Pain management??

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Y.T.
Regular Member


Date Joined Feb 2005
Total Posts : 97
   Posted 5/13/2007 4:36 PM (GMT -7)   
 
Hello all, long time no see!! 
 
  Does anyone take any pain meds??  NONE of my meds seem to be working!!  I go to rhumey on Tues., I am going to ask to get my life back!!  I had some old meds from a foot injury, never took them, but started a week ago, they seem to help... It was tylox 5mg-500mg. ( Oxycodone/apap )
 
Current meds:
Plaquinel 200mg x 2
prednisone 5mg x 1 ( hate this stuff)
naproxen 500mg x 2
effexor er 75mg x 1
 

Y.T.
 
SLE- july 2004
 


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 5/13/2007 4:44 PM (GMT -7)   
Hi Y.T.:

I'm sorry that your hurting and not having the correct pain relief. Each of us are different in what we take to control our pain. Some members can get buy with just their anti inflammatory meds, and some need narcotic pain killers. I take both percocet and demerol in pill form for my pain. When my pain is so bad that I can't stand it, my doctor admits me to the hospital and I get large doses of IV demerol every 3 hours. The amount of IV demerol is hard to equal in oral form, plus the risks of such large doses and being home, isn't really to safe.

I hope that your rheumy gets you something for your pain, and you begin to feel better soon. Keep us updated on how you're doing.

Take care,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 5/13/2007 4:54 PM (GMT -7)   
Hi Y.T. I also have been having issues with pain management lately too - I think the hot humid weather and being out in the sun at my kids' ball games has added to my pain. I agree with Barb that everyone has different needs for pain relief depending on the level of pain and how they respond to different meds.

I can't take NSAIDs because of stomach and kidney issues, so I have been taking tramadol for a little over 2 years. Tramadol (Ultram) isn't a narcotic pain med but works in a similar way and it had worked very well for me for a long time. I think that because I have been on it for so long that I have built up a tollerance to it. I do have a few low dose hydrocodone pills for days of more severe pain and those work the best for me to keep my pain under control. However, my doc doesn't prescribe enough hydrocodone for me to take it everyday, so I will probably need to talk to him about my recent increase in pain.

I'm really glad you will be talking to your rheumy on Tuesday and you will be letting him know how bad your pain has gotten. I strongly believe that we are entitled to be as comfortable and pain free as possible. I really hope your rheumy can help. I'd be interested to know what your rheumy has to say if you are up to giving us an update.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

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Y.T.
Regular Member


Date Joined Feb 2005
Total Posts : 97
   Posted 5/13/2007 5:11 PM (GMT -7)   
I have tried the Ultram with no results..
Y.T.
 
SLE- july 2004
 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/13/2007 6:30 PM (GMT -7)   
I've been taking vicodin 3 times a day . somtimes it helps sometimes is doesn't. she tries me on opana which is pretty new but it didn't even work as good as the vicodin.

I hope you get somthing that helps. Pain sure can wear a body out!
I sorry you are hurting so much
hugs
carol
God Bless
Carol
 
 Newly DX's Lupus.Possible CREST,COPD, high PB xanax,triam , vicodin.5x3, Evista for osteo,. oxygen Plaquanil800mil, . effexor. spiriva, xopenex. pred.10.mil.
 
Come ye, all that are weary and heavy laden, and I will give you rest!
 
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/13/2007 7:04 PM (GMT -7)   
Hi, Y.T.,

The Ultram doesn't work for me either if I just take two pills. If I want to be pain free I have to take 2 Lortabs. But a) I don't want to become addicted to Lortab, and b) my doc won't give me much anyway. So what she has taught me to do is take two Ultram when I first get up and then take them throughout the day for a total of 8 per day. As long as I keep them built up in my body I do ok most days. When the pain gets too bad I slip in a lortab or two now and then.

That's why mornings are the hardest for me because it takes a while for the stiffness and the pain to subside. This morning was particularly bad so I took something stronger than Ultram and slipped into a hot bubble bath and relaxed there for a while. That gave the lortab time to start working and the hot water helped relax me and my sore muscles.

I think we each need to find what helps, and I'm always up for hearing new ideas. I keep promising myself regular masages. Maybe that should be my Mother's Day gift to me.

I hope you find something that helps you be pain free or at least comfortable.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin


sandspoker
Regular Member


Date Joined Apr 2007
Total Posts : 104
   Posted 5/13/2007 7:33 PM (GMT -7)   
Hi Y.T.
I take percocet for pain.  Honestly - I can't remember the last pain free day.  I agree with Carol - sometimes these pain meds help and at other times, I wonder when I took one!  My prescription states that I can take more than I do but I always feel like I have to make a choice - pain or feeling guilty when I tell the doctor I've exhausted my supply.  I think it's a decision that a lot us face .
I do have lorazepam (very low dose) and they help me a great deal.  I take them when I'm feeling tense.  I find the pain tenses me up and I catch my body in a "stiff" state - I try to relax but only moments later, I'll catch myself again.  The lorazepam helps my body to relax...
Go get what you need - WE NEED NOT LIVE IN PAIN...
Honestly though, it might take you a while to see whats right for you but if you get something from your doctor and it isn't working - tell him/her it isn't and find the right one.
 
Be Strong and Stay Positive!!!

Y.T.
Regular Member


Date Joined Feb 2005
Total Posts : 97
   Posted 5/15/2007 3:06 PM (GMT -7)   
Rhumey gave me hydrocodone.. I have taken one half earlier, and just took other half. Feel alot better!! He also thinks it could be from my line a of work, Tile Setter. I don't think it is too bad, but I guess it takes its toll after 8 years.

Thank for all the info,
Y.T.
 
SLE- july 2004
 


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 5/15/2007 3:12 PM (GMT -7)   
Hi Y.T.:

Glad to hear that the Rheumy has given you something for pain. I'm sure your line of work does have a part of your pain. I hope that your new meds work and you continue to have relief.

Take care,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.

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