Hypothyroidism and celiac disease

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elcamino
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Date Joined Sep 2005
Total Posts : 1744
   Posted 5/1/2007 12:07 PM (GMT -7)   
Since both of these conditions are commonly found in people who have other AI diseases, like RA or SLE, I was wondering if any of you had ever been diagnosed with either one of them (or both).  The celiac disease intrigues me, specifically, because sources I've read have indicated that many people with RA or SLE have greatly improved joint symptoms when they tried a gluten-free diet (the only treatment for Celiac).  I'm currently being tested for both with a new GI doctor I saw last week.  I know that thyroid problems run in my family.  My mom had hyperthyroidism, and one of my sisters has hypothyroidism.  I'm not sure which one I'm being tested for, but I'm forever cold (as are many of you), and GI noticed that right away when he walked into the examination room--I think it goes more with hypothyroidism.  With the Celiac disease, it just makes sense that it might be a possibility.  I've always had GI issues, even as a little girl.  I had an all-out allergy to milk as an infant (or so mom said) and had to be switched to soy formula; to this day, I am lactose intolerant.  I can tolerate cheese, but no milk or icecream (even though I cheat quite a bit).  Lactose intolerance often goes hand-in-hand with a gluten intolerance.  Honestly, even if my numbers are negative for celiac, I thought I might try to the gluten-free diet just to see if it makes a difference with respect to my joints.  I may talk about it with my rheumy in a couple of weeks. 
 
Thanks for any information!
 
Elcamino
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 5/1/2007 5:42 PM (GMT -7)   
Hi El
I have hashi's and can't handle carbs very well at all. I don't know if I'm allergic as much as my liver doesn't process sugar from carbs properly, leading to fatty liver,liver damage, a host of gi symptoms, and diabetes. I am not lactose intolerant though. I don't know that I can't eat gluten because I get really sick, just vague problems and of course excessive weight gain. I don't know much about celiac, but someone mentioned I should check it out because of the hypothyroid. I don't know if this helps. I have been told over and over by doctors and books that hypothyroidism and diabetes are related, that diabetes (hyper or hypoglycemia--hyperinsulinemia) can be brought on by improper diet containing an overabundance of carbs.
Marji

"...brain, what is brain?"
--Kara, one of the "givers of pain and delight", aka woman of Sigma Draconis VI, "Spock's Brain" episode 56 season 3 of Star Trek--I'm not a trekkie but this one was funny!


elcamino
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Date Joined Sep 2005
Total Posts : 1744
   Posted 5/2/2007 4:32 AM (GMT -7)   

Hi Marji,  thanks for the reply.  I've read that celiac and hypothyroidism often go together, and once you have the celiac under control, the hypothryroidism soon follows.  The GI symptoms, for the most part, that go along with celiac can be quite vague and mild, if non-existent, for many people.  In Europe, they do regular screening of the general population and they have a fairly high rate.  They don't screen in the U.S., but now that more and more people are being tested, they're finding our rate as high as the European rate.  Interesting about the connection between diabetes and hypothyroidism, but it would make sense.  We are a carb-crazy culture.

 

El


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


CaptSue
Regular Member


Date Joined Jan 2007
Total Posts : 279
   Posted 5/2/2007 8:28 AM (GMT -7)   
Hi El,

When I was undiagnosed and getting tests, I did a lot of reading on celiac disease. I too, found the connections interesting. My rheumie dismissed my concerns but I insisted that I get tested (by my PCP) and the tests came back negative. I did try gluten free for a couple of weeks but, for me, there did not seem to be an improvement. But there seems to be a strong connection and I think all of us with AI problems should be tested and I don't quite understand that we have to insist (at least I did).

I have read "Metabolic Typing Diet" and I'm a "protein type" according to that scheme and try to tailor my diet to eat more protein. I try to eat well (when I can) and think that our health is certainly influenced by our diet. No doctor has ever asked about my diet (no money in telling people to eat right, I guess). I agree with you, it just makes sense that it might be a possibility.

Good Luck. Let me know how things turn out.

Stay Strong,
Sue
Diagnosis: Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena (both diagnosed in 2006)

Meds: prednisone (5.0 mg wish I could taper), Imuran (2X50mg), Prilosec (20mg), Prozac (off now)


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 5/2/2007 11:41 AM (GMT -7)   

Thanks for sharing your experience, Sue.  I am actually intrigued with the possibility that I may be able to control my problems with a diet alone.  In fact, I'll be disappointed if the bloodwork is negative, but then again, it does seem an awful easy fix, doesn't it?  Too easy.

 

Elcamino


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 5/2/2007 2:03 PM (GMT -7)   
Hi El,
It's funny how sometimes we want the labs to come out a certain way so we have an answer and a key to tx if not healing. I read up on celiac after your post and I do believe I had most of the symptoms, though I know my IgA came out neg but they are retesting it because my rheumie says you can be sick a long while before some of these tests show a positive. I thinking of going the gluten free way anyway, since I eat like that pretty much anyhow, it would be a small change. Thanks for the info, it really helped. Also, I think people should make sure they get their insulin tested to rule out metabolic syndrome x or prediabetes. My doc told me blood sugar and other tests are not adequate for this. Hyperinsulinemia can mimic thyroid issues and there is treatment (glucophage is one) to prevent the onset or to help correct fatty liver disease from eating so many carbs our whole lives. Hope your tests come out the way you want them.
Marji

"...brain, what is brain?"
--Kara, one of the "givers of pain and delight", aka woman of Sigma Draconis VI, "Spock's Brain" episode 56 season 3 of Star Trek--I'm not a trekkie but this one was funny!


CaptSue
Regular Member


Date Joined Jan 2007
Total Posts : 279
   Posted 5/5/2007 11:32 AM (GMT -7)   
Hi Elcamino,

I was just wondering whether you have found anything out? I was, in fact, disappointed that the celiac tests came back negative. I was absolutely desperate to find that I could have some control over what is going on. In the beginning, I purchased some on-line book about "curing" lupus and all it was was testimonials for and explanation of a low-fat vegan diet. I believe it helped those people but I don't believe it would help me. Following that diet (some years ago) I got way too thin and was diagnosed with irritable bowel syndrome and had all sorts of troubles which vanished when I gained 10 pounds.

Anyway, diets continue to interest me and I do try to "eat well" understanding that everybody has a different idea of what that means for them.

Take Care,
Sue
Diagnosis: Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena (both diagnosed in 2006)

Meds: prednisone (5.0 mg wish I could taper), Imuran (2X50mg), Prilosec (20mg), Prozac (off now)


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 5/6/2007 4:53 AM (GMT -7)   
Hi Sue,

No results yet. Like you, I do believe that diet has a great deal to do with our overall health. I'm very leary, though, of thinking that diet alone can cure a complicated disease like lupus. Jeez, if it were only that simple. When I mentioned that the celiac diet has been know to help people with RA, I meant that they really had celiac disease, and not RA, to begin with. Nevertheless, it is important to eat well. I could certainly do better in this department.

I'll let everyone know as soon as I do. Thanks for asking.

Elcamino
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


tktrinity
New Member


Date Joined Oct 2010
Total Posts : 3
   Posted 10/28/2010 2:41 AM (GMT -7)   
I just stumbled upon this thread, and thought I'd throw my 2 cents in. I am a large woman with celiac disease and hypothyroid (also fibromyalgia). I went totally gluten free 10 months ago, and without trying (meaning I still eat sweets like a crack addict), I've lost 60-70 pounds, depending on the scales being used. lol Studies say that after a time of being GF, the thyroid will suddenly start doing it's job again. Who knows. Either way, I feel SO much better!
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