can someone help with my labs??

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Regular Member

Date Joined Jul 2006
Total Posts : 245
   Posted 5/9/2007 9:31 PM (GMT -6)   
I recieved letter from rhuemy today, anti-double stranded dna negative, C3 low at77 she says normal is 90-180, C4 normal. I do have tumid lupus but they believe it is turning to sle. Can someone tell me if my C3 means that I'm positive for sle Or what it can mean?

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 5/9/2007 9:34 PM (GMT -6)   
Hi bhkhhh:

I'm sure you know that there's not specific test to say you positively have lupus. The C3 and C4 tests can show if they are low that your lupus is active. The fact that your C3 is low if just may be showing that you've got a bit of activity with your lupus. Since you've got tumid lupus the C3 may be related to that. I'd suggest that your doctor keep a close eye on it.

I hope this helps and keep us posted.

Best Wishes,
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.

Regular Member

Date Joined Jul 2006
Total Posts : 245
   Posted 5/9/2007 10:52 PM (GMT -6)   
Thanks Barbara. I don't know why I get so scared when I hear sle. From the begining of me getting sick that is what they thought it was & when they told me it was tumid I was so relieved. I do know that it can turn to sle & that docs suspect it. This disease is just so hard to deal with. Some how I trust the forum members more than I do my docs.

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 5/10/2007 9:49 AM (GMT -6)   
bhkhhh, I have heard the same thing that Barb told you - that if your C3 or C4 is low then it can mean your lupus is active. Lupus can be very scary, I think especially in the beginning when you are first reading about it and finding out everything that can happen with it. Just know that we are here for you through all of this.

I'm not really sure how the docs could tell if the tumid lupus was developing into sle. I'm not very familiar with tumid lupus. The good thing is that your doc seems to be keeping an eye on things. Did your doc say when you should come back and get more labs done or if your treatment would change now that your C3 is low?

Hang in there and keep us updated.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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Regular Member

Date Joined Jul 2006
Total Posts : 245
   Posted 5/10/2007 11:40 AM (GMT -6)   
Hippi, Tumid is like discoid or cutanious from what I understand. It is fairly new dx. What I think is I'm probably in limbo between cutanious & sle ( just my thought). My rhuemy wanted to change my plaq to something else a wk & half ago. I wouldn't let her because I want to give plaq a real good chance. I am not scheduled to see rhuemy again until july 30. She has told me if I need to see her sooner to call. I'll probably have to call her because my body is hurting so bad. I might be a strange case, my body hurts more in the summer than winter. I really don't know if this is normal.
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