For those of you that work full time, have any of you taken disability (time off) due to your Lupus? If so, what amount of time has the Dr allotted?
I've taken very few days off per year b/c of my illness, but I am not at a point where I feel I may break due to increased stress and "flares".In the past 4 months, I've been sick much more than usual.
When I see my Rheum this wed, I was going to ask for a week or 2 off to rest. Is this unreasonable?!
Do you all work through your stress and flares? Am I being a wimp?
I'm 40 yrs old and have worked since I was 18.
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Hi Hip.......thanks so much for your reply and input. Just knowing how helpful you and others are is very comforting.
My GP is very cool so she will get me some time off. The Rheum was just nervous the insurance would wonder why I only wanted two weeks off and may question me. Not sure, but least of my worries!
As for the Plaq. I PRAY I don't get the stomach upsets. I live with stomach pains all the time and cannot imagine having more...ugh! I will take it with food..thanks for the tip I would be thrilled if it took away my fatigue. I hope it does kick in within 2 months like yours did.
I'm going to go see an ND to maybe see if I can do some natural stuff also. Have you ever done that?
I hope the Plaq works for you! Your story reminds me a lot of myself. I also "pushed through" and went to work sick. I was an Administrative Assistant for 7 men and I always felt I had to prove myself. I left work 18 months ago when my Doctor told me I needed to medically retire (I am 39 years old). Do not feel guilty for taking time off, this is the best thing you can do for yourself right now. Stress can bring on flares and actually make this disease worse. Take care of yourself and rest! You are in my thoughts and prayers.
Hi Steph, thanks for the encouragment. Nice to know I am not alone. I'm a senior buyer for a large firm and the stress of this job is overwhelming b/c of time pressures and a constant flow of people at me all day. When I went to work yesterday to get some papers and help me boss prepare for my 4 weeks off, my boss responded with such coldness. He did not wish me luck or tell me to relax and get well, he responded with "Why do u need so much time off, just to adjust to meds. Doesn't make sense"
Ahhhhhhhhhhhhhhhhhhhhhh I wanted to punch him right in his face. What a jerk! No compassion. He doesn't take into accont I've been there sick and have been an outstanding employee. All he was worried about was having to now take over my work load. So today is my first official day off to heal and I am overwhelmed with guilt. This is no way to rest.
Oh rant over....haha!
That is terrible what your boss did!!! I went through something very similar. I tried to go back part-time after being off for the first few months and I was rewarded for my efforts by the following: I was moved to a different part of the building away from everyone (My original office was "Grand Central Station", my hours were reduced to practically nil and all of my benefits were taken away. It was at that moment I realized that work is not about "who" you are but "what" you do. I always looked at my job as being "who" I was. Without it, I was no one, my identity was gone. i mean who was going to pat me on the back and give the "aata-girl". For some reason I was sold a bad bag of goods that says that if you are not always at the top of your game and stressing yourself out to get it all done you are somehow less than a good, responsible person. This is so not true. I am not trying to be dramatic but you are taking time off to fight for your life! You are showing signs of a flare and if you don't take care of yourself this could do some serious damage to organs. If you continue to show up sick and push through you could end up in a real mess like I have. At this point, I can never return to work. I have too much damage in my liver, kidneys and joints. The amount of meds that I would have to take in order to function in the workplace would be a tremendous strain on my already compromised system. And guess what? That job I was so worried about...............I have not seen or spoken to any of them in almost a year. I am a wife and mother of 2 wonderful children (18 and 12) and I cannot tell you how many days I would come home from work so tired all I could do was collapse into bed. There was literally nothing left of me for them. It all went to that "important" job and my bosses.
I know I am ranting now but I want you to get the picture that YOU are important! YOU need to take care of yourself! YOU deserve a chance at life without organ damage! YOU deserve time to adjust to medication! People have no idea about this disease and how crummy it can make you feel. Please don't feel guilty, it only adds more stress.
How are you doing? Are you resting like you should? How is it going with the new meds? I hope you are feeling better. Just letting you know you are in my thoughts and prayers.