Food trigger Lupus flare??

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Candii
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Total Posts : 135
   Posted 4/30/2007 8:09 PM (GMT -6)   
I have been reading other websites about Lupus. And I have read that Lupus flares can be caused by foods that you react to. My first thought was      nono NOOOOO not food. nono Food is one of the things that I love! Have you heard of this?????
 
 
Kitty38
Polycystic Ovarian Syndrome 1992, Restless leg syndrome 1998, SVT tachycardia/Arrythmia '06, SLE '07, Raynauds '07....Plaquenil, Hydrochlorothyazide, Cardizem, NorQD, Naproxen, Folic Acid (for mouth/nose sores), Multivitamin, Flonase.


dbab
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   Posted 4/30/2007 8:15 PM (GMT -6)   
Wow... I haven't heard of this. Actually the only reference to food that could be harmful to Lupies is alfalfa sprouts. Do you know what kind of foods that we should avoid?

Take Care
"Des"
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Candii
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   Posted 4/30/2007 8:26 PM (GMT -6)   
Alfalfa sprouts, red meat (high amounts), refined sugar, caffiene, grapefruit, licorice and low carb diet like Atkins diet. Low carb diets puts stress on the kidneys and encourages Lupus to attack the kidneys. That is what I have read so far.
 
Kitty38
Polycystic Ovarian Syndrome 1992, Restless leg syndrome 1998, SVT tachycardia/Arrythmia '06, SLE '07, Raynauds '07....Plaquenil, Hydrochlorothyazide, Cardizem, NorQD, Naproxen, Folic Acid (for mouth/nose sores), Multivitamin, Flonase.


dbab
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   Posted 4/30/2007 8:28 PM (GMT -6)   
Everything else is okay to go but I need sugar and caffeine. That is how I make a 40 hour work week... EEEK
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


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PattyLatty
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   Posted 4/30/2007 8:33 PM (GMT -6)   
Kitty, that's interesting. I can do without the red meat, but am addicted to sugar. I'll look this up myself. Thanks for the info. I'm with you, Des, sugar and caffeine are staples in my diet that I need to get rid of.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin


Lynnwood
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   Posted 4/30/2007 9:10 PM (GMT -6)   
The Lupus Book says we (lupians) often have reactions to legumes. Well-known legumes include alfalfa, clover, peas, beans, lentils, lupins (a grain) and peanuts.

I know that's true for me -- I definitely have reactions to legumes!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
OTC Daily: Multivitamin, Calcium, B-12, C, D; As Needed: Ibuprofen, Tylenol Sinus

Allergies: All Sulfa-based medications; Levofloxacin,  Levaquin

DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Mogaly
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Date Joined Apr 2007
Total Posts : 28
   Posted 5/1/2007 1:09 AM (GMT -6)   

Yes, I've definately heard AND experience this.

For me the following foods/food additives will cause my joints to flare-up (no matter how much of it I consume):

- MSG.  This one is the worst.
- Peppers (during my first major flare-up I found that all peppers caused my joints to swell.  This time around I'm not sure if they will cause my joints to swell because I haven't "tested" it, but I'm staying away from them just in case).

I generally try to follow an anti-inflammatory diet, just to be safe:

- No MSG whatsoever
- Limited sugar and caffeine
- Limited red meat
- Increased Omega 3s (flaxseed, salmon) as well as olive oil
- Limited bad fats
- No nightshade veggies (tomatoes, mushrooms, eggplant, peppers, potatoes).  They contain solanine which can cause pain/inflammation in some people.
- Increased wholegrains (higher fibre and nutrients than "white" stuff).
- Lots of colourful fruits and veggies (the brighter the colour, the better.  This is because phytomchemicals in the pigment have anti-inflammatory charateristics).
- Water!  Water!  Water!

Of course you don't have to follow an anti-inflammatory diet, but personally I feel better knowing I'm doing all I can to prevent further pain and discomfort.  It's not always fun, but to be honest, I've really grown to CRAVE these healthy foods now.  I used to always want chocolate or pizza or whatever else, but now (especially because I'm in the midst of a major flareup) I only want to consume foods/beverages that I know are helping my body to repair.

Oh!  one more thing.  I've also read that Lupus patients should avoid Echinacea because it boosts the Immune System.


 



~Jen~
25, currently backpacking SE Asia
Diagnosed with Lupus: 1999
Daily meds: 400mg Plaquenil, 150mg Voltaren, 15mg Prednisone

Post Edited (Mogaly) : 5/1/2007 12:15:00 AM (GMT-6)


sandspoker
Regular Member


Date Joined Apr 2007
Total Posts : 104
   Posted 5/5/2007 11:16 PM (GMT -6)   
Hey there - Most of us have also been diagnosed with Raynaud's too and my Rheumy told me to stay away from chocolate and coffee for that condition.

kellychang1982
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Date Joined May 2007
Total Posts : 9
   Posted 5/6/2007 5:33 AM (GMT -6)   
ok..
 
must avoid all the above...
 
thanks cool

SFnative82
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Date Joined Mar 2008
Total Posts : 39
   Posted 3/15/2008 3:10 AM (GMT -6)   
This is a pretty late response but I just wanted to say Mogaly was right especially with the nightshade veggies which also includes beans and SOY.

A lot of people say things with out real facts. I have been told by many people to be a vegetarian to deal with my flare ups and that is HORRIBLE advice. Eggs ,fish and some lean red meats are important. You should stay away from soy aka tofu and beans which is what a lot of vegetarians and vegans fall back on.

Mariepoms
Regular Member


Date Joined Oct 2007
Total Posts : 61
   Posted 3/15/2008 6:02 AM (GMT -6)   
I never heard that beans and soy fall into the nightshade family.I'm am a vegetarian and have been following a fairly strict anti-inflammatory diet since being diagnosed with Lupus in October.I need to look into that further cause i do eat beans regularly and have Soy milk/yogurt almost daily.Diets play HUGE role with Lupus flares and the inflammation associated with Lupus..American diets tend to be VERY pro-inflammatory.We really need to take a very close look at out diet and the list of food that was posted by Jen and really try and avoid them.Low protien diets are better for people with Autoimmune diseases.I also follow a fairly low protein and almost dairy free diet.I take LOTS of supplements too.One helps reduce inflammation...Turmeric capsules.I take two capsules daily.I also take Omega 3 capsules and several kinds of antioxidants.Grape seed,Vitamin C,green tea extract.

According to my reasearch,We all need to look at our diet and ask is this pro-inflammatory ? If it is...avoid is as much as possible.Meats and fish are supposed to be limited too.Not avoided but limited.We need to encorporate more fresh organic veggies.I use a juicer because it is impossible for me to eat all that i should in a day.The pulp left over from juicing is something i will literally force myself to eat (YUCK)and i freeze the rest and add it to something i may cook for dinner.I know the fiber is important so i always tell myself...eat to live not live to eat...lol

Overall our diet and lifestyle can contribute to more inflammation.We need to take a look at everything we do and eat and ask ourselves if this is helping us....

Fran

PattyLatty
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Date Joined Mar 2006
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   Posted 3/15/2008 6:57 AM (GMT -6)   
Any foods we are allergic to. Diet soda.
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, lunesta, multivitamin, calcium w vit D, fish oil, aspirin


Clayyo
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Date Joined Mar 2008
Total Posts : 7
   Posted 3/15/2008 4:54 PM (GMT -6)   
Hi, My name is Clay. I do not have lupus but my wife does. I am trying everything I can to learn about lupus to help her. Where can I get info about an anti-inflamatory diet?

jhmom
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Date Joined Oct 2004
Total Posts : 2244
   Posted 3/15/2008 8:17 PM (GMT -6)   
Hi Clay, I think it's great you are trying to learn all you can for your wife.

The best resource out there in my opinion is "The Lupus Book" by Daniel Wallace. You may be able to get it at your local library or if you order online it usually runs about $20. Daniel Wallace is a rheumy in CA, I have heard wonderful things about him and the book is great! It covers everything about lupus.

Lupus/anti-inflammatory diet has been a hot topic here lately. As you can see in this particular post, we have been discussing the benefits of eating right and avoiding certain foods, such as beans, nightshade veggies, alfalfa sprouts, etc. There are a lot of resources online, different sites say different things so it's up to you or your wife on what kind of foods to eat and those you need to avoid.

Take care
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


Lynnwood
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Date Joined May 2005
Total Posts : 5680
   Posted 3/15/2008 8:30 PM (GMT -6)   
There is a fairly decent description of an anti-inflammatory diet at

nutrition.about.com/od/dietsformedicaldisorders/a/antiinflamfood.htm.

I'm sure you can find lots more information by putting "anti-inflammatory diet" or "lupus diet" or even "arthritis diet" into you favorite search engine (google, yahoo, altavista, etc.)

Lynnwood, Co-Moderator: Lupus Forum

Dx Lupus since '00, new Dr wants to Dx Fibro instead....
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
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Clayyo
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Date Joined Mar 2008
Total Posts : 7
   Posted 3/16/2008 11:41 AM (GMT -6)   
Thanks for the info...Gosh their is so much information. Some say eat peppers, other say don't. Some say eat soy, some say don't. You really do have to have a medical degree to understand lupus. Are any of you on a diet that works for you?

Victoria72
Regular Member


Date Joined Oct 2006
Total Posts : 221
   Posted 3/16/2008 10:41 PM (GMT -6)   
JEN, that was an awesome list, thank you!

MARIE, is there any way you could email me a list of the supplements that you are taking? I already take a few of those, but I have got to incorporate a few more. I have found that I cannot take multivitamins, so I have to take supplements. I would so appreciate it, my email is in my profile.


Blessings,
 
Victoria
 
Mother of four, full time Systems Analyst
 
Crohns, Lupus (SLE) Jan 08, Pancreatitis Dec. 2005
 
Meds:  Medrol injections, Cellcept, Vicodin, Benadryl, Zyrtec


Butterflake
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Total Posts : 1394
   Posted 3/17/2008 8:31 AM (GMT -6)   

I found the following book interesting, although I don't adhere to the diet:  "The Lupus Recovery Diet, A Natural Approach to Autoimmune Disease That Really Works" by Jill Harrington.

Love, Butterflake


Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: CellCept plaquenil methotrexate prednisone prozac celebrex lisinopril actos lipitor nexeum seroquel arthritis tylenol multi vitamin C calcium/D flaxseed oil  PRN: ambien neurontin promethazine xanax
             Better living through chemistry :D    Donna
 


mygrljes
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Date Joined Mar 2008
Total Posts : 110
   Posted 3/18/2008 9:30 AM (GMT -6)   
Clay,

One of the things I've learned, and everyone else I'm sure, is that what may affect one person may not affect another. It's best to go about it the same way you start a baby on solid foods. Take one known trigger food at a time and see how she reacts to it. I keep a list on my fridge so that I, and my husband, don't forget. (my memory has really gone down hill that past few years) A lot of people say they react badly to nuts, but I don't have any reaction to them. I do react to caffiene, however. Good luck, and I'm glad to hear you are so supportive of your wife.

On a side note...I switched to the southbeach diet with my husband in July. It has helped a lot with the way I feel when I wake up in the morning. I can tell a difference if I splurge and have a treat made with refined sugar and white flour; I feel crappy in the morning when I do that.
dix: lupus sle, hypo-thyroid
rx: pred. 5mg/day, plaquenil 200mg/day, levothyroxine .112mg/day, premarin .45mg/day


littleCookie
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Date Joined Mar 2008
Total Posts : 8
   Posted 3/19/2008 8:10 PM (GMT -6)   
I love to eat green vegatable but I developed blood clots since being diagnoised with sle lupus and have to rely on coumdin (warfarin), I also have to avoid food like bean, spicy and tomatoe rich foods, but I find that pineapple or very good for you, they contain bromelain which is a natural digestive agent. Eating pineapple with meals can ease internal distress caused by lupus and minimize some symptoms of IBS, crohns and celiac diseases. Bromelain helps to speed digestion, eases absorption of sugar, starch and protein and helps us gain benefit from the food we eat. I also invested in a juice machine and find it better to drink my veggie than to chew them.

SFnative82
Regular Member


Date Joined Mar 2008
Total Posts : 39
   Posted 3/21/2008 1:40 AM (GMT -6)   
Little cookie is right about pineapple but some people need to check because pineapple and grapefruit can have interactions with certain meds.

Just a quick FYI :)
~jenn


AStarr
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Date Joined Dec 2010
Total Posts : 1
   Posted 12/18/2010 5:44 AM (GMT -6)   
I'm a living witness to the effects of legumes as a trigger. It's real and although I've know about it for over twenty years, for the most part have been able to avoid the complications by staying away from those foods that trigger an onset. However, there have been a few times when my neglect caused me to miss an ingredient in something I ate and of course I suffered. For example, last month I mistakenly ate a cashew relish as a side dish to a fried green tomato (which I didn't know tomato was a food to avoid until reading this post) but I'm now on my third med and it seems to be dissipating. What a costly mistake.

Now I’m going to check out the “anti-inflammatory” diet.

Great post!

J.P.
Regular Member


Date Joined Oct 2010
Total Posts : 86
   Posted 12/18/2010 1:33 PM (GMT -6)   
Oh man! Three of my favorite things-tomatoes, beans, and some nuts.

For awhile as a kid we lived on beans and my grandpa grew tomatoes( the best I've ever had) and I would eat them right off the vine and my grandma kept them on the kitchen table. And he made very good beans, put everything in them but the kitchen sink according to my grandma.

I still eat tomatoes whole but they are not garden fresh. I really like beans, too,I hope they are not making me feel worse.

I remember making beans and thinking I shouldn't of felt so crappy after eating because they are good for you. I always try and make enough so I have leftovers and eat them for a couple of days in a row. I will have to pay attention in the future.

I'm also addicted to sugar and caffeine and I know I need to take a break from those two things and see if my energy level goes up any. I'm so tired. I know it's not just the sugar and caffeine but they could be making me feel worse.

hootyhu
New Member


Date Joined Nov 2010
Total Posts : 18
   Posted 12/18/2010 7:35 PM (GMT -6)   
what a great post! I am going to research 'anti-inflammitory diet, thanks!
DX 11/2010 Lupus and possibly RA overlap

meds:plaq 200mg, pred pack when needed.

pugpuppy
Regular Member


Date Joined Nov 2010
Total Posts : 68
   Posted 12/18/2010 9:51 PM (GMT -6)   
Hi all, I went to the store today and got a fue things, I got coffee and sugar but I chose the 1/2 caf folgers to see if its as good as the reg. Iknow the decaf is good to but I love my coffee so I know that won't be cut and the suar well I choose that as well because I was on the fake stuff for yrs and a Dr. told me that reg sugar (limetted) was better then the fake stuff because it doesn't leave your system, I felt better jionts and all after I switched. so.......but as for the foods I need to change things, I know it will help in the way I feel . I need to research it more.
Hope all had a great day and I agree wonderful info to know;o)
There can't be a crisses next week. My schedule is already full.
Henry Kissinger
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