled into my sinuses. It continues to get worse and is causing a lot of pain and now I am running a fever, so I'm worried about a sinus infection, especially since we are supposed to leave for vacation on Thursday.

Babs brought up a good point about meds also causing headaches. Hang in there and I'm glad you didn't end up moving the air conditioner.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 4/3/2007 3:24 PM (GMT -7)   
Thanks Hippi, I hope the doctor gives you some antibiotics or somthing so it doesn't ruin your trip.
I guess the thing about symptoms is like everyone says 1000 faces. Like today, I took some ham and cabbage out of the fridge and choped it up for the crock pot. by the time I was done my fingers tips were hurting so badly that I had to dunk them in my dish water. After 30 seconds or so the pain was gone. So here's the thing ok I know the pain in the finger tips can be a symptom. Than again maybe my finger tips were just plain cold! I'm mean after all the stuff was in the fridge. It's not the first time they got cold but now I have to take note of everything. It's enough to drive ya crazy. For me it's a short trip anyway. lol.

I sure hope you get to feeling better soon!
hugs
carol
God Bless
Carol
 
. Possible Lupus Nov 06. xanax X3,triam high BP, percocet, inhalers,COPD. oxygen Plaquanil400mil, . effexor. spiriva, xopenex.
 
God Bless our Troops!
 
 


tink 2
Regular Member


Date Joined Jan 2007
Total Posts : 371
   Posted 4/3/2007 3:54 PM (GMT -7)   
Try to use ice packs for the headaches. That is what I do it helps out a lot. I just got back from Disney and had one in the hotel and got bags from the front desk and made ice packs it helped before the meds kicked in.

Lupus since 2005, MCT since 2005 polymysoitis since 2005,Arthritis since2005 sjogren's syndrome since 2005, vertigo since 2006,migrains since 2006, diabetes since 2006, Depression since 2004. who would not be with all of this.
 
       I just try to make it threw every day as best I can.
        God please remember I am on the diet platter.
                  So many beads so little time.....
 
                   Have a great Lupie Day Denise 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 4/3/2007 4:12 PM (GMT -7)   

Thank you Denise. I'll give it a try. I hope you had a great time at Disney, I mean besides the headaches.

 

hugs

carol


God Bless
Carol
 
. Possible Lupus Nov 06. xanax X3,triam high BP, percocet, inhalers,COPD. oxygen Plaquanil400mil, . effexor. spiriva, xopenex.
 
God Bless our Troops!
 
 


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 4/3/2007 6:26 PM (GMT -7)   
(((( Carol )))) I am another one that has headaches too (we are beginning to have a lot in common) scool Usually when I wake up with a headache it's not a good thing nono and doesn't go away so quietly. Since I am on NSAIDS I cannot take anything for them so I use a cold compress and that helps a little, mainly a dark quiet room and sleep! I hope you are feeling better! You are in my prayers.
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (gluten sensitivity)2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds:Imuran, Plaquenil, Flexeril, Sulindac, Levoxyl, Folic Acid and magic mouthwash (as needed)


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 4/3/2007 6:53 PM (GMT -7)   

Hi Stacie, Maybe we should get together and compare notes? Except I was reading all the things that you have DX's with and no offense but redface I don't want em! LOL! My Goodness you have your hands full.

So that's the second time ice was mentioned. I think maybe baby peas would be better. Just the thought of putting my hands in ice makes my fingers hurt. Boy this could make for a really long hot summer confused

 

love ya


God Bless
Carol
 
. Possible Lupus Nov 06. xanax X3,triam high BP, percocet, inhalers,COPD. oxygen Plaquanil400mil, . effexor. spiriva, xopenex.
 
God Bless our Troops!
 
 

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