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I am happy to hear that the Prednisone is working and that you are able to enjoy some "normalcy" of life. Wonderful feeling huh. Just to be outside and enjoying the simple things is a true blessing. I hope you continue to feel good.
Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, ValtrexOTC Daily: Multivitamin, Calcium, B-12, C, D; As Needed: Ibuprofen, Tylenol Sinus
Allergies: All Sulfa-based medications; Levofloxacin, Levaquin
DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
As I increase and decrease my steroids myself as and when I feel I need to, when I taper I do it by 1mg per time. Drop 1mg and perhaps 3 days later, drop another 1mg. I have been on them for over 30 years so I am allowed to manage them myself. I know it isn't the same for everyone, but this works for me and is the way I do now by learning from trial and error as it were.
They are a medication that has to be dropped down slowly is you have been on them for over a month. Usually if you are on a higher amount for less than a month and have to reduce down then doing it by 1mg in this way is ok.
Post Edited (goldenwings) : 5/23/2007 5:43:48 PM (GMT-6)
I still can't get my head around the statement that the pain caused when tapering steroids "simulate" fibromyalgia pain. I still maintain that only we know how the pain feels 'cos we get it. Must look further into this.
I have a consultation with my lupus doctor in the morning, then I have physio so it might be beginning of next week before I can do any more research.
I have the company of my husband at weekends as he works away most of the week, so we have together time. So I try my best to keep off my pc hee hee !!