Anyone have adrenal insufficiency or adrenal fatigue?

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Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 5/23/2007 8:29 PM (GMT -7)   
Hi all,
 
I've been away for a while.  I've missed you....
 
I had a cortisol test done last week and my number is below normal.  So I have adrenal insufficiency happening.  Probably due to my prednisone use over the last 7 years. 
 
Just wondering if anyone else has this, and what treatment you got?  What symptoms you had?  I don't want to start "Googling" anything right now.  I'm having some very hard days lately, and the self diagnosing of the internet only makes my anxiety worse. 
 
You can probably tell by the "tone" of my post that I'm "off".  Especially those of you who know me well.....
 
Thanks for any feedback,
 
Ginny
I can do anything through Jesus Christ who strengthens me.  I have learned in whatever state I am in, to be content.  Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia, possible early menopause - do diagnosis yet. Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 5/23/2007 10:33 PM (GMT -7)   
Hi Ginny,

I always freak out when any of my lab numbers are too high or too low, but once I understand what's going on I seem to settle down. Have you discussed this with your doctor? I honestly don't know much about adrenal insufficiency, but I doubt if it's anything to ignore. I've heard that people with it should carry an id card identifying that you have it in case of emergency.

I know what you mean about googling things like this because that can make my imagination go haywire. But surely your doctor will want to discuss this with you, and if you don't hear from him or her, I'd call them tomorrow. Hopefully someone else in the forum will be able to enlighten you.

But please don't let this go. If it's nothing, then great. If it's something that needs to be dealt with immediately, then you'll be able to take care of it. I hope you'll get back with us and tell us what you learn.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin


cured4real?
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Date Joined Dec 2005
Total Posts : 1944
   Posted 5/23/2007 11:12 PM (GMT -7)   
Hi--
Mine is low as is my ACTH. Did they test your ACTH? How's your thyroid? Do you have antibodies to your thyroid? I guess you can have antibodies to your adrenal glands as well. You might want to call your rheumie ans see if they can run some more tests, maybe some tests for antibodies to your endocrine system just to be sure. Might not be from the pred. Sometimes just stress and age play a factor. definitely worth a call to the doctor. I think they test cortisol a bunch of times before they treat it to be sure, and there are some other special tests they run. Really, an endo should do it, but your rheumie could collect more data to be sure it isn't just a fluctuating type of thing. Mines been low for a while and I believe part of the treatment in addition to cortisone is prednisone. I get shots of steroids from my rheumie and they make my system go out of whack for a while, months. My endo makes me wait two months after a shot of pred to test me. She would prefer longer. Hope this helps some.
Marji

"...brain, what is brain?"
--Kara, one of the "givers of pain and delight", aka woman of Sigma Draconis VI, "Spock's Brain" episode 56 season 3 of Star Trek--I'm not a trekkie but this one was funny!


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/24/2007 3:36 AM (GMT -7)   
Hi Ginny, I havn't been around much lately myself. I really don't know much about your adrenal gland other than what little bit i've read concerning lupus/adrenal. So I won't add my two cents there. I just wanted to say I'm sorry you have been having such a rough time. I hope things get better for you soon and whatever comes up with your blood work can be remedies easily.
Take care
love
carol
God Bless
Carol
 
 Newly DX's Lupus.Possible CREST,COPD, high PB xanax,triam , vicodin.5x3, Evista for osteo,. oxygen Plaquanil800mil, . effexor. spiriva, xopenex. pred.10.mil.
 
Come ye, all that are weary and heavy laden, and I will give you rest!
 
 


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 5/24/2007 9:15 AM (GMT -7)   
ginny, I just wanted to say that I'm sorry that things aren't going so well and I hope your doctor can explain things to you regarding your adrenal glands. I don't know a lot about it either. There are some older posts on the CFS forum about adrenal fatigue that you might be interested in reading. You could type in a HealingWell search for adrenal fatigue and I'm sure some of them would come up.

I hope there is something your doc can do to help you out. You'll be in my prayers.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

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cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 5/24/2007 12:54 PM (GMT -7)   
Hi ginny, just wanted to add that there is a thyroid forum run by Mary Shomon that has an adrenal forum section and some of the people there have autoimmune disease. It might be worth checking there if you still have questions.
Marji

"...brain, what is brain?"
--Kara, one of the "givers of pain and delight", aka woman of Sigma Draconis VI, "Spock's Brain" episode 56 season 3 of Star Trek--I'm not a trekkie but this one was funny!


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 5/24/2007 7:28 PM (GMT -7)   
Thank you so much everyone.  I have been able to find out some more information about all this.  As long as I stay on my prednisone at this doseage, I will be okay.  I need to see and endochrinologist though.  That is super important.  Adrenal insufficiency also explains why I haven't had a period in 2 1/2 months.  The adrenals control all our hormones!  So I'm getting somewhere with the info.  Thanks so much for your responses to this.
 
Ginny
I can do anything through Jesus Christ who strengthens me.  I have learned in whatever state I am in, to be content.  Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia, possible early menopause - do diagnosis yet. Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

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