IV fluid update

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Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 4/21/2007 8:06 PM (GMT -7)   
Hi Everyone:

Just wanted to drop a quick update on how my IV hydration is going. I'm hanging a 500cc IV bag of fluid every 8 hours here at home. I have an IV pole and a pump to run the fluids in. I flush my line and put heparin when I disconnect it. I'm feeling a bit better staying hydrated now. I'm eating a bit more food too, I also believe my bowel infection is finally going away.

I'm very very tired though, and have been sleeping a lot. I mean a huge amount of time, I'm thinking my anemia must be really bad again. I may need another blood transfusion, I see my internist on the 30th of the month so I'll see what my labs look like then. I was able to speak with a gentlemen, who has MDS and he went over with whats has happened with him. It was kinda nice to talk to someone who has this, who knows what's happening, and how scared I am about my bone marrow totally failing. He was able to provide some good advice to me.

As some of you are aware, my daughter Nikita has been home all week from school. I took her back to the doctor yesterday. Her doctor ordered an emergency CT scan, the radiologist came out and told me there wasn't a bleed or a tumor that he could see. He didn't feel that he was the expert to compare her previous CT's from when she had the lesion and required surgery. He would send them to Walter Reed and let the "experts" his words look at them. So, Monday I'll call to make an appt to see the neurosurgeon. Nikita said that the pain was down to a 3 out of 10 instead of the 8 out of 10. I feel a bit better today about her, she seemed a bit perkier today and there was a smile on her face. Just wanted to let you know, we're hanging in there.

Love you all,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.


CityGirl
Regular Member


Date Joined Dec 2006
Total Posts : 239
   Posted 4/21/2007 8:25 PM (GMT -7)   
I think this is such a positive post! I am so happy to read this. I am glad your daughter is feeling better. I will send good thoughts that the final reading of her results is good.

I am also very happy you were able to discuss your fears and questions with somebody that really understands how you feel. That is so important I think. I am happy you found a new friend.

Hydration can really do wonders for our bodies. I am glad you are eating more and feel your infection is going away. What a blessing you are able to get your hydration from home. Sleep when you need to. Sometimes that is our bodies way of healing. If your infection is going away perhaps you just need more sleep to totally ward it off. I will be thinking of you on the 30th when you see your internist. :)

City Girl <--- the Sat. night board hog who is patiently waiting for her friends that are driving across the country to arrive!

cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 4/21/2007 8:51 PM (GMT -7)   
Hi Barb--
Good to hear you are doing better and sounds good meeting someone who understands what you are going through Great news about your daughter feeling better. It's good you've got such good medical care near you. Bowel infections can really wear you out, hopefully that is the cause of your tiredness, and not the anemia. My best wishes and prayers are with you, Barb.
Marji

"...brain, what is brain?"
--Kara, one of the "givers of pain and delight", aka woman of Sigma Draconis VI, "Spock's Brain" episode 56 season 3 of Star Trek--I'm not a trekkie but this one was funny!


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 4/21/2007 9:01 PM (GMT -7)   
Barb,
  I'm glad to hear you are eating a bit better and you feel the bowel infection is going away finally. It's good to hear the IV fluids are going well. Maybe on the 30th you will get a blood transfusion to help give you a little energy boost.
  I hope the news will be good when Walter Reed takes a look at nikita's CT's. I know she has been very sick and you are so worried about her...((Hugs)).
  I'm also glad you have found someone to talk to that has MDS and can give you some good advice. I'm sure that helps you understand what to expect and hopefully how to cope a bit better.
  Please update us when you can and take care. Keep resting and sleep as much as you can. You and nikita are in my thoughts and prayers.
                                                    Love you, Babs
 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 4/22/2007 6:37 AM (GMT -7)   
Barb, thanks so much for the update. I'm so glad you are getting IV fluids and I hope it continues to help some. It's also good that you are able to eat a little more. With everything your body has been going through it makes sense that you would be exhuasted, especially if you are really anemic.

I'm glad you found someone to talk to who has MDS - there's nothing like talking to someone who's been there and is going through it. I think sometimes that helps more than anything.

I'll be praying that when the people at Walter Reed look at Nikita's CT, that they will say it looks fine. It's good that you are seeing the neurosurgeon, especially with her history. I'm glad she's perking up and starting to feel better though.

You and your family continue to be in my prayers.

Love and hugs
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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omega
Veteran Member


Date Joined Jan 2007
Total Posts : 607
   Posted 4/22/2007 10:29 AM (GMT -7)   
Barb
I am happy for you. And hope that when Walter Reed's comment on the CT will be good too.

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 4/23/2007 7:07 PM (GMT -7)   
Hi City Girl, Marji, Babs, Hippi, and Omega:

Thanks all for your posts. It's always nice to hear from you all. You brighten my day and make me feel most loved.

Today has been a rough day for me. I've had a lot of pain, and lots of vomiting today. I'm not sure why, but it's just one of them days. Then this eveing I had some sad news. My dear friend Vicki, who helps me out so much, has found out that she has cervical cancer. So that's now Vicki, her daughter Jesse, and Vicki's Dad, who all have cancer. Please say a prayer for this family, I don't know why bad things happen in life but it does. It certainly puts life into perspective doesn't it.

Anyway, I hope you all are doing well tonight and that you can sleep well and rest well.

Love you all,

Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 4/24/2007 7:16 AM (GMT -7)   
(((((hugs))))) Barb. I'm really sorry to hear about how rough your day was yesterday. The frequent vomitimg has to be miserable and exhausting. That's such sad news about your friend and her family - I can't understand why these kinds of things happen.

I hope you were able to get some rest last night and that today is at least a little brighter. You are aways in my prayers.

Love,
hippi

I also wanted to ask how Nikita is feeling.  I'm hoping her headaches are continuing to get better.


Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 4/24/2007 8:43 AM (GMT -7)   
Barb, you are such a brave person, and even when you feel so terribly bad, always have something positive and hopeful to say. You have such a burden with your sick Nikita and your friends with cancer, not to mention your own serious health problems. I worry so much about you and want you to know that you are in my prayers. Keep us informed.

Love, Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin


omega
Veteran Member


Date Joined Jan 2007
Total Posts : 607
   Posted 4/24/2007 5:49 PM (GMT -7)   
Barb,
I hope your vomiting is getting better. I am so sorry to hear about your friend Vicki. It is discouraging when hearing a dear friend has cancer. I have no clue why, but cancer seems to be so common to people. My dear friend's mom died of cancer, and her stepmom now also has the last stage of colon cancer. Sometimes I just do not understand why. Perhaps this is life.

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 4/24/2007 6:47 PM (GMT -7)   
Hi Omega:

I'm sorry to hear about your friends Mom and her Stepmom. Your right cancer does seem very common among people. I don't understand why in life this happen, I'll certainly be asking God when I meet up with him why. I truly am struggling with my cancer, then to know so many now who have it in addition to me. It just doesn't make sense.

I just want to know "why" me, as if having lupus and fibro wasn't enough, I needed an additional problem. I'm so very close to giving up, I can't even begin to explain it. My daughter asked me tonight, "Mom, how old were you when you had me", I said 28 and she said "do you think you'll still be alive when you're 63". It hurt to hear her say that to me, I know she didn't know it. It's a shame I've got to try to reassuare my 14 yr that Mom will still be alive tomorrow. I mean I know each day we all are a day closer to death, but when you've got something that will become terminal, it becomes so much more real. I'm a person who likes to have a plan, and know when things are gonna happen. This "unknown" but I know it's coming is driving me nuts.

Okay, enough of this, I'm sorry I'm venting again. I meant to just say thank you and that I was sorry about your friend. Thanks for being there.

Love,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 4/24/2007 7:01 PM (GMT -7)   
(((Barb))) I'm so sorry. It is so hard when our children have to see what we go through. My son doesn't really say anything but I can tell that when I'm sick it really concerns him and I hate that he has to deal with that. Keeping you in my thoughts and prayers.
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


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omega
Veteran Member


Date Joined Jan 2007
Total Posts : 607
   Posted 4/24/2007 7:33 PM (GMT -7)   
Barb
I think one day when we all see God, we would ask the question too.
Sometimes things just can't be explained, and there is no "model" answer for it. Yes. The "unknown" is a very frustrating state. Admittedly, I learned a lot from you. I can't imagine how much you've been through, one after another, but you still have courage to care for other people.

eviltang
Regular Member


Date Joined Jan 2007
Total Posts : 64
   Posted 4/25/2007 9:17 AM (GMT -7)   

Barb,

I was so sad to hear that you are having a bad day. I understand what it is like to get so much dumped on you and think why me. The way I look at it is I am glad it is me and not one of my kids or my other loved ones. God only gives us what we can handle and he knows which of us can handle just a little more. When you think you can not take any more remember that there are alot of people here to help hold you up! yeah

 

I hope today is a better day for you! tongue

Christy


DX: Sarcoidosis, Hashimoto Thyroiditis, Renal Insufficiency, Adrenal Insufficiency, Degenerative Disc Disease, Bone Spurs, Sleep Apnea, GERD, IBS, Ice Pick Migraines, Hiatal Hernia, Hypoglycemia, Arthritis
 
RX: Effexor, Diltiazem, Flonase, ASA, Hydrochlothiazide, Tramadol, Actonel, Prevacid, Levoxel, Tricor, Gabapentin, O2, Cortef, Lodine

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