Post Edited (karasmommy) : 5/16/2007 1:00:35 PM (GMT-6)
Hi Ellen, I'm sorry you are having problems with your skin. It sounds painful. Especially when you have to use your fingers so much. I havn't had too many problems with my skin so far. But than this is going to be my first summer with a DX. My skin problems are more like red spots and spider type veins. I know we have to get out in the sun somtimes so hopfully somone will be able to help you with this problem. I know I have read that some of the women on here wear light gloves. but of course that's not always possible.
Good luck I look forward to hearing what others have to say
I have found that the sunscreens that work best for me are: #1 - make sure they are PABA free. #2 - I use the kids brand lotion of sunscreen as it seems to give me more protection and to me it doesn't feel as "slippery" as the one made for adults. I buy a kid brand with the highest SPF rating and make sure it is PABA free and it seems to work for me. I suffer from red blotches and burn feeling if my skin is exposed to the sun for more than a few minutes. This is my first Summer with the diagnosis of lupus as well, but am learning really fast what works and what doesn't work for me. I also, if at all possible, where long sleeves and pants. I tend to be one who would wear long johns year round as I tend to be cold all the time as well. Hope you can find something. I wish I knew which brand of sunscreen I just bought a couple weeks ago but I loaned it to my sister to use on her kids to see if she likes it.
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Thanks everyone, I have had good sucess = no irritation from Aveeno brand, just hate the greasy feeling, especially when I am sweating sitting in the car in the sun (even with the AC on). Or if I know that I will be sitting in the car alot after work and the sun is in its prime, I don't like feeling greasy at work.
I am just on the hunt for a non-greasy feeling one. Ironically I was looking at the childrens sunscreen's today at Target. I was thinking about the childrens spray-on sunscreens spf 50, I thought maybe they wouldn't be so greasy, but I didn't buy it. I may have to go back and get it.
Instead I spent some money on longer capri style pants/cropped pants. I get such horrible hot flashes sometimes and can't stand to wear Long pants all the time, so I am going to try capri pants, I need them especially when I am outside under the canopy watching my daughter play. I also am glad that the longer "Walking style" shorts are in style, they cover up so much of my leg.
I also am thinking the problem with the sore skin happening is that I am off my Immuran right now due to not being able to get ridf a sinus infection for 3 months - even with heavy duty antibiotics, so when I go back on in a month or 2, maybe the pain from the sun will ease up. But again maybe not! :)