Flare Nightmare

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Candii
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 5/7/2007 3:46 PM (GMT -7)   
I am miserable and in a horrible flare. I went to the doctor and I have a possible kidney infection and he put me on Bactrim. My lower back on my right side hurts so bad. Nothing touches it. And burning when I tinkle. And  I have been having fevers at night. I have mouth sores on the right side of my mouth. The doctor says I have a boil under each armpit and behind one ear. He says my Lymph glands are ok. I ache all over. If the urinalysis doesn't come back as an infection then he is going to check the kidneys for Lupus Nephritis. I haven't had any organ involvement. And I don't want any. I missed 2 days of Plaquenil last week and I am wondering if now I am paying for it. {{banging my head on the monitor}} The doctor says that I fueled a fire that was trying to burn. And when I missed my plaquenil it lit the fire. And now I have a flare. eyes I am so exhausted and sick. The thought that this could be Nephritis scares me. The doc says that if it's Nephritis then I have to go back to my Rheumy and a Urologist. Lupus is so frustrating.
 
Kitty38
Polycystic Ovarian Syndrome 1992, Restless leg syndrome 1998, SVT tachycardia/Arrythmia '06, SLE '07, Raynauds '07....Plaquenil, Hydrochlorothyazide, Cardizem, NorQD, Naproxen, Folic Acid (for mouth/nose sores), Multivitamin, Flonase.


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 5/7/2007 4:26 PM (GMT -7)   
I'm curious about missing Plaq for a couple of days because my doc said that if my prescriptions (mail order) didn't come in time, I would be okay for a couple of days but for more than that he could write me a emergency prescription for the local pharmacy. I didn't have to do that thank goodness but now I'm confused.

I hope your infection heals quickly. I haven't had any organ involvement except for my lungs but nothing with my kidneys. Its good that you got the pain in a sense though because it alerted you that something wasn't right. I have read that most people with kidney problems in Lupus don't experience any pain so no warning which I guess why its important to get regular blood/urine work.
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


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hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 5/7/2007 5:01 PM (GMT -7)   
Kitty, I'm so sorry to hear that you are in a flare and feeling so rotten. The thought of nephritis is very scary - I've been there myself a few times. There was about a 6 month period where I was spilling protein, but thankfully any kidney involvement I had seemed to be very mild and it has resolved since I started on prednisone. If you do have kidney involvement, my guess is you would see a nephrologist since they are the kidney experts. Also know that I was reassured by several members here that kidney issues can often be successfully treated.

I really hope your flare gets under control soon and that you get some relief - you sound really miserable.

Hang in there and take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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omega
Veteran Member


Date Joined Jan 2007
Total Posts : 607
   Posted 5/7/2007 5:26 PM (GMT -7)   
Sorry to hear about your flare. I agree. The thought of nephritis is scary. I would not want to have it at all too. I also doubt that if missing two days of Plaquneil will cause such big flare. Lupus is always unpredictable. Sometimes good and sometimes bad. I hope you feel better soon.

Candii
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 5/7/2007 5:51 PM (GMT -7)   

hippimom, Your right it's a Nephrologist. All these ologist docs get me confused. lol. I am miserable and feel just rotten. Thankyou for the pep talk. I really need it.

omega, thanks for helping. Hope everything is going ok for you.

dbab, the doctor said that I probably had a flare just waiting to go. And when I missed my plaquenil thats all it took. Lupus is strange.

Kitty38


Polycystic Ovarian Syndrome 1992, Restless leg syndrome 1998, SVT tachycardia/Arrythmia '06, SLE '07, Raynauds '07....Plaquenil, Hydrochlorothyazide, Cardizem, NorQD, Naproxen, Folic Acid (for mouth/nose sores), Multivitamin, Flonase.


monkeyme
Regular Member


Date Joined Mar 2007
Total Posts : 153
   Posted 5/8/2007 9:30 AM (GMT -7)   
Just wanted to say that I know how HORRIBLE it can be to be battling lupus and then to battle another infection on top. Its hard too because one never knows if the fevers are the lupus, or something else! It turns into a big mind game. argh.

I do not have any wonderful advice or glorious words of wisdom (if I did, I would be using them on me too :-) , but I want to tell you that I feel for you and am thinking of you and will send soothing healing peaceful thoughts your way.
Chronic Fatigue 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007


Candii
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 5/8/2007 3:34 PM (GMT -7)   

Monkeyme, thankyou for the peaceful thoughts. The last few days have been pretty hard.

 

Kitty38


Polycystic Ovarian Syndrome 1992, Restless leg syndrome 1998, SVT tachycardia/Arrythmia '06, SLE '07, Raynauds '07....Plaquenil, Hydrochlorothyazide, Cardizem, NorQD, Naproxen, Folic Acid (for mouth/nose sores), Multivitamin, Flonase.


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 5/9/2007 4:34 PM (GMT -7)   
Kitty,
  I hope you are feeling a bit better today...((Hugs)). It sounds like you have been in misery. I hope this clears up soon for you. Please update us when you can and take care. You will be in my thoughts and prayers.
                                                                  Babs
 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/11/2007 10:10 AM (GMT -7)   
Hi Kitty I just read your post. I'm sorry you are so sick. I know it's been a few days but I also know that these flares can hang on for weeks. I just hope it doesn't last that long. and that the meds are helping.

Saying a prayer that you are feeling some releif
love
carol
God Bless
Carol
 
 Newly DX's Lupus.Possible CREST,COPD, high PB xanax,triam , vicodin.5x3, Evista for osteo,. oxygen Plaquanil800mil, . effexor. spiriva, xopenex. pred.10.mil.
 
Come ye, all that are weary and heavy laden, and I will give you rest!
 
 


sandspoker
Regular Member


Date Joined Apr 2007
Total Posts : 104
   Posted 5/12/2007 5:19 AM (GMT -7)   

Hey Kitty - You poor woman - this disease can be so frustrating. 

Well, it's Saturday morning so hopefully you're feeling somewhat better by now. 

Keep us posted!!!

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