Clickable: LUPUS INFORMATION & LUPUS RESOURCES.
Co-Moderator: Lupus and CFS Forums
Hi Carol - I was just telling my g/f - I don't feel so "alone" now. Even though my sister has lupus, I don't really talk to her much (and when we do - its never about that)... other than her - I don't talk to anyone else with the condition. I am newly diagnosed too. Do you have sensitivity to light? It's not something I've seen anyone mention here but I find bright lights SO painful - I wear sunglasses even on darker days. I guess for me, its having people understand the fatigue that goes along with having lupus. I just have no "get up and go" - often. My husband said that I wasn't the greatest housekeeper the other day and it made me SO angry... I run my own business and I'm tired at the end of the day. I have resorted to buying a lot of premade meals... lol... he quite likes some of them!!!
How do you (or anyone else) cope with work and housework etc - I was actually talking about getting a housekeeper today but not sure!!!
Ooops, I never, ever take my temp. I have never been asked to.
I do know that with lupus patients especially anything over 99.6 that doesn't have an "obvious" cause will suggest an infection of inflammatory thing going on.
Some lupus patients can also have a normal temp of betwen 96 and 97 anyway, and what is normal for some people can be a fever for others. Usually a low grade fever is not dangerous, but can cause your pulse to rise and this reduces your stamina.
I was always told that an hour or two nap in the afternoon was a really good thing. In all fairness though, how many of us can do this ? Not many I am sure. If you can manage it though, sit and be quiet when you can even for a 10 minute break. Hard I know, I am always thinking of what needs doing and what I need to do tomorrow. Just trying to relax your body can do you good.