Barb or anyone re:B12

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okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 5/15/2007 1:43 PM (GMT -7)   
I havn't received my #'s yet they said they were mailed out on the 11th. I could have walked there faster! Anyway I was told that I have a vitamin B12 difficency and will need to start taking something for it. I guess that is where the anemia is coming from?
 
anyway that's where I'm at. I recall hearing others say they have to take b12 shots?
again any info and I'll tell ya more when I get the #'s. probably tomorrow. I told the secretary I was gonna have to gt a bigger pill box!
 
love ya all
carol


God Bless
Carol
 
 Newly DX's Lupus.Possible CREST,COPD, high PB xanax,triam , vicodin.5x3, Evista for osteo,. oxygen Plaquanil800mil, . effexor. spiriva, xopenex. pred.10.mil.
 
Come ye, all that are weary and heavy laden, and I will give you rest!
 
 


Barbara Lee
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Date Joined Sep 2003
Total Posts : 2889
   Posted 5/15/2007 2:32 PM (GMT -7)   
Hi Carol:

((((hugs)))) sweetie sorry to hear that you've got a B12 problem. But that's actually a good thing. There are different types of anemia and having a low B12 is better than some of the other anemias. I'm very interested in what your numbers look like. I'm not low on B12 but extra B12 will give a boost. It's what doctor's have given to little old ladies for ages.

I do not take my B12 in pill form. I give myself a weekly shot of B12. It's very simple and just into the subcutaneous skin on my thigh. You can do it into your arm or stomach too. For me it's nothing, I've been on enbrel in the past. When I was told I'd have to give myself a shot, I was like oh NO WAY, i can't do that. I learned and really it's very simple to do. I'll do some research on the pill form of B12. Most ppl I know take it in shot form. I certainly hope it helps with your anemia. Please let me know the numbers when you get them.

I hope you're feeling ok today and doing well. As always Carol, you're in my prayer. Take care and keep me updated. Hope I've helped some.

Love,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 5/15/2007 2:39 PM (GMT -7)   
I had low B12 levels too and my doc told me to get the pills. Ever since then he has not checked it again to see if I am absorbing it via the pills. I did get blood drawn yesterday from the Neuro and I believe he ordered a B12 test so we'll see if its working. Unfortunately some people can't absorb the B12 from the pills. The ones I have are tiny so hopefully you won't have to get a bigger pill box :-)
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 5/15/2007 3:36 PM (GMT -7)   

Thanks Barb and Des, I will get those numbers out as soon as I get them. Hopefully the send me everything not just a little note teling me good or bad. Otherwise I'll have to go to the doctor and get all my #'s It explains why I have been craving peanut butter and liver! LOL. Barb I think I'd been ok giving myself a shot in my fat thighs or somthing if it comes to that. It would diffinently be better than feeling like garbage. I'm finding myself having to increase my pred just to function anymore. They doctor said it would be ok to do that on the rough days. Des thanks for the heads up on the tiny pills. I still think I got a little room left for that LOL

 Oh and I did read somthing about autoimmune disease prevent b12 obsorbtion into the intestine. Can't remember where I read it though.

thanks again ladies

love

carol



God Bless
Carol
 
 Newly DX's Lupus.Possible CREST,COPD, high PB xanax,triam , vicodin.5x3, Evista for osteo,. oxygen Plaquanil800mil, . effexor. spiriva, xopenex. pred.10.mil.
 
Come ye, all that are weary and heavy laden, and I will give you rest!
 
 

Post Edited (okie) : 5/15/2007 4:39:08 PM (GMT-6)


Trying2BFree
Regular Member


Date Joined Oct 2005
Total Posts : 251
   Posted 5/16/2007 7:00 AM (GMT -7)   
I take Metanx (prescription, it's not OTC) which is a folic acid, B6 and B12 vitamin combination. I has made a big difference for me.


Jeannie ~
   Mom to Ty (4 yrs old)
   and 3 Shelties
 
SLE diagnosis 10/05 now changed to RA 3/06, Endometriosis 5/05, PCOS 1990
Meds: Metformin ER 1500mg (PCOS); Loestrin BCPs (Endo); Methotrexate 17.5mg (RA); Metanx 5mg (RA); Remicade (RA); Lunesta 2mg (as needed)


JustChattin
Regular Member


Date Joined Mar 2005
Total Posts : 140
   Posted 5/16/2007 1:42 PM (GMT -7)   
I used to take B12 shots however my rhuemy told me the B12 tabs that go under your tongue are just as good as a shot. Remember if you are taking Folic Acid it will mask a B12 def. even in blood work. My GP told me that at last weeks seminar they told all the docs that a persons daily vitamin quota can be gotten in a bowl of cereal every morning and too much B12 will give the exact symptoms that your trying to treat.
Diagnosed dystonia 1982,COPD 1995,SLE(Lupus)2005,Subclinical hyperthyrod 2005,neuropathy 2004,mild spinal stenosis 2005, and the list goes on and on.....Raynauds March 2006, Bollous of SLE Jan 2006,chronic pain for many years.
Meds Sectral 200 mg 1 x day, Imuran 50mg 2x day, Xanax .5 3 x day,Hydrocodone 7.5/500 every 6 hrs as needed, baby aspirin a day, SVN treatments as needed


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/16/2007 2:53 PM (GMT -7)   
Thanks for all the response. I still havn't gotten my paper work. This is a bunch of garbage if they really mailed it out on the 11th. that's only 10 miles from here. Anyway I'm gonna try some vitamin b12 and see what that does. hopefully it will help me get over this dragging tire feeling. I'd rather do that than take more pred.
God bless
carol
God Bless
Carol
 
 Newly DX's Lupus.Possible CREST,COPD, high PB xanax,triam , vicodin.5x3, Evista for osteo,. oxygen Plaquanil800mil, . effexor. spiriva, xopenex. pred.10.mil.
 
Come ye, all that are weary and heavy laden, and I will give you rest!
 
 


Peanut_18
New Member


Date Joined May 2007
Total Posts : 7
   Posted 5/16/2007 9:09 PM (GMT -7)   

Just jumping in with some knowledge on B-12...

People with autoimmune disease can, and oftentimes do, have absorption problems.  If you take OTC B-12, make sure you take it sublingual (dissolves under the tongue), instead of in swallowed pill form. 

I just informed my mom of this, as she is B-12 deficient; however, her doctors have never told her to take it sublingually.  Some of the simplist things go by the wayside by these doctors!  mad


Diagnoses:  Hashimoto's disease, acne, fatigue, headaches, hypertension and "as-of-yet-unconfirmed-but-in-the-process" MCTD.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/17/2007 2:35 AM (GMT -7)   
Hey Peanut, Thanks alot for the info. I'd have never even thought of it. I imagine I'll have to go to GNC or somthing for that. The other stores around here won't have a dissolving tablet. I knew there was a reason I hadn't rushed out and gotten it.
The doctor didn't say anything about shots just that they wanted me to take vitamin b12. but than again I'm still waiting for my snail mail with my info. You can't count on this little town for anything.
again thanks hun I appreciate the heads up especially since it makes so much sense. I mean if I'm not absorbing it in my food why would I absorb it in a pill? dah.
God Bless
Carol
 
 Newly DX's Lupus.Possible CREST,COPD, high PB xanax,triam , vicodin.5x3, Evista for osteo,. oxygen Plaquanil800mil, . effexor. spiriva, xopenex. pred.10.mil.
 
Come ye, all that are weary and heavy laden, and I will give you rest!
 
 


Peanut_18
New Member


Date Joined May 2007
Total Posts : 7
   Posted 5/17/2007 10:47 AM (GMT -7)   
No problem! It's actually nice to be able to give some reliable information on something, with so much else up in the air. Try Wal-Mart, CVS, Walgreen's, etc. One of these drug stores will have it. I get mine from Wal-Mart, and it's a tiny cherry-flavored pill--not bad at all. And, the B-12 can only help your energy!
Diagnoses:  Hashimoto's disease, acne, fatigue, headaches, hypertension and "as-of-yet-unconfirmed-but-in-the-process" MCTD.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/17/2007 10:56 AM (GMT -7)   

Actually I was just setting here looking at the paper I got in the mail. Of course they didn't bother sending me all my labs. Just a note saying b12 236. Would like you to take b12 supplement. That's the paper I've waited for days for. eyes . from what I have seen on the internet 236 is within the normal range. So I'm not sure why I need supplements.

 

hugs

carol


God Bless
Carol
 
 Newly DX's Lupus.Possible CREST,COPD, high PB xanax,triam , vicodin.5x3, Evista for osteo,. oxygen Plaquanil800mil, . effexor. spiriva, xopenex. pred.10.mil.
 
Come ye, all that are weary and heavy laden, and I will give you rest!
 
 

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