problems with new kidney

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applesk82
Regular Member


Date Joined Oct 2003
Total Posts : 262
   Posted 4/20/2007 9:54 PM (GMT -7)   
hey everyone, i havent been on for a bit, i've been busy having to drive to and from atlanta, in less then two weeks i have been there about 4 times and we live about two hours away.  my creatinine has gone up and the docs did a biopsy because they were worried that i 1) could be having "mild" rejection (doc's term not mine) 2) have some scarring on the new kidney or 3) the lupus could possibly be attacking the new kidney.  So i had the biopsy done on tuesday (i was at the clinic on monday too) and the doc called me back and said the preliminary report says no rejection (yay) and not a significant amount of scarring for my labs to be wacky, but that the did see some stuff (i forgot what see called it) that they dont understand and need to wait for the final report before they know exactly what they were looking at.  so she said it may be that the lupus is attacking the kidney, but not the way it did before, whatever that means, or that (as i explained to them on monday) it could be that my two original kidneys have finally stopped working and i have a new base line.  let me tell you, when i told the two docs that were sitting in the room with me that i thought it was, i have never seen jaws hit the floor so quickly, they told me that they never even considered that. for those who dont know i had my kidney transplant my kidneys actually stopped working, i never went on dialysis before the transplant. so now i have another appointment on the 26th so that the doc can go over the final report with me.  you know this really sucks, i have 3 kidneys and only one is working, but what can you do, i guess i still have one that works (bright side).  i'll you guys know what happens.....stay tuned.
Hugs and prayers,
~Suzanne~
 
diagnosed in May '95 with lupus, nephritis, hypertension,hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 4/21/2007 7:57 AM (GMT -7)   
Bless your heart Suzanne (((( hugs ))))) sounds like you have been busy! It sounds like a frustrating situation you are in right now, I hope the doctors get things sorted out soon! I pray lupus is not attacking your new kidney (that would suck!) and that your body doesn't start rejecting it. Please keep us updated on how you are doing. You are in my thoughts and prayers.
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (gluten sensitivity)2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds:Imuran, Plaquenil, Flexeril, Sulindac, Levoxyl, Folic Acid and magic mouthwash (as needed)


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 4/21/2007 9:06 AM (GMT -7)   
Suzanne, you're going through a real scary time! I'm with Stacie in praying that your lupus won't attack your new kidney. If that happened, would you go on dialisis? I just can't imagine how you must feel. Please do keep us updated. Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 4/21/2007 2:05 PM (GMT -7)   
Suzanne,
   (((Hugs))) This must be so frightening for you to go through. I'm with the others praying lupus doesn't attack your new kidney and your body doesn't reject it as well. Please update us when you can and take care.
                                                                  Babs
 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 4/22/2007 7:16 AM (GMT -7)   
Suzanne, I'm really sorry to hear about the kidney problems. I can't imagine how worrisome this must be for you. I'll be praying for you. Thanks for the update and please keep us posted when you are able to.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



kellychang1982
New Member


Date Joined May 2007
Total Posts : 9
   Posted 5/2/2007 4:19 AM (GMT -7)   
hi,
 
this is kelly..i also have the lupus nephritis..my kidney now start to deteroriate..
 
my creatine now is 1.7mg/dl..which is abnormal high now..
 
 
n my email add also as above..
 
please contact me..thank

applesk82
Regular Member


Date Joined Oct 2003
Total Posts : 262
   Posted 5/5/2007 12:49 PM (GMT -7)   
so i got my biopsy report back last week, and its not good, the lupus is back and its in the new kidney. doc said that only about 10% of transplant patients with lupus actually have the lupus return, and of course i am one of the lucky 10%, so needless to say this sucks, they upped my prednisone from 5 mg to 60 mg and we all know how fun that is, and they added another 500mg of cellcept, not to happy with the this fact, i thought that maybe i would get to be one of the lucky ones. and lori thanks for your support, i want you to know that i had my pity party last week and i do feel better now, thanks for all your encouragement and i was glad i had someone to talk to that has some understanding of what its like, cuz i love my family and friends but telling me that all i have to do is take more pills is not the best way to approach me. so thanks a bunch.
Hugs and prayers,
~Suzanne~
 
diagnosed in May '95 with lupus, nephritis, hypertension,hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 5/5/2007 5:24 PM (GMT -7)   
Hi Suzanne:

I'm so so sorry to hear that the lupus is attacking your new kidney. It's a shame that you're in that rare 10% and will now have troubles. I'll keep you in my prayers, I hope that they can get things under control real soon.

(((((hugs))))) I know that 60mg of pred is a real pain to deal with. I hope that you'll be able to cut back on it real quick. Don't give up hope, keep at your doctors and let them know that you need them to find a treatment plan for you. Wishing you the best, and please keep us updated on how you're doing.

Take care,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.


loriWBL
Regular Member


Date Joined Dec 2004
Total Posts : 121
   Posted 5/5/2007 6:43 PM (GMT -7)   
Hey Suzanne,
You're still in my prayers and I think of you often. Take care,
Lori

kellychang1982
New Member


Date Joined May 2007
Total Posts : 9
   Posted 5/5/2007 10:41 PM (GMT -7)   

hi suzanne...

i hope that your kidney will be alright...

and of course, i sure will pray for you...

btw, i am still able to work as full time teacher now...

May god bless you, take care...

kelly

yeah   yeah

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 5/6/2007 5:20 AM (GMT -7)   
Suzanne, I'm so sorry the lupus has affected your new kidney. I pray that the increase in your meds helps. You will continue to be in my prayers.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/6/2007 4:15 PM (GMT -7)   
I am so sorry you are in the 10% and you have to take more meds. I have grow so tired of pills and injections. If I could I would walk away from treatment but not being treated is actually worse than the pills and such so I am stuck. I will pray for you. Blessed be.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD

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