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Thank you hippimon and patti for your welcoming words. I do hope that I might be able to people here.
I think one of the most important things with any chronic illness is emotional support. From reading the posts here, I see that this is here in abundance. It makes such a difference knowing that such support is there if and when we need it.
Thank you dbab.
Good to meet you. I look forward to getting to know you too. I honestly feel that I have a lot to offer from a personal viewpoint of SLE, and I hope to be of help in any way I can be.
Thanks for the welcoming words. I will try my best to be of any help that I can to you. Only from a personal viewpoint of course, never a medical one. What I speak about are only things that have happened to me, or medications that I have experience of personally, tests I have had. etc. Any information that I can offer regarding things I know about in other words. I do a lot of research into lupus and other medical conditions so I hope I can help. I really do have to cover myself though with regard to these things.
I must say though that anything that is really worrying you must be discussed with your doctors.
(I know you all know this, but I need to make sure that I don't get into trouble with anyone because of anything I have said).
Hi there Babs,
Hello to you too. I think we can offer a lot because as you know even today there is so much misinformation about lupus out there. We are still here and living proof that there is life with lupus and we have fought and still fight to stay around. Unfortunately some people are told or read that there is a time limit on the survival rates with lupus. I have organ involvement and have problems from time to time because of this. I want others to know it can be something that can be managed with the right care and understanding from doctors, and support from our families and friends too.
I have other medical problems/disabilities going on too, but we are proof that we can "cope" - not meant in a light way - with a chronic illness given the right tools to do so and having the mind set that enables us to be a person with lupus, and not letting lupus be who we are. This is what I personally believe anyway.
Speak to you again soon.
Post Edited (goldenwings) : 4/22/2007 5:52:42 AM (GMT-6)