Have I made right decision????

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Regular Member

Date Joined Jul 2006
Total Posts : 245
   Posted 4/30/2007 10:30 PM (GMT -6)   
 I seen rhuemy today & she was more than willing to change my med. I am on 400mg of plaq a day. The problem is I still have major pain before & during my period. She feels that this is related to my lupus. I have only been on plaq 2-2 half mo's. I told her I would rather wait a couple of mo's & see if the plaq will work better. I do not want to make that rash of a decision untill I've gave the plaq a good try. She made me promise if the symptoms got worse I would come in before my next scheduled appt. Also I feel like such an idiot! I thought because I was on plaq I could go outside a little more than what I have been, This last wk. I've noticed my skin hurting, being nausious & fatigued. I thought I was getting worse! She told me that the plaq make you more sun sensative! Has anyone noticed this? She also told me to wear sunscreen indoors.

Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 4/30/2007 10:35 PM (GMT -6)   
I haven't heard of the Plaq causing more problems with the sun, actually I have heard the opposite. I have been on Plaq since January and to be honest, I am still having problems with the sun (about the same). Nausea and fatigue are my biggest problems with the sun too. I know that the Plaq thing will come up too on my next appt and I'm not sure what will happen. I know that I need to give it more time but I think I would feel better by now. I do feel a little better joint pain wise however the other stuff is still there with not much change. If you feel you didn't make the right decision, the good news is that you can always go back and see what other options you have. I do hope that the Plaq starts working more for you in the meantime.

Take Care
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


Veteran Member

Date Joined Jan 2007
Total Posts : 1042
   Posted 5/1/2007 7:13 AM (GMT -6)   
Hi bhkhhh
I am just adding what info I have regarding plaq, and the sun.
On my prescription bottle it says "You should avoid prolonged, or excessive exposure to direct and/or artificial sunlight while taking this medication"
Hope this helps
A/Fib, diagnosed Aug, 1997, R/A diagnosed in Sept. 1998, Pericarditis and Lupus in Dec, 2003, Diabetes, diagnosed march, 2004
sotalol, digoxin, coumidin, plaquenil, prednisone, metformin, diamacron, wellbutrin,fenofibrate

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 5/1/2007 7:33 AM (GMT -6)   
Also there is a new kind of sunscreen that protects better than the old stuff. I don't have my tube otherwise I could tell you the ingredient but it is a big deal because apparently the old stuff is rated only for one wave length of uv despite saying uva/uvb on it. There was a big stink in the news last year. The stuff I got was expensive but actually it causes fewer problems with my sensitive skin too.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 5/1/2007 1:23 PM (GMT -6)   
bh....I was told the same thing about plaquenil and the sun by my rheumy.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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Co-Moderator: Lupus and CFS Forums

Veteran Member

Date Joined Sep 2005
Total Posts : 1744
   Posted 5/1/2007 7:13 PM (GMT -6)   
The listed side effects of plaquenil do warn you that you may become sensitive to sunlight. I was a bit sensitive, as most of you are, before plaquenil, but I definitely avoid the sun now. Also, 2 months is not a long time to give plaquenil a try. 4-6 months may be the average length of time before anyone will see any effects. That's not to say that some will feel effects sooner, but most will take longer than 2 months. Personally, I never have felt the effects of plaquenil, and I've been on it almost a year. My rheumy keeps me on it, though, so I assume there's a reason.

I don't think asking your rheumy to wait a bit is unreasonable. I have never heard of wearing sunscreen indoors, though? You must be very very sensitive to sunlight.

Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan

Regular Member

Date Joined Jul 2006
Total Posts : 245
   Posted 5/1/2007 7:31 PM (GMT -6)   
Thanks for all the responces. It may just be the time of yr. Last yr at this time is when it hit me & never let up until they dx'ed me. I just have a hard time believing the sun makes me so sick, I used to live outside & allways tanned darker than most. I really do want to give the plaq longer to work, I have seen where some people take up to 6 mo.
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