rituxan/cellcept

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pigletgrl
New Member


Date Joined Apr 2007
Total Posts : 1
   Posted 4/4/2007 8:03 PM (GMT -7)   
Hello everyone,

I am new to this forum and this is my first posting. I am 44 and have had lupus for about 8+ yrs now. My rheumatologist started me on Rituxan last August for the first time and it lasted for about 5 months before it wore off. I had a second Rituxan tx 1 month ago and haven't seen any response to it this time. I actually am having a lupus flare currently, joint pain, swelling,ha's low grade temps, fatigue etc. I have cns involvement, Migraines,Raynauds and Some neuropathy of my hands and feet and Depression. My rheumie decided to have me take cellcept again to see if that helps. Has anyone on this forum been treated with Rituxan and had poor response to it, just wondering if rituxan is a one time wonder drug. Please let me know your opinions or experiences that you have had.
thanks for your patience.
confused lpiegirl99

mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 4/4/2007 8:16 PM (GMT -7)   

Hi Lpiegrl,

  Welcome to the forum. I have seen some others talk about Rituxan. I have never taken it myself, but I'm sure the ones that have will come along to give their experience with it.

  It sounds like you are in a nasty flare right now. I hope the Cellcept works for you this time and you will start feeling alot better soon. Please keep us updated and take care. Hope to hear from you again soon. You will be in my prayers.

                                                                  Babs


 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Heidi55529
Regular Member


Date Joined Mar 2006
Total Posts : 147
   Posted 4/4/2007 9:33 PM (GMT -7)   
I'm in kind of the same boat you are. I had my first rituxan treatments six months ago and I responded really well to it and I was improving. After about 5-6 months it started wearing off. I had my second treatments last month and honestly I think I may be flaring a bit. I've had some joint pain and fatigue the past few weeks which I haven't had in a while.

I am going in for labs this friday though and then an appointment with my rheumy on the 13th. So I'm keeping my fingers crossed that the second treatment starts to kick in.

It did help me taper the prednisone a bit, so I hope I don't have to bump that up either!
I was diagnosed with Lupus with Antiphospholipid syndrome in Nov 05.
Current list of medications includes:

Cellcept 250mg/4 capsules twice a day, Prilosec 20mg/1 capsule once a day, Plaquenil 200mg/one tablet twice a day, Metoprolol 25mg/half tablet twice a day, Prednisone 10mg/one tablet once a day, Coumadin as directed, Tetracycline 250mg/ two capsules twice a day

Avita cream, Clindamycin lotion, triamcinolone ointment daily to control skin rashes.

Rituxan infusions twice every six months


AUNT C
New Member


Date Joined May 2009
Total Posts : 1
   Posted 5/13/2009 3:20 PM (GMT -7)   
I HAVE LUPUS AND THEN WAS DIAGNOSED WITH CANCER.  AFTER I FINISHED MY TREATMENT FOR CANCER MY CANCER DOCTOR GAVE ME RITUXIN FOR MY LUPUS.  IT LASTED FOR A YEAR AND 6 MO.  I WAS HAVING SOME ISSUES WITH THE CANCER AND I KNEW THE LUPUS WAS COMING BACK .   I HAD A FLARE UP.   IT TOOK ME OVER AN HOUR TO GET DOWN MY STAIR.  I HAD THE TREATMENT FOR THE SECOND TIME AND IT SEEMS TO HAVE WORKED AS WELL AS THE FIRST TIME   THAT WAS 6 MONTHS AGO.   I DO NOT SEE MY LUPUS DOCTOR AT ALL ANY MORE HAVE TAKEN MAYBE 10  PAIN PILLS IN THE LAST 6 MONTHS.  BEFORE I WAS ON PREDIZONE AND CELLEBREX AND TOOK AT LEAST 10  PAIN PILLS A DAY.  THERE WAS SOMETHING ELSE HE GAVE ME WITH THE RITUXIN 1 WEEK LATER BUT I CAN NOT REMEMBER THE NAME OF IT   IT TAKES about 3 HOURS AND I HAVE TO TAKE IT IN TWO SESSIONS TWO WEEKS APART.

joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 5/13/2009 4:42 PM (GMT -7)   
Hello Aunt C
I'm not on the meds. you are taking , I just wanted to welcome you.. sorry to hear you are having so much trouble, I hope you will get something that will work for you!!!
Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/14/2009 8:50 AM (GMT -7)   
Hi pigletgrl,

I have no experience with Rituxan, however I did take CellCept for a while & I was amazing. I felt so much better while on it. Unfortunately I had some serious side effects, but others here have taken it with equal success. Good luck!

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex

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