Lupus and asthma/bronchitis

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gloryroad
Regular Member


Date Joined Oct 2006
Total Posts : 193
   Posted 4/18/2007 7:26 PM (GMT -6)   
Is there a correlation? I've had asthmatic problems before all of my lupus symptoms started. I was doing very well. I stopped my plaquenil about 4 weeks ago and now I can't breathe - coughing all of the time, feeling like my upper airway is reacting to everything. I quit the plaq because my intestines felt like they were going to scream at me. Does anybody else have upper airway breathing problems? I'm not talking about pleurisy.
Gloryroad


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 4/18/2007 7:32 PM (GMT -6)   
Hi Glory, I have never experienced what you are explaining with coughing etc. but I do have a suggestion for you. I have a LOT of GI problems and because of this my rheumy started me off on Plaq slowly, I took a 1/2 tab every other day and eventually worked my way up to a full dose. It worked for me, I had no problems AT ALL and was able to reap the benefits of the med too.

I know when my doctor wanted me to try to stop the Plaq it took about 3-4 weeks and I was in a TERRIBLE flare, this may be what you are experiencing now. Maybe instead of stopping the Plaq speak to your doctor about cutting your dose so your digestive tract doesn't freak out! Take care
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (gluten sensitivity)2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds:Imuran, Plaquenil, Flexeril, Sulindac, Levoxyl, Folic Acid and magic mouthwash (as needed)


okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 4/18/2007 9:09 PM (GMT -6)   

Hi Glory, I don't want  to freak ya out or anything but all I can do is tell you my experience. 9 years ago I was diagnoses with asthma. I continued to get worse throughout the years until my pcp sent me to a pulmonologist. He said I could quit taking my asthma meds because I had copd. of course I was pretty devistated. I was in my early 40's at that time. The pulmonologist ran some test and told me that I had test come back possitive for lupus. I really knew nothing about lupus and was so wrapped up in the copd that I didn't even do a follow up on it. Over the years I had other doctors tell me I had possitive tests for lupus. My attitude was i got enough going on if it becomes a problem I'll investigate. I was in and out of the hospital all the time with pnemonia and bronchitis. I always got the same puzzled responses from doctors like "you're awfully young to have copd." Now they beleive that there is a corelation between lupus and my lung problems. As far as plaq. goes I have been on it for 5 months. When my doctor had me on 800mil. I could breath pretty good. when my rheumy dropped it to 400 my breathing got worse again. I really don't have an answer for you but I thought I would share what has happened to me over the years. I now am on oxygen pretty much constantly. I have home oxygen and o2 that I carry with me. some days are better than others but a new set of lungs would be good.

 

I hope you find some answers if it is lupus related try to get it stopped quickly!

Praying for ya

carol


God Bless
Carol
 
 Newly DX's Lupus.Possible CREST,COPD, high PB xanax,triam , Opana ER for pain, Evista for osteo,. oxygen Plaquanil400mil, . effexor. spiriva, xopenex.
 
Come ye, all that are weary and heavy laden, and I will give you rest!
 
 


gloryroad
Regular Member


Date Joined Oct 2006
Total Posts : 193
   Posted 4/19/2007 6:00 PM (GMT -6)   
Thanks for the answers. I was on plaquenil for several months b4 my stomach got so bad. I have made an appointment with my rheumy just to be safe.
Gloryroad


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 4/20/2007 4:49 AM (GMT -6)   
Glory, I'm glad you made an appt. You might want to see a pulmonologist though. The first time anyone mentioned lupus to me it was a pulmonologist. I know all these doctors are a hassle but you might mention it to the rheumy and see what he/she says.

Let us know
hugs
carol
God Bless
Carol
 
 Newly DX's Lupus.Possible CREST,COPD, high PB xanax,triam , Opana ER for pain, Evista for osteo,. oxygen Plaquanil400mil, . effexor. spiriva, xopenex.
 
Come ye, all that are weary and heavy laden, and I will give you rest!
 
 


gloryroad
Regular Member


Date Joined Oct 2006
Total Posts : 193
   Posted 4/20/2007 6:43 PM (GMT -6)   
I'm being treated by my pulmonologist over the phone right now because he is too freakin busy to see me. I'm supposed to call him on Monday with a report of how I'm feeling after being treated with a prednisone taper. It started out with 80 mg and I am now down to 50. I'll be down to 35 on Monday I've not been on this much prednisone and it is making me feel awful - and I'm still having bronchospasms. If he doesn't see me on Monday, I feel like I should go to the ER.
Gloryroad


sandspoker
Regular Member


Date Joined Apr 2007
Total Posts : 104
   Posted 4/20/2007 6:49 PM (GMT -6)   
Gloryroad - what is a bronchospasm?  I had some issues and I'm curious!!!

gloryroad
Regular Member


Date Joined Oct 2006
Total Posts : 193
   Posted 4/21/2007 8:24 AM (GMT -6)   
I'm sure there is a better medical explanation than what I can write here - but what it feels like to me is that my upper airways feel like they are having spasms when I try to talk, laugh - or even on their own - and make me cough. I made a commitment to myself that I wasn't going to talk this weekend and just rest to see how it goes. My chest is starting to hurt from all of the coughing.

Here is an explanation that I pulled off the web:

Definition of Bronchospasm
Bronchospasm is an abnormal contraction of the smooth muscle of the bronchi, resulting in an acute narrowing and obstruction of the respiratory airway. A cough with generalized wheezing usually indicates this condition.

Bronchospasm is a chief characteristic of asthma and bronchitis.

Description of Bronchospasm
Bronchospasm is a temporary narrowing of the bronchi (airways into the lungs) caused by contraction of the muscles in the lung walls, by inflammation of the lung lining, or by a combination of both.

This contraction and relaxation is controlled by the autonomic nervous system. Contraction may also be caused by the release of substances during an allergic reaction.

The most common cause of bronchospasm is asthma, though other causes include respiratory infection, chronic lung disease (including emphysema and chronic bronchitis), anaphylactic shock, or an allergic reaction to chemicals.

The bronchial muscle goes into a state of tight contraction (bronchospasm), which narrows the diameter of the bronchus. The mucosa becomes swollen and inflamed which further reduces the bronchial diameter.
Gloryroad


sandspoker
Regular Member


Date Joined Apr 2007
Total Posts : 104
   Posted 4/21/2007 8:46 AM (GMT -6)   
Hey Glory - thanks for the info... not the same as what I was going through though...
I was suffering from I referred to as "attacks". The first time it happened, I thought I was having a heart attack. Almost all of these attacks would happen when I was in bad need of sleep or stressed out. After time, I knew when one was coming on. They would start really subtle - when I'd take a breath, I felt that soreness that one feels when they have a chest cold. From there, it would get progressively worse to the point where any movement was extrememly painful. They would almost always happen in the evening and continue all night. I would have to sit extremely still with pillows propping me up. Talking and breathing were extremely difficult. I remember one night that I just kept saying my husbands name on every exhale because I was in trouble and needed his help... after around 5 minutes, he finally came to my aid. They never did find out what was causing them (tested for a bunch of things). Last new years eve I had my last one (fingers crossed here...lol) and although I've felt the start of an attack over the last year, they have never progressed like they used to. Oh - another thing about these - I couldn't even think about trying to lay down as the pain was intollerable....

mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 4/21/2007 5:14 PM (GMT -6)   
Hi Gloryroad,
   I hope you will be able to see the doctor on monday. I'm glad you will go to the ER if needed. I have problems with Asthma and Bronchitis as well. I developed asthma, I think in 1996, 6 yrs after being dx'd with lupus. I use advair daily for that now and its better. I started having symptoms of lupus in 1977 and I had problems with bronchitis from the begining. Lupus did attack my lungs about 2 2/2 yrs ago and caused lupus pneumonitis. After getting cytoxan infusions, my lungs were clear. I do have bronchitis right now though, but a mild case.
   I hope you get some answers soon and relief. Let us know what you find out. Take care and you will be in my thoughts and prayers.
                                                               Babs
 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


matshidiso
New Member


Date Joined Oct 2009
Total Posts : 1
   Posted 1/26/2010 7:52 PM (GMT -6)   
Hi glory il like to thank u 4 the information, I was diagnosed with lupus in 2005.last year i started to cough and my upper airways felt like they are having spasms when I try to talk, shout or laugh. I started to have wheezing sound at night and chest pains and sometimes my throat is very sore. Last week i saw blood on my sputum then i called my doctor he did test and he told me that i have asthma and bronchitis. I am little bit confused and scared at the same time i just can’t get used to lupus flares and now i have lung problems’ still asking myself if this is due to lupus or not.il be seeing my lupus doctor around April for checkups so far he doesn't no about the situation. if you have answers pls help. is this part of lupus? anyone who wanna help can mail me on <email address removed>




confused
marilyn

<Edited to remove email address, as it leaves you open to spammers when left in a post. YOu can put your email address in your HealingWell profile, then we can find you but the automatic spammers can't. Thanks>

Post Edited By Moderator (Lynnwood) : 1/26/2010 7:49:21 PM (GMT-7)

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