Stres causing Lupus?

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smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 5/7/2007 10:49 AM (GMT -7)   
I'm just wondering if anyone else has been told by their dr. that their Lupus has been caused by something tramatic or stressful that has happened to them in their life? My dr. thinks that the stress from my car accident and all the stress from the injuries has been the trigger that set off my Lupus. I have heard and read that Lupus can be brought on by something tramatic and am just wondering if anyone has had this happen to them?
 
Connie smurf
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


CityGirl
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Date Joined Dec 2006
Total Posts : 239
   Posted 5/7/2007 12:11 PM (GMT -7)   
While I did present symptoms of lupus for several years my rheumy did tell me a trauma to your body can set lupus to full force. In my case I had a very hard fall in Aug of 2006 that resulted in a fractured kneecap. It was then I really started feeling awful aside from my knee injury. As I understand it you may have doormat lupus and trauma to your body can "wake" the disease.

Bsime
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Date Joined Apr 2006
Total Posts : 1298
   Posted 5/7/2007 1:12 PM (GMT -7)   
Stress has been suspected as a possible trigger of lupus and other AI diseases but that is not the same as a cause.  Our genetics probably predispose us to a susceptiblity and stress, injury, drugs, cancer, or infection trigger the auto immune response.  Many lupers will tell stories of how stress can trigger flares so I believe there is a great deal of validity to it.  Your doctor is probably correct about what triggered your lupus but there was an underlying problem before that.
 
I have mctd which is lupus, scleroderma and polymyositis and have been warned by my doctors to not overstress myself physically or emotionally.  So far so good.  In my case there were no obvious triggers and it is anyone's guess as to what triggered an extreme case of mctd.  Lupus hit me hard and polymyositis almost killed me. 
 
Until researchers understand the underlying biochemistry of lupus doctors can only guess at what the actual cause is.  Seems like it is obvious for some and for others like me, not obvious at all.  I went through several years of very high stress but that was many years ago and it is possible that was a trigger.  However, the only signs for 15 years were low platelets and mild anemia.  The first obvious flare came 2 years ago, many years later.  All conjecture.
 
Focus on getting effective treatment and take all the stress you can out of your life.  Worrying will not make you better but the opposite.  Life with lupus can be good if you get it under control and learn what you can and cannot do.  My life is a "new normal" and not the same as before but good nonetheless.  Adaptation is a normal part of life...it is just that lupers are forced to adapt to something other than normal aging and health problems.
 
Hope you can find some answers but if not it is more imporatant to find peace within yourself and make the best of life.
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's syndrome.
 
Meds: prednisone (9mg & tapering), 150mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 5/7/2007 3:22 PM (GMT -7)   
I think Bill explained it perfectly. What I have read is that a lot of us probably had a predisposition for lupus and then there may have been some "event" that may have triggered it. The "event" could be an accident, an illness, an exposure to something toxic, etc. Then there are some people who cannot recall a specific event that happened before they got sick. For me, I had some symptoms on and off for years, but then I got sick after my kids had the flu and I never seemed to get better and then gradually began developing lupus symptoms.

As you can see, it's all pretty complicated - there's nothing simple about this disease.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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peacesoul
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Date Joined Jan 2007
Total Posts : 2446
   Posted 5/7/2007 3:29 PM (GMT -7)   
smokeyswife said...
I'm just wondering if anyone else has been told by their dr. that their Lupus has been caused by something tramatic or stressful that has happened to them in their life? My dr. thinks that the stress from my car accident and all the stress from the injuries has been the trigger that set off my Lupus. I have heard and read that Lupus can be brought on by something tramatic and am just wondering if anyone has had this happen to them?
 
Connie smurf

Connie, I would believe this if this was not a "female" disease!
Men are just as stressed as women, so why are men not afflicted as much as women with lupus?
I'm no DR but personally, I think hormones have much to do with Lupus.
Trust me, if Lupus was a "man illness", there would be much more research done.
 
I think flares are brought on by stress but lupus being caused my stressed, I don't buy it!

dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 5/7/2007 4:22 PM (GMT -7)   
I have also heard that among other things, stress can actually trigger Lupus if you are already predisposed. I'm sure hormones have a lot to do with it as well however stress and hormones do go hand in hand. I also agree with Hippi about the viruses as I believe that is what began everything for me. I had a two week long flu with very high temps and never have been the same since.
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


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omega
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Date Joined Jan 2007
Total Posts : 607
   Posted 5/7/2007 5:29 PM (GMT -7)   
Don't need to add anymore. Stress is a trigger but there is something underneath that caused lupus.

smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 5/8/2007 5:15 AM (GMT -7)   
Wow, thanks for all of that information. I am sure that I have had Lupus for a long time, long before my accident, but without knowing what it was. I didn't have the pain that I do now, but I had the rashes from the sun, and other symptons. I think the stress brought out my symptons, the pain of the injuries and going for nerve blocks, stress from dealing with the insurance companies and lawyers and court cases, I am sure all contributed.
 
I really hope that my girls didn't inherit this darn disease from me, I would cry if  they get it sometime down the road.
 
I hope my Rheumy can get it under control, so far it seems to do whatever the heck it feels like, no rhyme or reason. Rainy and damp, cold winter days make it worse, sunshine makes me feel almost human again.
 
What I know for sure about this disease is it SUCKS!! yeah But with the disease has come lots of wonderful blessings that I wouldn't have had otherwise so I guess I am thankful to Lupus for my blessings.
 
Thanks everyone, take care,
Connie smurf
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


mom46
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Date Joined Dec 2004
Total Posts : 8198
   Posted 5/8/2007 3:06 PM (GMT -7)   

Hi Connie,

   Bill had some great info and advice for you. I never had any stress or an injury before my first symptom of lupus. My very first flare, before knowing it was lupus, was a couple of days after spending a week at the beach. Lupus does run in my family though.

   I hope your doctor can get your symptoms under control soon. Please keep us updated and take care. You will be in my thoughts and prayers.

                                                            ((Hugs)) Babs


 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 5/9/2007 3:24 AM (GMT -7)   
Thanks Babs. I don't see my Rheumy till the end of June, quite a bit of time till then, but my family Dr is great to talk to in between visits. I'll keep you all posted on what the outcome of my next visit with the Rheumy.
 
Thanks all and have a great day.
 
Connie smurf
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


sandspoker
Regular Member


Date Joined Apr 2007
Total Posts : 104
   Posted 5/9/2007 3:43 AM (GMT -7)   
Morning Everyone!!
I agree - I think we all had this lurking in our bodies long before we were diagnosed.  As I read your posts, I now wonder if it was my bout with hepatitus that brought my Lupus out (hmmmm).  I was actually telling my Mother just the other day that I think she too has Lupus (my sister and I both have it) but was never diagnosed - I'm certain she too suffers from Raynauds as well. 
Now, here's one for debate.  My sister was diagnosed about 25-30 years ago and had been dealing with some pretty severe flare ups all her adult life.  A little over 2 years ago, she was in a life altering car accident and she's said on more than one occassion that she thinks the accident kicked the Lupus out of her body because she doesn't flare like she used to... now isn't that interesting???
 
I do think that if we keep stress to a minimum and not go overboard on anything (and I mean anything), it is the best way to deal and prevent flares.
 
Be Strong All!!!
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