Has anyone asked their dr

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Veteran Member

Date Joined Jul 2006
Total Posts : 831
   Posted 5/29/2007 9:23 PM (GMT -6)   
why the easiest things can cause a flare. When I say easy I mean like cleaning house or even just going to the store to get groceries. I just don't understand why it bothers our bodies so much.
I know that I haven't been dx but it seems like I go through alot of what everyone else on here does.
I do know that I degenerated disc disease but that doesn't cause all the things that I go through like sitting here trying to type and one my mnd goes blank when trying to remember how to spell words or the pain that is in my arm from shoulder to fingers.

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Date Joined Jul 2006
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   Posted 5/29/2007 9:28 PM (GMT -6)   
I forgot to ask to if anyone ever feels like tongue is swollen. Sometimes I feel like I have eaten to much salt or not drank enough water and I don't eat alot of salt but I drink like four or five bottles of water a day and juices.


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Date Joined May 2005
Total Posts : 6931
   Posted 5/29/2007 11:37 PM (GMT -6)   
As I understand it, the short answer is that is just one of the things that happens with any sort of auto-immune disease.

Our white blood cells, which normally fight off bad things like bacteria & viruses, have gone haywire. They 'forget' what's good and bad, so they fight off whatever they want to...especially they try to fight off normal body organs and responses. So they randomly may decide that your finger, for example, is actually a foreign invader and they start attacking it and that in turn causes soreness and joint pain even though we have not injured, overused, or otherwise damaged that finger.

Hope that helps a little,

Lynnwood, Co-Moderator: Lupus Forum
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Regular Member

Date Joined Apr 2007
Total Posts : 104
   Posted 5/30/2007 12:09 AM (GMT -6)   

Hey Veronica... I totally hear you!!!  Can't say I have the answers but... I understand what you are talking about.

Today, I had to carry some boxes down stairs.  They weren't overly heavy but by the third trip - I was getting tired and I had to take a break - that's one thing I find SO maddening with Lupus - the lack of energy and how quickly the little bit I have can be eaten up by the simplest of chores.  In no time, the arthritis in my knees was acting up - I was so stiff and sore and from what - a few trips up and down my stairs... that's the only thing I had done. 

As for my tongue - I get "sore mouth" from time to time.  It is very sensitive and I have a hard time eating things like toast.  I don't know if it feels swollen exactly but it is painful.

Hope some of this helps you out!!!


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Date Joined Jul 2005
Total Posts : 5403
   Posted 5/30/2007 8:44 AM (GMT -6)   
Veronica, Lynwodd did a good job explaining why we feel the way we do. It is so very frustrating when things we used to take for granted like grocery shopping or laundry or house cleaning can completely exhaust us and send us to bed. I have found myself feeling pretty down about this lately and angry that I can't just have a normal life and do things withough worrying that it will make me too tired or make my body hurt.

I also have problems with my tongue - I get ulcers on it a lot and it is sore a lot and has lots of cracks in it. I think my tongue problems have a lot to do with my Sjogren's.

Hang in there and know that we understand how frustrating all this is.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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Co-Moderator: Lupus and CFS Forums

Regular Member

Date Joined May 2007
Total Posts : 474
   Posted 5/30/2007 9:40 AM (GMT -6)   
YES. My tongue and throat swell! I do not get sores as often as many, but the swelling is constant! I give myself shots of epinephrine when it gets to the point that I am having trouble breathing. Somehow, my sle caused my allergies to go beserk!

Veteran Member

Date Joined Jul 2006
Total Posts : 831
   Posted 5/30/2007 9:48 AM (GMT -6)   
Just want to tell you all how great you are. Thank you you have helped out alot. I'm so glad to hear that I'm not going crazy and the things I"m going through are normal Well for us. If my dr. doesn't find that there is something wrong with me then I'm going to send her here and let her see what you all say and how what I have going on in my body is almost the same.


Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 5/30/2007 12:12 PM (GMT -6)   
Hi Veronica,
   I agree that Lynn did a great job explaining this. It's also funny she used one finger as an example....today I have one finger that hurts and nothing else...lol.
  I hope you get some relief soon. My tongue use to swell and get raw at times, but since I have been taking folic acid daily I don't have any problems. I haven't had any mouth ulcers in awhile either. You should mention this to your doctor. Like Hippi, I think most of mine was from Sjogren's as well.
  I hope you feel better soon. Please keep us updated and take care. You will be in my thoughts and prayers.
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
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JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

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