People with autoimmune disease will probably be denied adequate care for some cancer in the future

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cured4real?
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Date Joined Dec 2005
Total Posts : 1944
   Posted 5/30/2007 12:45 PM (GMT -7)   
Now I understand why a doctor feels he can look at you and, with no testing, no labs, no empirical data, and just say, "you have fibro, nothing more" or "you're just depressed."  In an effort to save the insurance companies money, the doctors are using statistical data to gamble with our lives.  since women are prone to fibro and depression, doctors are being encouraged based on statistical data to forego expensive testing and just assume that you have these supposedly common "fibro" or "depression" and nothing more.  There is a big flaw in this logic, because it creates a self perpetuating cycle of discrimination against female patients or chronically ill patients.  This off the cuff diagnosis skews the statistics because the statistics have no basis but the gut feeling or predjudice of the doctor and is not based on blood work. 
 
Even giving the statistical argument a chance, a statistic is valid, (like more women get AI disease than men) the statistic must still be based on accurate diagnosis of AI disease in all individuals tested, a proper sample of the population, and totally unbiased doctors--and none of us are unbiased.   While sometimes there is a biological basis for a statistic like women don't get prostate cancer because they don't have a prostate,  in other cases, the decisions are relatively random. 
 
When it comes to cancer, this is frightening. 
 
Please take a look at my post about thyroid cancer if you feel up to it.  This is very frightening and I"m going to have to start writing some things.  I didn't even notice the autoimmune part on there.  Basically, as a "rational" and "cost-effective" approach to, in this case thyroid cancer, a doctor is recommending that thyroid women with autoimmune disease be dx as benign to stop all the "irrational" biopsies going on.
Marji

"...brain, what is brain?"
--Kara, one of the "givers of pain and delight", aka woman of Sigma Draconis VI, "Spock's Brain" episode 56 season 3 of Star Trek--I'm not a trekkie but this one was funny!


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/31/2007 8:01 AM (GMT -7)   
yeah well we are all pretty much used to fighting for care. Though sometimes if you get the right team of doctors the fight stops and proper care begins. I still need a new pcp. I am just so tired of trying new ones.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 5/31/2007 9:12 AM (GMT -7)   
Oh Marji, didn't we determine long ago that insurance companies, HMOs, pharmaceutical companies and all their affiliates are in the business to make money and not to treat patients?  And how do they make this money?  By cutting costs each and every way they can.  And that leaves us....

Dx: SLE, major depressive disorder, diabetes, fibromyalgia, asthma, gerd, sleep apnea, hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone 10mg, flexeril, prozac, lamectil, celebrex, lisinopril, actos, lipitor, nexeum, seroquel, advair, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax, albuterol
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna
 


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 5/31/2007 5:34 PM (GMT -7)   
Well, they used to really take care with cancer and other really serious stuff. I'm just seeing so much stuff that says that women with ai, especially postmenopausal women, should just be dismissed and suddenly the whole big thing hit me. I've even talked to some medical technical writers and researchers who are feminist women and found nothing out of the ordinary or sexist in the article, because they are so used to thinking in those terms, where people are statistics, not lives to be saved. They had to really read and read to see it, then it was like "Oh my God, this is awful, but I can't say anything because I'd be a laughing stock." It's just ingrained thinking in the medical community now, thanks to insurance companies and big business medical. See I always thought they had to take an oath to preserve life or at least first do no harm.
Marji

"...brain, what is brain?"
--Kara, one of the "givers of pain and delight", aka woman of Sigma Draconis VI, "Spock's Brain" episode 56 season 3 of Star Trek--I'm not a trekkie but this one was funny!

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