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dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 4/24/2007 6:57 PM (GMT -7)   
Does anyone else get really bad back pain? I haven't had really bad back pain since last year around this time. This evening, it just hit me out of nowhere, from my shoulders all the way down to my behind. I can feel it deep all the way to the bones and if you press on my back on any area, it feels bruised. I haven't felt this much pain in a long time... it's basically taking the breath out of me. I took a Naproxen and I put a few of the Lidoderm patches where it hurts the most (very low part of my back) since I can't put more than 3 at a time. I don't know what else I can do. I would take a muscle relaxer but I don't trust taking them this late when I got to get up for work in the AM, they make me too groggy the next morning. I'm sorry to whine sad
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


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cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 4/24/2007 7:48 PM (GMT -7)   

Hi--

I'm sorry you're hurting.  Back pain is bad because your back is basically half your body!  Have you had any mris or cat scans done?  You may have some osteoarthritis or something like that.  I take ultram and it handles the pain pretty well, and I was on fentanyl, so it works pretty good and is nonaddicting.  I've taken naproxyn before and it works pretty good on pain, as does motrin, especially if it's muscle related, so if it didn't work, maybe something more is happening.  I also have fibro and I don't know where all the pressure points are but my fibro I've been told is because I don't sleep well due to the pain in my back.  Muscle relaxers, my neurosurgeon says, can be bad or good, but he says that if your back is crooked, they can make your back go out of alignement more, and its possible to hurt your back if you don't stay flat the next day.  Since this is seldom possible, I don't take them much.  I hope you can get your doc to check into this and get you some pain relief.  I can fully sympathize and ((((hugs)))) and hope you feel better soon.


Marji

"...brain, what is brain?"
--Kara, one of the "givers of pain and delight", aka woman of Sigma Draconis VI, "Spock's Brain" episode 56 season 3 of Star Trek--I'm not a trekkie but this one was funny!


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 4/24/2007 7:59 PM (GMT -7)   
Des I'm so sorry you are hurting so bad. I get bad pain like that that comes on suddenly if the weather changes suddenly. I take pain meds and use a heating pad. I'm not sure what causes it. Can you take half of a muscle relaxer? I hope the patches are giving you some releif. Maybe soak in a hot tub?
 
I hope you feel better soon
Hugs
carol
God Bless
Carol
 
 Newly DX's Lupus.Possible CREST,COPD, high PB xanax,triam , Opana ER for pain, Evista for osteo,. oxygen Plaquanil400mil, . effexor. spiriva, xopenex.
 
Come ye, all that are weary and heavy laden, and I will give you rest!
 
 


sandspoker
Regular Member


Date Joined Apr 2007
Total Posts : 104
   Posted 4/25/2007 6:59 AM (GMT -7)   
Morning Des, I hope you're feeling better today...
I too suffer from back pain on a daily basis - yesterday was a really bad day for me too - I could hardly get out of bed.  I suffer from Pleurisy but my doctor also mentioned that I may have arthiris in my rib cage too.  I can't remember the last time I took a deep breath...  My doctor gives me pain meds (percocet) but my g/f, who is a nurse suggested another OTC drug... I can't remember the name right now but I just called her to find out (had to leave a message).  She told me that her doctor suggested it to her and it is a long acting drug that doesn't make you groggy.  I'll post the name of it later when she returns my call.
I made myself a rice bag too.  I put a bunch of rice in a pillow case - you throw it in the microwave to heat it up.  It's great for the aches and pains and there is no cord to deal with!!!  The other nice thing about it is that you can form it around any area that is achy...  If a cold pack is required, you can also throw this bag in the freezer so that the rice freezes too!  I haven't used it cold but if that's your preference...
Let us know how your feeling today!!!

sandspoker
Regular Member


Date Joined Apr 2007
Total Posts : 104
   Posted 4/25/2007 11:15 AM (GMT -7)   
Hi Des - the name of that medication I was refering to is Norflex.  Now, this is the Canadian name but if you google it - there should be a US equivelant... hope this helps!!!
 
Take good care of yourself!!!

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 4/25/2007 11:22 AM (GMT -7)   
Des, the back pain sounds terrible. My back is actually one of the few places where I don't usually get pain, but when I do get back pain it's miserable. My son who has arthritis often gets really bad back pain and I know it can bring him to tears. Heat seems to work well and like you said, muscle relaxers can help too.

I hope you were able to get some relief from your pain and that you were able to get some sleep. Let us know how you are when you get a chance.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Co-Moderator: Lupus and CFS Forums



Victoria72
Regular Member


Date Joined Oct 2006
Total Posts : 221
   Posted 4/25/2007 12:57 PM (GMT -7)   
Hi Des. Yes, back pain is part of my life, too. I use heating pads, rice packs like Sandspoker, and mild pain medication with a muscle relaxer. It hits me several times a year and lasts about three to four days. I have degenerative disc disease, so I know it will only get worse as I get older (I am 35). I bring my heating pad to work with me and sit on it all day on low, and only take the muscle relaxers and pain medications at night. Some bouts of it are worse than others, so I have to adjust everything accordingly.

I hope that yours gets better really soon and you are back to yourself quickly.

Blessings!
 
Victoria
 
Mother of four, full time Systems Analyst
 
Sjogrens, Crohns, suspected Lupus, Pancreatitis Dec. 2005
 
Meds:  Medrol injections; Darvocet, starting Plaquenil in Feb.


goldenwings
Regular Member


Date Joined Apr 2007
Total Posts : 81
   Posted 4/25/2007 3:09 PM (GMT -7)   

Hiya,

Yes, I have really bad back pain. I have had it for years with the last episodes for about 3 months.  In the last 2 weeks it has really hit me hard though.  Going down into my bottom, it's really horrid.

I had x rays and they have come back with the results now.  I have a diagnosis of :- lumbosacral spondylosis, thoracic spondylosis.  Also my sacroiliac joints are out of sync.  I have osteoporosis because I have been taking steroids daily - in huge amounts at times - for 30+ years, and nobody bothered to put me on any treatments for bone thinning - doh !!    I also have osteoarthritis, and thinning of the whole of the spine.  Oh and severe swelling in the surrounding tissue.

I started physio last week, but don't know if this will improve things for me.  l hope it does because back pain is the most horrid thing isn't it ?  So debilitating.
 
Take care
 
goldenwings  yeah    Maybe this will be me soon if the treatment works hee hee !!

Post Edited (goldenwings) : 4/26/2007 12:11:19 PM (GMT-6)


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 4/25/2007 7:17 PM (GMT -7)   
Thanks Marji, carol, sandspoker, hippi, Victoria, and goldenwings. I finally crawled myself out of bed. I didn't go to work today (I did try though). I'm feeling much better but my lower back is still a bit achy. I don't know where any of that came from. I did get an MRI of my lumbar spine last year when I had pain but it came back okay. I also had a xray of my cervical spine last year and there was significant degeneration and I was dx'd with cervical spondylosis (neck arthritis) but this time the majority of the pain was much lower. I know my first post sounds really pathetic and I'm sorry... I just couldn't over the pain. I did a search for back pain and lupus and it doesn't seem that its related so maybe it's something else. I'm so sorry that you guys get this too... it is a horrible thing.

Thank you everyone again for your posts... it means a lot.
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


http://www.healingwell.com/donate


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 4/25/2007 7:48 PM (GMT -7)   
Hi Des, I don't know if it is directly related to lupus but I wouldn't completely dismiss it either. I know steroids are used alot with lupus and boy they can sure do a number on your bones/back. Don't be sorry for your post. Heck it hurts if we don't understand who will? It may be time to get some more tests done. alot of things can change in a year. I'm glad you are feeling a bit better tonight though.
 
hugs
carol
God Bless
Carol
 
 Newly DX's Lupus.Possible CREST,COPD, high PB xanax,triam , Opana ER for pain, Evista for osteo,. oxygen Plaquanil400mil, . effexor. spiriva, xopenex.
 
Come ye, all that are weary and heavy laden, and I will give you rest!
 
 


lion00
Regular Member


Date Joined Aug 2006
Total Posts : 334
   Posted 4/26/2007 1:46 AM (GMT -7)   
Hi Des, I suffer from really bad back pain also. I tried everything for it and most meds don't touch it at all. I thought it was all part of the lupus at first. But I have since learned that it is from my bowel problems. Do you have any problems with your bowel at all? Just a thought. Hope you get some relief soon, back pain is not nice at all. Take care x x
Chillblain Pattern LE, tachycardia, unknown bowel problems, migraines.
One gorgeous daughter age 5 after many many IVF attempts


mybodyhatesme
Regular Member


Date Joined May 2006
Total Posts : 149
   Posted 4/27/2007 5:08 AM (GMT -7)   
i am sorry to hear you are having back pain..   i started having horrible back pain in february that is just now starting to get better. vicodin and the heating pag, along with begging for gentle backrubs, is all i could do to manage it.  for me, the other thing that made the biggest prevention of pain/stiffness is to move around - just the normal up and down from daily life was something i couldn't do, but after a while i learned that after moving around a little more each day, that it helped a lot after a while.  sorry i don't have more advice for you.  i hope you get some relief soon!
jessica, 25
lupus (or something like it)
ulcerative colitis,bone loss, arthralgia,ranaud's, random rashes/hives, tmj, livedo reticularis, blood clots in fingers, blistering on top of hands, photosensitivity, pink face, migraines, fatigue, eye pain...i'm sure i'm forgetting something (anxiety, major brain fog) 
 


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 4/27/2007 5:36 AM (GMT -7)   
I am sorry that your back is hurting so badly. I am lucky that my back doesn't hurt. I hurt everywhere else so I am very lucky. I hope that you can get some relief from the pain.  The only thing I can to think to suggest is heat. I know it helps me when I am hurting really badly.
 
Good luck, hopefully it eases up for you soon.
 
Connie smurf
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed.


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 4/27/2007 5:42 AM (GMT -7)   
Thanks lion, carol, jessica, and connie. Yes, I am doing a little better. The pain is still there but thank goodness its not screaming anymore. I stayed home on Wed and Thur and I am back to work today so I am hoping that it gets better little by little like it has been. I did use my heating pad and it helped lots.
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


http://www.healingwell.com/donate


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 4/27/2007 5:48 AM (GMT -7)   
Im glad you are getting some relief from your back pain. We were lucky enough to be able to buy a hot tub after my car accident and it has been a life saver. Because of my accident I am not able to straighten my left leg out and it hurts all the time. So we bought a hot tub and when I hurt I sit and soak in it and feel so much better when I get out. Heat is a life saver for me.

Hope you have a good weekend, with low pain.

Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed.


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 4/27/2007 1:08 PM (GMT -7)   
Hi Des,
  I'm sorry you have been having alot of terrible back pain...((Hugs)). Back pain is miserable!  It's good to hear it is a bit better with the heating pad. That usually helps me too or a good long soak in a hot tub of water. I do have to take muscle relaxers at times though.
  I hope this gets alot better for you soon. Take it easy at work and rest all you can. Please keep us updated. You are in my thoughts and prayers.
                                                                Babs
 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

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