Lupus and Appetite

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Mogaly
Regular Member


Date Joined Apr 2007
Total Posts : 28
   Posted 4/13/2007 5:29 AM (GMT -7)   
I was wondering what everyone's experience was with their Lupus and their appetite?
 
I have been experiencing a major decrease in appetite lately.  I am not on Prednisone, but even when I was, my appetite was still very little.
 
Is this normal, and if so, what is causing my decrease in appetite?
 
Thank you.
~Jen~


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 4/13/2007 5:56 AM (GMT -7)   
For me, my appetite is good in the early part of the day but I have NO appetite after 5pm or so. In fact, I get nausea almost everynight and I usually just drink water and sip on ice chips, I hate it.
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


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hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 4/13/2007 6:01 AM (GMT -7)   
Jen, my appetite fluctuates. When I first started on prednisone I had a big increase in appetite, but I found that my tastes in food changed and things I used to like no longer sounded good. I've noticed that in the last two months where I've been flaring on and off, I haven't had much of an appetite at all and have a lot of nausea and have a hard time finding anything that sounds good to me.

I think it is pretty common for people with lupus to have nausea or problems with appetite, but I don't know what causes it. Some of it could be the disease and some of it could be the meds.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

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mom46
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Date Joined Dec 2004
Total Posts : 8198
   Posted 4/13/2007 6:15 AM (GMT -7)   
Hi Jen,
   This is a good question. Like Hippi, my appetite fluctuates. I think alot of it has to do with Lupus and the meds as well. I hope your doctor can give you something to help you especially if your loosing alot of weight or not getting the proper nutrition.
   Des, I'm just the opposite. I have no appetite in the early hours. I usually get hungry in the afternoons but, I'm not a morning person at all...lol. I do get a nauseous after taking my night meds though..Yuck! I hate it too.
  It will be interesting to hear from the others on this topic as well since we are all different.
                                                                Babs
 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


ericsmom
Veteran Member


Date Joined Jan 2007
Total Posts : 1042
   Posted 4/13/2007 6:44 AM (GMT -7)   
Hi jen
 
I go days where I have NO appetite too, but being a diabetic I have to eat no matter how bad I feel.  I drink an awful lot of water (blah) and on those days I just monitor my sugars and when they start to drop I eat 4 soda crackers...mmmmmm yummy eh?  I do take prednisone..so some days when my tummy is ok, I find I crave sweets so much that even my water tastes sweet. You could try meal supplement drinks, but I personally find that when my tummy is acting up, I find it hard to tolerate those drinks..and thats why I turn to the "soda cracker" LOL           Dont know what meds you take...but if you dont eat enough when taking some, they can ruin your appetite for the whole day.  like PLAQUENIL!!!  are you on that?
 
Hope one of some of these posts help you.
 
Diane
 
A/Fib, diagnosed Aug, 1997, R/A diagnosed in Sept. 1998, Pericarditis and Lupus in Dec, 2003, Diabetes, diagnosed march, 2004
 
sotalol, digoxin, coumidin, plaquenil, prednisone, metformin, diamacron, wellbutrin,fenofibrate


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 4/13/2007 5:56 PM (GMT -7)   
Hi Jen, I am another one who's appetite fluctuates. There are days when I don't get hungry at all but I force myself to eat so I can take my meds, etc. There are plenty of times I don't eat dinner with the family because nothing sounds good, so I'll eat a bowl of cereal. I guess it's a lupus and/or med thing!! Take care, I hope your appetite returns!
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (gluten sensitivity)2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds:Imuran, Plaquenil, Flexeril, Sulindac, Levoxyl, Folic Acid and magic mouthwash (as needed)


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 4/13/2007 6:05 PM (GMT -7)   
Stacie, I had to laugh - you have no idea how many times I have sat down with a bowl of ceral for dinner when the rest of my family is eating a nice meal that doesn't appeal to me at all. Somehow I can usually find a cereal that sounds okay to me and it's easy on my stomach.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 4/13/2007 6:09 PM (GMT -7)   
Wow... me too!!! That's also what I eat when I can't eat but have to take my meds. Eat cereal for dinner more than I do for breakfast :)
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


http://www.healingwell.com/donate


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 4/13/2007 6:21 PM (GMT -7)   
Me too Des (eat more cereal for dinner than breakfast, lol!!!

What do you guys eat? It's Cocoa pebbles for me, it's gluten free and it satisfies my chocolate addiction!!! tongue
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (gluten sensitivity)2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds:Imuran, Plaquenil, Flexeril, Sulindac, Levoxyl, Folic Acid and magic mouthwash (as needed)


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 4/13/2007 6:22 PM (GMT -7)   
LOL...I'm a cereal eater too. Thats what I had yesterday for lunch and dinner.
                                                              Babs
 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 4/13/2007 6:27 PM (GMT -7)   
I like Golden Grahams and Frosted Mini Wheats :-)
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


http://www.healingwell.com/donate


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 4/13/2007 6:35 PM (GMT -7)   
 I'm a Special K, kind of gal.... yeah
                                                         Babs
 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Heidi55529
Regular Member


Date Joined Mar 2006
Total Posts : 147
   Posted 4/13/2007 6:35 PM (GMT -7)   
My appetite fluctuates as well, I'm usually really hungry when I wake up in the morning and usually eat more then. And then it's just snacks through out the day.

Sometimes my medications don't agree with me, so I get stomach aches or I end up using the bathroom more frequently because whatever I ate isn't going down right.

So I keep a staple of cereals and yogurt in my fridge as well! I like honey bunches of oats here, and if I don't have milk at home I sprinkle it on top of my yogurt and eat that instead of lunch or dinner.

Cereal just always taste good and it's easy on the stomach.
I was diagnosed with Lupus with Antiphospholipid syndrome in Nov 05.
Current list of medications includes:

Cellcept 250mg/4 capsules twice a day, Prilosec 20mg/1 capsule once a day, Plaquenil 200mg/one tablet twice a day, Metoprolol 25mg/half tablet twice a day, Prednisone 10mg/one tablet once a day, Coumadin as directed, Tetracycline 250mg/ two capsules twice a day

Avita cream, Clindamycin lotion, triamcinolone ointment daily to control skin rashes.

Rituxan infusions twice every six months


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 4/15/2007 9:36 AM (GMT -7)   
Raisin Bran!

Actually, I don't like milk, so don't do that much in the way of traditional cereal, but do eat breakfast bars of assorted brands & flavors at all kinds of random times. One of the advantages of the bars is that if you check labels, you can get ones with fairly high PROTEIN and FIBER content...the things that are hardest for me to want to eat. I find I FEEL much better if I can manage to get a good amount of protein down.

The prednisone & lupus itself are what have had the biggest effect on my appetite. Sometimes even my favorite foods can turn to the taste and consistency of dry cardboard in my mouth. It's a difficult issue, and is probably one of the biggest obstacles I face in controlling my lupus.

I'm one of those who has never had to control or monitor my food intake previously...learning to be regimented about food at 48yr/old is a big change -- maybe would be easier with a family but it's just me (cat food doesn't count, although she does insist on food at 8am & 5pm, so that regulates me a bit!)

Post Edited (Lynnwood) : 4/15/2007 10:42:50 AM (GMT-6)


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 4/15/2007 9:47 AM (GMT -7)   
My appetite remains steady. That's too bad, because I'm always hungry even when my nausea is real bad. I believe it's because food is the only thing that I enjoy these days. I doubt that my increased appetite is due to lupus, because I've never had an appetite like this. It started when I was on a high dose of prednisone, which I understand, but I'm down to 5mg and I could still eat a horse.

I thing you're right, Babs, because we are all so different.

By the way, Any cereal is good if you just add a cut-up banana on it.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 4/15/2007 10:23 AM (GMT -7)   
It's funny that so many of us rely on cereal when nothing else sounds good. I've been on a Corn Chex kick (with some added sugar) for quite a while - it always sits well with me. Sometimes the kids' sweetened cereals taste good too.

Pat I can relate to feeling like eating is one of the few things left to enjoy. The frustrating thing for me lately is that a lot of the stuff I used to enjoy doesn't taste good anymore and like Lynnwood said, tastes like cardboard. But I'm like you Pat and have to eat even when I have nausea - it's weird.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



Trying2BFree
Regular Member


Date Joined Oct 2005
Total Posts : 251
   Posted 4/15/2007 10:59 AM (GMT -7)   
Add me to the cereal list too. LOL I like the Quaker Oatmeal Squares.

Since I weaned off prednisone last fall, my appetite is non-existant and I get nauseous just about every day. I've lost 20lbs since Nov. of last year (which I had gained that much from the prednisone so that is okay). Nothing sounds good. Sometimes if I will make myself eat a little bit, it will takes good and I can eat a good meal.
Jeannie ~
   Mom to Ty (4 yrs old)
   and 3 Shelties
 
SLE diagnosis 10/05 now changed to RA 3/06, Endometriosis 5/05, PCOS 1990
Meds: Metformin ER 1500mg (PCOS); Loestrin BCPs (Endo); Methotrexate 17.5mg (RA); Metanx 5mg (RA); Remicade (RA); Lunesta 2mg (as needed)

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