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hope4more
New Member


Date Joined Apr 2007
Total Posts : 16
   Posted 5/4/2007 8:08 AM (GMT -7)   
Hello all.  Went to the rheumy yesterday.......diagnosed lupus.  Started 400mg Plaquenil a day.  No surprise though I knew that is what the results would be.  Feeling a little better today.  Hopefully the sun will stay shining and I can get out of work earlier.  Just wanted to give everyone an update!  Hope all is well with everyone!
Stephanie

Bitzi
Regular Member


Date Joined Mar 2007
Total Posts : 89
   Posted 5/4/2007 8:54 AM (GMT -7)   
Steph,
Well i am glad you are feeling better and i hope that your plaq kicks in. I say take the whole day off and enjoy the sun!!!!
take care,
B
 
Bitzi


bhkhhh
Regular Member


Date Joined Jul 2006
Total Posts : 245
   Posted 5/4/2007 9:03 AM (GMT -7)   
Hope, I'm glad you finally got your answer & that you are feeling better. Hope the plaq starts working right away!

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 5/4/2007 9:03 AM (GMT -7)   
Stephanie, I'm glad that you got a diagnosis and were able to start treatment. It sounds weird to tell someone you're glad they got a diagnosis, but to be sick and to not have a name for it can be a very frustrating experience. It can take a while for the plaquenil to build up in your system and start to work.

Well, enjoy your day!

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



hope4more
New Member


Date Joined Apr 2007
Total Posts : 16
   Posted 5/4/2007 9:49 AM (GMT -7)   
Thank you everyone. I have been on Plaquenil before with success. The problem that we finally figured out is that the Remicade I am on for my Crohn's is not good for my lupus.......what fun! I am sure I have got a long road ahead of me but hey I have already lasted through over 10 years of wrong diagnoses! Just found out I get to go home early...yea!!!!!
Take care,
Stephanie

CityGirl
Regular Member


Date Joined Dec 2006
Total Posts : 239
   Posted 5/4/2007 10:01 AM (GMT -7)   
Sounds like you are on your way to feeling better! I can relate to almost feeling happy about a diagnosis. After a while you begin to wonder if you are stone cold nuts. The diagnosis sort of validates how you feel.

It amazes me there is technology to put 1000 MP3 songs on a memory chip smaller than a credit card, one can have a MP3 player in their vehicle and all the other bells and whistles but still it takes so long to get a diagnosis for a disorder that has been prominent for decades. Something simply isnt right with that scenario. Medicine first... toys second. It is terrible what slow progress some of the most important areas of life continue to have.

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/4/2007 10:43 AM (GMT -7)   
Stephanie, I agree with Hippi, that it sounds strange to be happy for a diagnosis, but diagnosis limbo can be so darn frustrating! Yes, you do have a long road ahead of you, but the doctors know how to treat you now, and you have all of us who understand what you're going through. So go home early and enjoy the weekend!

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin

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