more info on eye infections and lupus

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Veteran Member

Date Joined Mar 2006
Total Posts : 2570
   Posted 4/13/2007 12:33 AM (GMT -6)   
I went to the ophthalmologist this afternoon because both eyes have been infected for nearly a week and a half and the antibiotic eye drops my pcp prescribed didn't help.

He said there are several things going on:

Sjogren's has my eyes bone dry, which makes them feel like sandpaper;

I have a bacterial infection in both eyes; and

They are both inflammed bcause of an autoimmune condition.

When I asked him if lupus attacks the inside eye lids, he said "Oh yeah!" He prescribed an antibiotic ointment for the infection and steroid drops for the inflammation.

Kari, Crystal, and Babs, you guys were talking about recurrent eye infections, sinus infections, and clogged glands in the eye lids so I brought that up with him too and he confirmed it all. I'm flaring right now, so it makes sense to me that my eyes and sinuses would be inflamed just like my joints are. This explains a lot to me. The problem is, according to the ophthalmologist is that when we have lupus and these eye infections, they tend to recur. So he did give me two refills on both drops he prescribed. That gave me a huge sense of relief, because as you guys know, when you get one of these infections, you want to treat them right away and not have to wait to get into a doctor.

By the way, while I was waiting for my scripts to be filled, I found some eye gel made for people with severe eye dryness, bought it, tried it, and it helped a lot more than the liquid drops I've used in the past.

So there's nothing here that we didn't suspect, but it was good to have it confirmed by an ophthalmologist. I hope you guys all get some relief, because flaring is bad enough, but flaring with these eye problems is like pouring salt into a wound. So use your drops, take your pain meds, and rest, rest, rest.

Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 4/13/2007 2:34 AM (GMT -6)   
OMG Patty, (((((((hugs)))))), that sounds just awful. Can it do permanent damage to your eyes? steroids for your eyes what next? I have to see an opthamalogist next month. Only because of the plaquenil. Fortunately I don't have any thing like what you mentioned. They sounds absolutely miserable and dibilitating. I'm glad you found somthing that works and got some good answers the helped you with your concerns. I think the not knowing is worse than anything. I hope your flare doesn't last too long and you get back on your feet soon.

God Bless
. Possible Lupus Nov 06.Possible CREST, xanax X3,triam high BP, percocet, inhalers,COPD. oxygen Plaquanil400mil, . effexor. spiriva, xopenex.
Come ye, all that are weary and heavy laden, and I will give you rest!
Why do doctors call it "practicing" medicine? 

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 4/13/2007 6:51 AM (GMT -6)   
Hi Pat,
   I hope you get some quick relief from the rx's he gave you. Thank you for asking those questions for us...((Hugs)). My Opthamologist gives me two different eye drops. One of them is Systene and I can't remember the name of the other. Sometimes I have to use them several times a day for the sandpaper feeling. I also have an rx for Gentamicin eye drops when they get infected that helps alot. I agree, staying on top of this helps.
   Take care and let us know how the rx's work for you. You are in my thoughts and prayers.
 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
mirapex,advair,foxamax,donnatal,folic acid.
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 4/13/2007 7:45 PM (GMT -6)   
((((( Pat )))))) that sounds terrible! I am glad you were able to get confirmation on your eye problems. I guess my doctor was right when he said Lupus can attack any part of the body, it wrecks havoc where ever it wants! (ARGGG). I hope the meds help and you feel better soon! Hugs and love to you

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (gluten sensitivity)2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds:Imuran, Plaquenil, Flexeril, Sulindac, Levoxyl, Folic Acid and magic mouthwash (as needed)

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