Hi Murkywater, welcome to the group. I'm sorry you are going through this. I know what you mean about being very active. This disease really takes a lot of joy out of life. You have to really balance what you can and can't do. I started with having some problems with my thumb joints hurting. My rheumy was reluctant one day to giving me shots for some shoulder stiffness. That was a thurday. By tuesday I couldn't lift my arms to take off my t shirt. He said I could come in and get the shots. (it's a 4 hour drive) There was no way. So I increased my prednisone by 10 mg. and within about 12 hours I was much better. I hate steroids as far as hunger and mood swings but a lot of that goes away after a while. As for the plaquenil I have been on it for about 5 months. Like you I'm not sure how much it is doing. However many people here have told me it could take 6 months or more to feel the benefits. I havn't had any problems with my skin (knock wood) so far any way. But it seems like Lupus is like oklahoma If you don't like the weather give it 5 min.
I know I'm not being any help but I mostly just wanted to welcome you. Hopefully someone will come along soon that has the same symptoms and can be of assistance.
Again welcome to the group
Post Edited (okie) : 4/29/2007 2:58:12 PM (GMT-6)
Post Edited (jeannetterp) : 4/12/2010 3:08:52 PM (GMT-6)