Asked gp to do ANA blood, she wouldnt

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Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 4/4/2007 10:13 AM (GMT -7)   
I want to keep monitering this but gp says she wont do this blood every month only ever six months!
Rheumy in London said to be monitered for Lupus etc. but gee, every six months.
Then I asked her to write to Rheumy and she said, "I can't keep writing letters for you, Ann!" I know our health service is S....but what do I do?
xAnn
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
Excema.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream


Peaceful Harpist
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Date Joined Apr 2005
Total Posts : 679
   Posted 4/4/2007 1:23 PM (GMT -7)   
Hi Ann, I'm on a six month appt. schedule too with my rheumie. I am monitored by my PCP. He can't run lupus tests because that is not his area of speciality. But he does run a CBC w/differential, thyroid function, vit.D and Vit. B12 levels, iron/ferriton, iron binding. My PCP also monitors for my Hemo/Oncol too. My speciality drs have asked my PCP to run certain tests to keep track of things and if something is wrong, he will contact my specialists and get me in there for an appt. I can also have a CBC done when ever I am not feeling well and a sedimentation rate that will show inflamation along with some other things. I have severe anemia to keep track of.

Can you ask your rheumie in London to write to your PCP here and request certain tests that he is allowed to run to monitor your condition? And how often she wants the tests run? I hope that you get things sorted out soon, and you will. Take care, (((gentle hugs and prayers))), blessings, Cecelia
Nesting is healing, Live well, blessings, peaceful harpist 
 
Lupus(SLE & Sub-Cutaneous),chronic pain,degenerative disc disease,hypothyroidism,severe anemia,luekopenia,asthma,R.A.,Raynaud's, Sjorgrens's,Rosecia,vit. D and iron deficiencys,fibromyalgia & sleep apnea.Too many meds to mention. Yoga...Meditation... Music
  
                     
 


Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 4/4/2007 1:55 PM (GMT -7)   
what is a CPC. Here in Ireland our health service is in major crisis. The minister for health is in dispute with nurses who are out on strike, the consultants who threaten to pull out of the private/public services, the ambulance men, practically every health professional is in dispute with the government.
We have 11 neuros for 4million people, three parkinsons nurses for the whole of Ireland, over 2,000 schoolchildren have been 'pulled' from getting psychological assessements. There are lonbg waiting lists for everything.
I hardly know where to begin to point to one area of health that is 'working' it seems to spiral from crisis to another.
The mental health sector has gone down percentage wise in funding in the past 10yrs, alarmingly.
We may be the richest economy in europe at present but we have a third world health service and A doesnt know what B is doikng. Every time I ring the local health board I am met wit a voice that says she is part of such and such and I ask her when has the name been changed. The minister of health just 'disbanded' the local health boards and formed a Health Service Executive which left both the professionals and the public not knowing who does what!
xxAnn
cryin
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
Excema.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream


Bsime
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Date Joined Apr 2006
Total Posts : 1299
   Posted 4/4/2007 4:22 PM (GMT -7)   
Ann,
 
PCP = primary care physician
 
CBC w/differential = complete blood count
 
CPC = not sure what that is.  Name of a food company in the USA
 
Sounds like your healthcare system is in shambles.  Ours is very strange indeed: really great for some and nonexistent for millions.  Those of us with insurance probably have good care but private insurance (individual and not through a company) is very, very expensive if you can get it.  Medicare does not kick in until you are 65 and it is OK if you pay additional for supplemental and prescription insurance.  There are about 50 million Americans who have NO insurance at all.  We need to transform our healthcare system and use the best of government oversight and private sector efficiency but we have a silly, ideological debate that ignores the problem and the people who are suffering. 
 
Ironically, our government system of social security is far more efficient than any private pension.  Seems like we should clone it for use in our health care system.  Government is not all bad....nor is the private sector all good.
 
6 months seems like a reasonable time to be tested unless you are having really bad symptoms.  Then you need a more aggressive course of treatment.
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's syndrome.
 
Meds: prednisone (9mg & tapering), 150mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 4/4/2007 5:43 PM (GMT -7)   

Ann,

  It sounds like your healthcare system definately has some problems that need to be worked out. I know its frustrating for you to deal with that.

  I agree with Bill that every 6 months sounds reasonable unless you have some new symptoms crop up that point more toward lupus.

  Take care and hang in there. You will be in my prayers.

                                                        ((Hugs)) Babs


 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 4/4/2007 10:03 PM (GMT -7)   
Thanks cecilia, bill and babs for your posts, it really, really helped. I feel a bit daft about asking for the tests etc but very reassured that you say the six month span is reasonable. I had a much better night of it, though very short as insomnia is awol. My walking ability has miraculously improved on the sinemet for the parki and last night there was improvement again on the dystonia. No improvement yet on the jerks and jigging but I have to be grateful for small mercies, I suppose! The exhaustion, weakness and nausea still awol.
Twin coming to Ireland for a few days next week which I shall enjoy and we will be visiting the home where my mum was born with an older sister.
This is now owned by a multi-millionaire, being a castle!! I now live in what is termed 'social housing' but my own family didnt have two brass farthings to rub together. God knows where all the money went as both grandparents were millionaires, problem, I guess is that both were married three times and inheritance went to the children of the first marriages.
My grandfather on my maternal side owned five houses in a row, the second, a smaller castle (!!) is now owned by Van Morrison the singer!
On my first visit to my mum's home I felt no pangs of wanting to own it for I think I'd rattle around it and God I couldnt get a duster to the place its so massive. It was fascinating to see where mum grew up but these has been no hankering over the sumptuous livestyle, I never had it so what you never had you dont miss.
Funnily there is a fabulous little park just by the castle and I seem to be driving there regularly to saunter around. It makes me feel 'comfortable' for some reason yet I hardly look towards the castle, I just know its there and I feel sort of 'comfortable' there. Maybe mum and grandda are looking out for me and keeping me safe.
xxAnn
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
Excema.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream


Peaceful Harpist
Veteran Member


Date Joined Apr 2005
Total Posts : 679
   Posted 4/5/2007 5:46 AM (GMT -7)   
Hi Ann, I'm sorry about all of the abreviations. Bill covered them all except CPAP, which is a breathing assistance machine to use at night for sleep apnea ....breathing incidents while you're sleeping. It can be anything from snorring, a slight stop in breathing(10 secs) or a complete stop in breathing. I had both. My breathing problems are caused by an obstruction of the soft palette. I discribe it better in the thread on sleep apnea. Ann, I'm so glad that you have improvement in your walking! It's wonderful that your sister will be comming to Ireland to visit you. I can't imagine going to your familie's home. You have a very interesting history with your family and their homes....Van Morrison...very cool! I can see where you wouldn't want to have the familie's castle. It would be very dear to own and too much to manage. I'm so happy you can go to the park to enjoy it. I'm sure that your mum and grandda are looking out for you and your sister, just as I'm sure my mummie, grandda and grandma are looking over me. Your wee bit of an accent comes through in your posts, and sweetly reminds of them. Please have a cup of tea for me. You can't get a good pot of tea here, I think it's the water. (((((gentle hugs and prayers)))),May God bless you, Cecelia
Nesting is healing, Live well, blessings, peaceful harpist 
 
Lupus(SLE & Sub-Cutaneous),chronic pain,degenerative disc disease,hypothyroidism,severe anemia,luekopenia,asthma,R.A.,Raynaud's, Sjorgrens's,Rosecia,vit. D and iron deficiencys,fibromyalgia & sleep apnea.Too many meds to mention. Yoga...Meditation... Music
  
                     
 

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