Eye Problems & Lupus anyone??

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lion00
Regular Member


Date Joined Aug 2006
Total Posts : 334
   Posted 4/23/2007 12:27 PM (GMT -7)   
Hi, I recently posted regarding my headaches. The headache was still lingering on today and I started to have a funny blurry effect in my right eye. I decided to see the optician today and he gave me an eye exam. He has asked me to make an appt with my doctor on Friday and he would write to him before then. He thinks I may have something wrong with my optical nerve. I don't know what, has anyone else had problems with their eyes? And does Lupus cause eye problems. I'm a little worried about this one. My appt is on Friday at 10.30am and till then I'll just worry! Thanks if you can give me any info.
Chillblain Pattern LE, tachycardia, unknown bowel problems, migraines.
One gorgeous daughter age 5 after many many IVF attempts


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2564
   Posted 4/23/2007 1:31 PM (GMT -7)   
Hi Lion, Yes lupus can cause eye problems. So can sjogren's, rheumatoid arthritis, and ms. I have read that they can all cause problems with the optic nerve, but don't know enough to advise you. Four days is a long time to wait, and I hope you get good news. Rather than going to an optician, I'd look for a good opthalmologist, who is an MD who specializes in diseases of the eyes. Let me know what you find out.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin


ericsmom
Veteran Member


Date Joined Jan 2007
Total Posts : 1042
   Posted 4/23/2007 1:41 PM (GMT -7)   
Lion,
 
Good question!!  I am also having major probs wtih my both eyes.
I have to have artificial lens' put in them, I am on a waiting list right now, but the eye doc said he cant guarantee i wont lose sight in both eyes sad    When I asked if it was the plaquinal or lupus, he just shrugged his shoulders and said..mmmm probably the diabetes...but I havent been a diabetic for long, PLUS I am very very disciplined with my diet, so I dont think it is the diabetes
 
I will keep you in my prayers Lion, and hope you get better news than I did 
 
Diane
A/Fib, diagnosed Aug, 1997, R/A diagnosed in Sept. 1998, Pericarditis and Lupus in Dec, 2003, Diabetes, diagnosed march, 2004
 
sotalol, digoxin, coumidin, plaquenil, prednisone, metformin, diamacron, wellbutrin,fenofibrate


lion00
Regular Member


Date Joined Aug 2006
Total Posts : 334
   Posted 4/23/2007 2:05 PM (GMT -7)   
Thanks Patty, Unfortunately I just have to wait to see the doctor because it will be him that needs to refer me elsewhere. I just thought the opticians was the easiest and quickest way to check what was going on.
Diane, I'm so sorry your having trouble with your eyes also. This sounds like an awful position to be in. The first thing my optician asked was if I was diabetic. I'm not but he said diabetes can cause bad eye problems. Once I see the doctor on Friday then I'm sure I'll have to wait again for a referral to a specialist. More waiting. But at least I was right for going. It just shows you that you know your own body better than anybody. I knew the headache wasn't quite right and my eye just doesn't "feel" right. I can't explan it properly though. Fingers crossed for you too Diane. I really hope they can help you. x x
Chillblain Pattern LE, tachycardia, unknown bowel problems, migraines.
One gorgeous daughter age 5 after many many IVF attempts


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2827
   Posted 4/23/2007 7:50 PM (GMT -7)   
Hi Lion:

I was just wondering how your eyes and headache are today. I hope that you're feeling a bit better and that you'll get some solution to the problem soon. Are you still taking prednisone? I've been taking high doses of prednisone for 6 yrs now. I now am sporting in both eyes cateracts, at some point they're going to have to be removed. I've also got glaucoma and my optic nerve is damaged from my glaucoma. I hope that your doctor is able to find out whats going on with your optic nerve.

I'm wishing you the best and many prayers coming your way. If I can answer any ?'s about what I've done to my eyes for treatments, just let me know.

Take care,

Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2564
   Posted 4/24/2007 10:05 AM (GMT -7)   
Lion, the doctor I see for my eyes is a neuroopthalmologist, so he is both a neurologist and an opthalmologist. I was referred to him because of double vision that has nothing to do with lupus. The last time I saw him, which was a couple of weeks ago, we talked at length about lupus, sjogren's, and RA and how they can cause eye problems. My eye problems are different from yours in that I get frequent eye infections. He told me that the sjogren's makes my eyes "dry as a bone" and that the lupus is attacking my eyes, so I had an infection plus inflamation. He prescribed two eye drops. One is an antibiotic drop and the other steroid drops.

What I am learning is that lupus can attack any part of us in different ways. The challenge for all of us is getting a correct diagnosis and then proper treatment. It's not as easy as one would think, and there isn't anyone in this forum that doesn't know that!
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1942
   Posted 4/24/2007 9:02 PM (GMT -7)   
Hi lion-
I just saw the eye doc for pain in the eye socket and occasional blurriness. I have sjogrens and in a gallium scan my lacrimal glands showed alot of increased uptake meaning severe inflammation. They told me my lacrimal glands, like my salivary glands, are dying due to autoimmune disease. I see and eye surgeon for my eye doc and he's pretty sure my blurriness is due to dry eyes and I didn't belive him until he started me on restasis eye drops and that instantly relieved the pain and headache in my eye socket and helps the blurriness once it soaks in good. I guess it's an antiinflammatory cyclosporine and it seems to help my sinuses some too, relieving my headache since my sinuses are also a target of chronic inflammation. So far, they say my optic nerve is ok, but some meds I've been on have cause me problems with my optic nerve in the past, double vision and MS like problems. I'm glad you are going to see an MD or such doctor for your eyes and I hope that you don't have optic nerve problems. I think there was something else going on with my eyes related to plaquenil, he was going to write a letter to my rheumie about something, but wouldn't tell me. He's not so great in that regard, though I would trust him as a surgeon. Oh and like patty said, you can get an infection really easy, especially if your eyes are dry and/or inflamed and that will add to the problem. I also have diabetes and a lot of neuropathy that is likely related, but my eyes, even with the sjogren's are doing good. They always want to blame diabetes and be warned because my doc didn't have a clue that sjogrens presents a cancer risk, I was very concerned about cancer in my lacrimal glands or eyes due to the gallium scan results, but he said all was well.
Let us know, and I hope you get a good doc first time out!
Marji

"...brain, what is brain?"
--Kara, one of the "givers of pain and delight", aka woman of Sigma Draconis VI, "Spock's Brain" episode 56 season 3 of Star Trek--I'm not a trekkie but this one was funny!


lion00
Regular Member


Date Joined Aug 2006
Total Posts : 334
   Posted 4/25/2007 2:23 PM (GMT -7)   
Hi, thanks everyone for your replies. The thing with this is I don't have dry eyes, never have had. I don't have an infection either (no symptoms of one anyway). Still have the headache, nearly a week now. It's just lingering on, a bit of a dull ache. Wish Friday morning was here cos this waiting is awful It's busy week, tomorrow I see the hospital for my bowel and Friday the doc for my eyes. At least neither are far away, only 10-15 mins drive for both. Will post again once I've been, or if I think of any questions to ask the doc. Thanks x x
Chillblain Pattern LE, tachycardia, unknown bowel problems, migraines.
One gorgeous daughter age 5 after many many IVF attempts


Candii
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 4/25/2007 4:14 PM (GMT -7)   
lion,

{{{{hugs}}}} I hope your eyes are ok and get better.

Kitty38
Polycystic Ovarian Syndrome 1992, Restless leg syndrome 1998, SVT tachycardia/Arrythmia '06, SLE '07, Raynauds '07....Plaquenil, Hydrochlorothyazide, Cardizem, NorQD, Naproxen, Folic Acid (for mouth/nose sores), Multivitamin, Flonase.

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