suggestions for hives?

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Regular Member

Date Joined May 2006
Total Posts : 149
   Posted 4/7/2007 9:25 PM (GMT -6)   
after a three week bout of hives that ended about five weeks ago, they are trying to come back. two days ago they were on my leg, but went away. tonight they are coming up on matching places on my forearms (last time i had them they migrated in matches places on my arms and legs).  sitting here my thigh is starting to itch, but it is SO COLD i am not crawling out from my heating pad/blanket nest to see if they are coming up there again. 
over the counter anti-itch creams help some...cortisone more so than benadryl...last time i had had them i was put on triple dose of allegra but it didn't do anything..  
if you guys  have any suggestions on how to deal with hives, it would be great....i am crossing my fingers that if i am super nice to myself/body that it won't turn into such an ordeal as it did last time.  since my insurance isn't covering anything at the moment,  i can't go to the dermatologist.
(can someone tell me what the photosensitivity rash looks like? in the sun my skin gets tiny pink dots that are flat and itch. it comes up about after 10 to 15 minutes of sun exposure, even through glass -- like in the car. it goes away after being inside for a while)
hope everyone has a good easter -- i certainly will not be wearing the sundress i and been looking forward to wearing to lunch.....but instead many layers, a hat, thick socks, mittens...    we got snow flakes last night -- in north carolina!! last week it was 84 out!
jessica, 25
lupus (or something like it)
ulcerative colitis,bone loss, arthralgia,ranaud's, blood clots in fingers, blistering on top of hands, migraines, fatigue, eye pain...i'm sure i'm forgetting something (anxiety, major brain fog) 

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 4/9/2007 5:12 PM (GMT -6)   
Hi Jessica,
Are you sure they're hives?  Have you had a dermatologist or your rheumy take a look at them?  If Benadryl or any other anti-hystamine didn't work, they might not be just your average hives!
Discoid lupus can present itself in many different forms, so it's important to get know exactly what you're dealing with.  The fact that your cortisone cream worked better than the benadryl makes me wonder about them being more than just hives.  Discoid lupus is often treated with cortisone cream.
Your description of the photosensitive rash is dead on!  That's exactly how most people's sun rash will appear.  So lather up in sunscreen and long sleeves this summer!  I know, it sucks, but your health is worth it!
Hope this helps Jessica,
I can do anything through Jesus Christ who strengthens me.  I have learned in whatever state I am in, to be content.  Phillipians 4:11-13

Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia, food allergies
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Regular Member

Date Joined May 2006
Total Posts : 149
   Posted 4/10/2007 8:17 PM (GMT -6)   
thanks, ginny! i hadn't thought they were anything but hives...but i shouldn't just go on what the dermatologist says. she's really been off on a few things (called the vasculitis in my finger tips, eczema)
well, they aren't as big as hives normally are. they are much smaller, about the size of a dime. i will ask the dr about this.. they just assumed they were hives, because of course after having them for weeks, they disappeared days before my dermatologist appt.
does discoid lupus itch like the devil and migrate? are there other all-over body issues with discoid lupus or just the skin..? oy. so many questions. so few answers!!!

my face has recently been going through spells that are about a day in length were the malar rash is painfully visible and slightly itched. a little sun exposure really makes it come out and linger for the rest of the day.

thank you for clearing up the photosensitivty. there are so many variables to this complex disease that i may or may not have, that i'm always scratching my head!

in other news, the purple spots are fading pretty quickly, tho the tiny red ones on my arms linger on. i'm grateful the purple ones are on their way out though. i'm really learning to enjoy the small things with this.

thanks again!!
jessica, 25
lupus (or something like it)
ulcerative colitis,bone loss, arthralgia,ranaud's, blood clots in fingers, blistering on top of hands, migraines, fatigue, eye pain...i'm sure i'm forgetting something (anxiety, major brain fog) 

Forum Moderator

Date Joined May 2005
Total Posts : 6939
   Posted 4/10/2007 9:07 PM (GMT -6)   
How about taking some pictures next time these 'hives' come along? That way you can show the dermy exactly what you are talking about. I've had to do that a couple of times -- it seems to work better if you can get close-up shots.

Take care,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
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Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 4/11/2007 7:51 AM (GMT -6)   
I agree with Lynn, I have brought pictures of my rashes to my doc appts also because sure enough they either start going away or start to fade the closer your appt comes. I guess not many people do this because my doc was really happy I did this and he made a point to tell me that it really helps. I have to tell you though when I went to the photo lab to have them developed from my mem card, the photo tech was looking at me funny lol.
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
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